Be merry and glad for you are alive to celebrate this day. Be glad for those around you as they are a part of your joy. Remember the lost and bring the found home. For those are the ones who made your days.
{Hearts} On 22 ~ Thankful
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Category Archives: Blood Clot
{Happy Birthday} Hello 30!
One little Ninja and her Mama
October 27th, 1982
In ten short years I traveled the world, graduated college, bought a Prius and a house, got married, became a mom to Nylan, had a pulmonary embolism induced stroke, became a mama to a baby in heaven, got divorced, adopted a muppet like dog, hit rock bottom, and found myself. The only thing in the above equation 
I plan on repeating in the next ten years is travel, marriage, house, prius, dogs, and kids. Thats it no ifs ands or buts about it. Then again I of all people should know that we really don’t have control over our lives. The only thing I can control is how well I live my life. An I am determined to live one hell of a life.
Not having a plan used to scare the crap out of me. Now its a thrill. When I walked out on my ex husband I didn’t have a clue on what my life was going to be like. I just knew that it had to be better and that someone out there would love me. I dabbled in dating only to come up empty-handed. Turns out Mr. right was waiting in the wings. Charlie was an amazing man who was brave enough to take on my baggage. He patiently waited for me to drop my bags at the door and walk into his life. Charlie made me feel like anything and everything was possible. Mostly he showed me that love does exist, it’s not just a dream. Love is worth waiting for ladies, it truly is. The biggest lesson of my twenties was “don’t go for Mr. Right now, instead hold out for the one who takes your breath away.” Don’t get me wrong, I will always have a tiny place in my heart for my ex husband, at the end of the day he just wasn’t the one.
My ex showed me what it was like to be last. Scott always put my wants, needs, and well me last. I was never a priority in his life and what I needed didn’t matter to him. My dreams were shoved to the bottom of the pile, heck I gave up law school for him. Yet, I am glad I met Scott. Because without Scott I would never have met Nylan.
Nylan will always be my first son and one of my greatest joys in life. This equation proves that there is always good in the bad, we just have to pick out the good parts and sweep the bad a side. You can guarantee that Nylan and I will continue our bond into my thirties. Any man I date will have to realize that I have a date with Nylan one Saturday a month and that date will never be cancelled on.
Dates are funny little things. Some dates stick in our minds and others leave us forever changed. I am not talking about dating rather the dates on our calendars. April 3 2005 Scott and I had our first date, November 13 2006, Scott asked me to marry him, and on May 31 2008, Scott and I said I do. October 22, 2009 is a day I will never forget. That was the day I had my PE induced stroke. May 12, 2010 was the day I found out that the child I was carrying had died and June 27 2010 was the day I walked out on my marriage. August 13, 2010, was the day I adopted the muppet like dog. On September 24, 2010 I quit my job and on December 23 2010, my divorce was finalized. May 27 2011, was the day I started at the big firm. January 27 2012, I became an aunt, February 6 2012, was the day I started at the little firm and on February 16, 2012 Charlie died. The above dates are forever engraved in my memory. All other dates are irrelevant and are trivial compared to the moments that changed my life. Each and every one of us are a collection of dates. Dates tell us how far we’ve come, how long we’ve loved, and how long someone has been gone. My hope is to only add happy dates to the running list during my thirties. Lord knows I could use some happiness to go along with the bad.
I’ve stuffed a lot of living into ten short years. Even I look back and think “Holy Shit AJ! Do you realize you’ve been to Egypt, lived in a Palace, snorkeled in Alaska, and Zip Corded trough the jungles of Belize?” Then I look at my scrap books and say “Yup, I sure did!” Incredible is the one word I’d use to describe my life. Its been incredibly strange, awesome, and darn right tough at times. Hitting rock bottom gave me the strength to dig out and find my way to the top. Now that I am on top, no one will ever knock me down again. The past ten years have taught me to hold my ground and to fight for my place on the mountain. My heart is strong and I have vowed to never lose myself again. I am going to savor my place on the mountain and enjoy the time I’ve borrowed.
I am going to enjoy the time I have on this earth and will not dwell upon the past. Sure I have questions that will go unanswered. I will never understand why my ex husband stopped loving me or why I had to be the one who suffered a PE induced stroke. Mostly I’ll never understand why God called my son Aloucious and Charlie home. I can’t even begin to wrap my head around what was going through that drunk drivers mind the day that Charlie died. Nor will I ever understand why my ex husband chose to stay in Vegas and push his grieving wife a side. I just know that one day it will all make sense. That in life we cannot have the good without the bad. It has to make sense, otherwise every moment of the past ten years was worthless. My faith tells me that each moment is part of a grander plan. I may not understand that plan, yet I am willing to go where ever fate takes me.
A Toast:
To one more incredible borrowed year on this earth. May year number 30 be filled with love, adventure, hope, and more laughter than one soul can handle. Goodbye 29 and Hello 30!
{Hearts} On 22 – Survival Looks Good On You
It’s hard for me to believe that three years have all ready come and gone. I am a different woman, my strength is through the roof, and my spirit does not quiver at challenge. I’ve spent the last three years working my ass off to get my body back, did some rearranging in my life and found myself. I am greatful that I had the pulmonary embolism induced stroke, without it I wouldn’t be the AmandaJean you know and love. Without it I would still be the shy wife sitting at home wondering where my husband was. Instead I am a woman who wonders what will my future hold.
My future is uncertain, today is all ready here, and my dreams are best left to fate. Fate is what brought me here. Three years later it still bugs the shit out of me that my whole ordeal could have been prevented. Had I not used the ring and if only my doctor did the test. The blood clot could have been detected be for it hit my lungs and my heart. A day doesn’t go by where I do not say a silent prayer for those who didn’t make it. Four had to die so I could be the one out of five who survived.
Spending time with Nylan and my niece Sophia
My body has been through alot. I am ok with the fact that it will never be the same. Trust me I’ve spent countless hours trying to will my pre-PE body back, it didn’t work. I decided it was best to work with what I’ve got and to celebrate everything it can do. My body has brought me to some pretty great places and it did after all carry Aloucious for a little while. I am doing my best to take care of my surviving heart. Walks with the muppet like dog and an organic diet keep me strong. Feeling winded reminds me to be humble and to thank the lord for my third chance at life.
The third time is a charm. I am not sure what God has in store for me, I just know he didn’t bring me this far to let me down. I’ll never know why this happened to me. I cannot change the fact that it happened nor can I turn back time. So I choose to move forward and not dwell on the why but more so the how. Then again the how makes me a little angry so I usually skip that too. I channel my emotions into advocacy and community awareness. This keeps me sane and reminds me that every dream is worth fighting for.
It is my dream that during my third lifetime we will put an end to heart disease and stroke. To silence the number one killer of women in America. It is my dream to see stricter regulations and warning labels on hormonal contraceptives. No woman who pops the pill or uses the ring should have to experience the hell I’ve walked through. I’ve got a big dream, this I know. However I have faith that one day it will come true.
So here is a toast: A toast to one more incredible borrowed year on this earth. A year filled with love, adventure happiness, and more laughter than one soul can handle.
Thank You
When I think about the staff at Woodwinds Health Campus in Woodbury and more importantly my nurses and Dr. Anderson thank you just isn’t enough. Without them I would not be alive today. I am forever in debt to my care team and I am greatful for what they did that day to save my life. Mostly I am greatful because they believed in me and knew that I would bounce back.
Thank you to all of my friends and family who have been there since day one of my heart healthy journey. Without your love and support I wouldn’t have made it this far. Thank your for listening to me complain, drying my tears and cheering me on to a better day. That day we’ve dreamed of is here and I am greatful to have all of you by my side.
{20’s} A Snap Shot
Holy, its hard for me to believe that I will be 30 in 31 days. I am excited to say goodbye to my 20’s and hello to AJ 3.0. My 20’s were one crazy ride. The past decade was filled with, love, advenutre, loss, learning , and so much more. So take a stroll with me as I recap the good, the bad, and the down right funny parts of the past decade.
20
During the fall of 2002 I started college at the University of Wisconsin Superior and managed to fall in love with a boy from Sri Lanka. Made some great friends and took part in all of the activities that the Northland had to offer. I met my greatest mentor Dr. Maria Cuzzo and she taught me everything there is to know about the law.
21
Ah! Finally I am legal. Legal to drink that is. However my 21st birthday was a bust. I was sicker than a dog with mono that October. It sucked. Anyways at 21 I came into my own as a bi-racial woman and started speaking at different conferences around the state. In the fall I applied and was accepted to the Wisconsin in Scotland program and was pretty darn pumped for living abroad. I spent most of the year plotting my trip overseas. The Sri Lankan and I saw our first anniversary. Man, back then I thought one year was a huge accomplishment. If I had only known right. That spring he and I drifted apart and I was once again single an ready to mingle. Well I didn’t really mingle.
I spent my summer working at the St James Hotel in Red Wing and saved every dime I made for my trip to Scotland. That August my Mama wrapped her arms around me and waved good-bye as I walked towards the ticket counter. I am not going to lie, I was pretty darn scared and had no fucking clue if I would make it over seas. Scotland was everything I hoped it would be and I got along great with my roommates. In September I wondered the streets of Paris, tanned on the beaches of Sardinia, rode the funicular in Barcelona, and sailed the canals of Venice. I had been to the Edinburgh Tattoo, seen the Queen of England in Person and took in the highland games.
22
I set off to find my place in the world, I didn’t find my place, instead I found myself. Scotland taught me that I can do anything and that life is one hell of an adventure. I had an amazing 22nd birthday in Scotland and returned home that November forever changed. I was no longer the shy sheltered small town girl, I was now a citizen of the world and a shadow of my former self. I gained so much strength. In January I said goodbye to the Sri Lankan boy and said hello to Scott.
Scott walked into my life that April and he brought a little boy along as well. I fell head over heels for this man and I knew within a few months that he was the one. Scott and Nylan were a package deal and I loved them both with all of my heart. In the fall I started my senior year and plotted my next overseas adventure. Joy and I spent our fall prepping for Egypt and our pending graduation. I lived it up with my sorority sisters and took my speaking skills to the national stage. I got a kick ass LSAT score and was filling out my law school applications. I applied to four that fall. My heart was set on LSU Baton Rouge.
23
In January Joy and I took off for Egypt. Traveling with my best friend was a great way to say good-bye to our college years. We explored the Great Pyramids, the Valley of the Kings, sailed the Nile, and ran from creepy Egyptian men. Joy and I will always have the night train. Ah, yes the night train. Motion sickness got the best of me and Joy growled at the hobos as I puked my guts out in the not so nice bathroom. I swear to God that train popped out of 1920 something. I made some great friends on our trip and was forever changed by my journey to the land of the Pharos.
That Spring Scott and I saw our first anniversary and I began making plans to move in with him that summer. Law School was put on the back burner as I focused on finding a job and being a Mom to Nylan. Woodbury would become my new home and I quickly learned what it was like to live with his brothers. His dogs became mine and I started to build a new dream. Jenny Craig was my first job out of college. I felt a little defeated, my heart laid with the law and without experience that was out of my grasp. Yet, I made the best out of the situation and kept on pushing for something better.
24
In November Scott and I took a cruise to Mexico and Belize. We took doon buggies to the ruins, zip corded through the jungles, and fell deeply in love on the high seas. The Monday after we returned from our vacation Scott asked me to come out to the garage. He explained that Nylan had left something for me and directed me to my Halloween porch kids. Nylan left something for you in the skeleton’s bag, reach in and see. No I said, it might be a spider. Scott got me to reach in, to my surprise the object was square. As I pulled it out and turned around Scott was on one knee. He asked me to be his wife and of course I said yes. This was one of the happiest days of my life and I was now the proud owner of a calla cut butterfly engagement ring.
In January I said good-by to Jenny Craig and Hello to Express Scripts. Life was great. I loved my job and our relationship was going strong. Wedding planing became my top priority and lucky me I found the dress of my dreams in March.
I needed to itch my travel bug so Scott and I planned a cruise to Alaska that September. 
It was chilly, yet incredible. Once again he and I fell in love on the high seas.
25
Whoever said your cube mate can’t become your best friend was wrong. Lisa and I bonded over wedding planning and puppies. She is one of the most incredible women I know. Today she is no longer my cube mate, instead she is my best friend. Scott and I were getting tired of living with his brothers and we set out to find a home of our own. We looked at more than 30 houses until we found the perfect one. Nylan said he wanted a red house and that is exactly the color of the house we bought and called our home. I spent most of the spring making the red house our home and putting the final details on our wedding.
That winter I started the paralegal certification program at the MN Paralegal institute. I excelled at my courses and my teachers would ask “um why are you here, you know the law and can draft.” Well I am here because no one will hire me unless I have a paralegal certificate. I spent some evenings after class helping my classmates understand the law and proofing their drafts.
On May 31st, 2008 Scott and I said I do with Nylan at our side. It was a beautiful day filled with love and family. Together we were unstoppable and our love bubbled over.
26
It seemed that the home we bought to bring us together was instead ripping us apart. A rift was formed. Scott had done things I couldn’t forgive. Yet with the walls crashing down we planned another cruise. This time we were headed for Europe and Africa. At times I wonder why we even went. Maybe we thought the magic we had before on past cruises would find its way in and that we would fall in love once again. Love didn’t find its way in. I had few words to say. yet I held on for Nylan’s sake. He deserved a home. To those around us we looked like the perfect couple. In reality we were far from that.
Change was brewing in the wind. That October I took a job at a law firm in Plymouth. I was excited for this new adventure, yet sad to leave my friends and the safety of Express Scripts.
I was excited to start my new job on the 19th of October. I hadn’t felt well that weekend and I just wrote it off as nerves. On the 21st I had terrible pain through out my body. It felt like someone was trying to cut me open. I took some Tylenol and went to bed early that night. On October 22nd I never made it to work, instead I made it to the ER and was fighting like hell to survive. When I arrived at the ER I could barely breathe and my chest felt like a thousand knives were stabbing me. This would be the day I learned what a pulmonary embolism was and on how lucky I am.
27
I almost died five days before my 27th birthday. I was still finding my way as a survivor and dealing with the aftermath of my blood clot. My life revolved around lovenox, INR checks, drs appointments, and so on. I was sick and tired of it all. Mostly I was tired of being married to a man who didn’t love me. I wanted a man who was moved by the fact that his wife almost died, instead I got pushed to the bottom and cheated on. Yet he promised me that our life was going to be better and that he was going to try harder. That December we had our first Christmas with Nylan in Minnesota. He had an incredible day and enjoyed playing in the piles of snow.
We learned in January that the blood clot had finally dissolved in my lung and that I was half way out of the woods. Once we got that news we decided that Scott + AJ = baby. In April we found out that we were expecting.
To me this was the silver lining. My moment to say that I survived one of the shittiest things in the world and now my body is carrying life. In this moment Scott and I were Happy. The world seemed to stop spinning and love slowly seeped back into our marriage. He talked to my growing belly and would say with a smile “We did it bear.” That we did. Our pregnancy was high risk and we knew the odds. I held out hope that our baby would make it and that we would say hello in a few short months.
Hello never came. In May we said goodbye. Sherri held my hand and dried my tears as I sat waiting in the hospital. We both knew why we were there. She held on to my wedding ring as I went into surgery. When I came out I was no longer with child, I had become a mother to a baby in heaven. My son’s death showed me just how little I mattered to Scott. It showed me that I needed to call it quits.
That June I met an attorney who told me “It all comes down to a judgment call. There are no winners or losers in divorce. Someone has to walk away first.” I heard that on Friday June 25th 2010 and walked away from my marriage on June 27th. It was easy leaving Scott. It hurt like fucking hell when I said good-bye to Nylan. I loved that little boy with every fiber of my being. He was and will always be my son.
I spent the rest of that summer learning how to be unmarried and rescued the muppet like dog. The muppet quickly became my trusty little side kick and he is totally the best dog ever. it was me and the muppet like dog against the world. I tucked my ring away and set out to find myself. Part of finding myself was to quit my job. I hated the law firm I worked for and decided I was done. Of course I was scared. I didn’t have a plan or a fucking clue what I was going to do next.
28
Me and My Mama at my Birthday Lunch
I was no longer a Cohen. My divorce was finalized on December 23rd, 2010. Merry fucking Christmas to me. I was one very happy divorced woman and those papers proved that I was now a free woman.
In the spring I tried on a pair of lobbying shoes. To my surprise they fit and when I opened my mouth people listened. By May I had enough of the bullshit at my $12 an hour job and set off for something new. Enter the big downtown firm. I must admit I was scared half to death to start working there. The attorney from last June and I fell on bad terms. I had no idea if he was going to try to sink me. My lovely friend Lisa talked me into taking the job. She was right I had as much right to work there as he did.
In truth, I shined. Before I knew it I was the go to girl and had 12 attorneys emailing me for assistance. They didn’t care that they had their own assistant, they wanted me. They wanted AJ. I will admit, I worked my summer away and eventually worked myself sick. Yet I was happy to be apart of something huge and I now know more about fishing than I could have ever imagined.
Charlie and I started dating off and on that summer. He was in NY most of the time, yet we made it work. I slowly fell in love with my best friend and started spending more days at The Ivy. Life at 28 was perfect. I loved Charlie, Loved my job and the muppet like dog.
29
At 29 work became my life. I barely had a social life and at times Charlie got mad at me. This is where I learned that trying to prove yourself isn’t necessary. By Thanksgiving I had worked myself sick, barely slept, and rarely did anything outside of work. Something had to give. If the big firm wasn’t going to give me a permanent position I would find a firm that would. I had several interviews and few call backs. I had started to give up and was accepting my fate as a temp. In late January I got a call, a firm wanted me. I accepted and said my good-byes and left the big downtown firm. I made a lot of great friends there and will always remember the late nights and crazy hours I put in to make someone’s life better.
Oooo, I became an Aunt. Yes, this is definitely a highlight! My niece Sophia and I are 29 years and four months apart, totally cool if you ask me. I love that little girl with all of my heart.
Speaking of love Charlie sat on his coffee table and asked me to be his wife. Of course I said yes. My world was once again perfect. I had a new niece, I was on the mend, engaged, and I loved my job again. Once again I felt like this was my calm after the storm and that nothing was going to destroy my bubble. Bubbles burst way to often in my life. I should know by now that when things are perfect, it take one little prick to burst my happy.
Charlie passed away on February 16th and I was heart-broken. He never even got to meet my niece Sophia or my sister for that matter. Charlie would have loved Sophia. Saying good-bye was hard and I can live the rest of my life knowing that Charlie loved me with all of his heart. There are days where I can feel him around and on others I look up and say “stop pushing Charlie, I can do it on my own.”
An that I did. I proved to myself that I am more than a survivor, I am one hell of a woman with one incredible story. Charlie’s death taught me that memories are worth more than dollars. I have spent more time with friends, uttered I love you more often, snuggled with niece, and spent time with my family. Life is precious and it is worth living. The ultimate lesson of year 29 is “Putting memories into you memory bank is more important than the balance in your bank account.” I will never again work my life away. I will be damned if I let moments slip away because of a work deadline. I have learned to say no and walk away at 6pm. I deserve a life and you know what my bank account doesn’t miss the overtime.
One thing is for certain My 30’s have to be better than my 20’s. I hope that there will be less pot holes and more smooth black top ahead of me. Life is a journey worth taking an I am going to hold on tight. The next 10 years are going to be awesome. I hope to find love again and start a family of my own. Hell I just might entertain the idea of law school or something awesome like that. I do know that I will keep on blogging, so grab your tickets and in 31 days come see AJ 3.0 in action.
{Charlie} Moments of Impact
They say a lady knows when she is ready to move on. She knows when to let go of the past and walk into her future with an open heart. She knows how to love like she is dying because the one who had her heart died loving her.
Our lives are nothing but moments. Most of the moments are trivial, however there are the ones that impact our lives so greatly we are forever changed. When that impact hits us we will never walk the same course again. We can dream about what was, we can long for it, but at the end of the day what was will never ever be again. I have come to realize this over the past 7 months, that my life will never be the same.
Over the past three years I have encountered several moments of impact, my blood clot tought me how to survive, the death of my child and the end of my marriage made me into the woman I am today. Those moments were filled with trial and tears, yet those are the moments that changed the course of my life. They charted the course for my life to collide with Charlie.
Collide is what we did. Charlie renewed my faith, taught me that love was more than just a word, and that life was a dream worth fighting for. I have enough memories to keep me company for a lifetime. While I am remembering Charlie, a young man in New York will alway be haunted by the moment he chose to get behind the wheel while drunk. His moment of impact changed the course of his life and that of five families forever.
Because of this man I am not able to say I do, instead I got to say goodbye. That day my dream ended. That day a part of my heart broke and I am afraid it will never be repaired. Justice tells us that he must pay for his crime. Is there really a punishment big enough for someone who took a life, who carelessly turned the key and drove down a freeway drunk. No there is not, if you ask me no there is not. Because for the rest of my life I have to live knowing that he is alive living his life, while my fiance is six feet under. That one day this man may get married and have children of his own, his life will go on once the prison door is opened, it will go on.
Charlie’s life ended that day. He dreamed of having a baby girl named Charlotte Rae, that dream died the moment his heart gave out. One decision, one moment of impact ended all of his dreams. He dream of being the first Native American to sit on the Supreme Court, he dreamed of a better day for his people. He dreamed of a better day for farmers and small business owners. He dreamed so big that those he left behind are stepping up and ensuring that his people will see a better day. That some day a Native American will sit on the bench, and see that large ag businesses will toppel and give way to the family farm.
That man sitting in a prison cell may have taken Charlie’s life, however he will not kill his dreams. Because Charlie’s dreams were bigger than the life he lead. Mostly because that young man will never know a man like Charlie, he will never love like he did, care like he did, or give like he did. Because Charlie was one hell of a man and I thank God every day that I collided into his life for a little while. I can live the rest of my life knowing that one man loved me until his last breath, his last moment of impact.
{Hearts} On 22 – National Stroke Awareness Month
Stroke is the third leading cause of death in Minnesota, with 2,154 deaths in 2010, according to new data from the Minnesota Department of Health (MDH). To raise awareness of this rising problem Governor Mark Dayton declared May Stroke Awareness month. Not many people know or understand the symptoms of a stroke. Symptoms vary from person to person and can be hard to identify. Every second counts when a stroke strikes. A few seconds could mean the difference between life and death.
I like every other women in this country read the warning label on my hormonal contraception. I just like the rest of you thought “Hell, that never happens. They just put that on their label to cover their asses.”
You know the line where it reads “Women over the age of 35 are at risk for blood clots and stroke while taking this medication.” I was only 26 and not 35 so I put little to no thought into it. The beauty behind hindsight is that it is only 50/50. My that will never happen to me moment came one cool crisp October morning.
I woke up feeling fine, grabbed my coffee, jumped in the Prius, and headed towards the freeway. Rush hour was terrible that morning and I wasn’t going anywhere fast. As I trudged along I started to have pain in my chest at first it was just annoying. Within a matter of minutes it went from annoying to stabbing, it felt like someone was trying to cut open my chest and rip my lungs out. The pain was getting worse and I could barely breathe, my left side started going numb and I started getting scared. I probably should have dialed 911, however I hit the Lexington parkway exit and went back towards Woodbury. To this day I can’t tell you how I made the drive from Saint Paul to Woodwinds health campus in Woodbury, someone up above was watching out for me that day.
All I remember is throwing my car into park and walking as fast as I could towards the Emergency room doors. The security guard saw me coming and reached out his hand just in time to keep me from collapsing on the floor. Next thing I know I am waking up to a nurse saying “Well it’s not a heart attack. Now are you going to help me take your clothes off or do I get to cut them off you.” Dazed and confused I quickly muttered “I’ll help.” The Dr came in when he got word I had come to and asked me a slew of questions. The Dr told me “You most likely have an infection in your chest so I am going to get you to x-ray.” I didn’t get an x-ray that day, instead I got a CT Scan. An infection would have been better than what I had in my lung. A Clot the size of a pea was blocking the main valve to my heart and I was stroking out. Within minutes my room was a fury of nurses and doctors. Clot busters were injected, blood pressure medication, heparin, and finally pain meds started to seep in to my veins. The Doctor looked me in the eye and said “You are one lucky woman, I shouldn’t be admitting you. You young lady, just beat death. Had you arrived just a few minutes later than you did, you would have died.”
You beat death, has stuck with me and I am greatful to be alive. I had my massive pulmonary embolism with infarction and stroke five days before my 27th birthday. Thursday October 22, 2009 was the day my life changed forever and I am greatful to be above ground.
Taken 2 weeks after my massive pulomanry embolisim with infarction and stroke.
Above ground is where I plan to stay and I am using my second chance to raise awareness of Strokes and Heart disease. I want to save someone from having to go through the hell I lived through. A healthy heart is a loving heart. A surviving heart is a greatful heart. A Greatful heart is a healthy heart that shouts from the roof tops. I am blessed to be a part of the Twin Cities community which raised nearly 2.2 Million Dollars at the annual Heart Walk. 
10, 000 people gathered last Saturday to walk for a cause and to show the world that we want to silence the #1 killer in America. Companies shared our passion, survivors stood proudly, and some walked with heavy hearts. The walk brought us together, each of us bound by a common thread, and forever changed by heart disease. Some came because they wanted to be healthy, others came to honor their past, and the lucky ones stood with surviving hearts. I am one of the lucky ones. Yet I was reminded of my Father and my cousin Emma who died at the age of three. She was the original reason I started taking part in Jump Rope for Heart and then the Twin Cities Heart Walk. Emma was with me on Saturday, I wore her name on my back. I didn’t walk for my surviving heart, I walked for Emma and her transplanted heart.
I am part of the new generation. Stroke just doesn’t affect the elderly. It can hit anyone at any time. No one is immune and when a stroke hits every second counts. I beg you from the bottom of my surviving heart to learn the signs and symptoms of a stroke. Take it from me the very life you might save could be your own.
Unique Symptoms in Women
It is important to recognize stroke symptoms and act quickly.
Common stroke symptoms seen in both men and women:
•Sudden numbness or weakness of face, arm or leg — especially on one side of the body
•Sudden confusion, trouble speaking or understanding
•Sudden trouble seeing in one or both eyes
•Sudden trouble walking, dizziness, loss of balance or coordination
•Sudden severe headache with no known cause
Women may report unique stroke symptoms:
•sudden face and limb pain
•sudden hiccups
•sudden nausea
•sudden general weakness
•sudden chest pain
•sudden shortness of breath
•sudden palpitations
Call 9-1-1 immediately if you have any of these symptoms
Every minute counts for stroke patients and acting F.A.S.T. can lead patients to the stroke treatments they desperately need. The most effective stroke treatments are only available if the stroke is recognized and diagnosed within the first three hours of the first symptoms. Actually, many Americans are not aware that stroke patients may not be eligible for stroke treatments if they arrive at the hospital after the three-hour window.
Unique Symptoms in Women information provided by the National Stroke Association
For more information on Strokes and Heart Health please visit: http://www.stroke.org and http://www.heart.org
{Lobbying} For Your Heart
The American Heart Association had a dream, a dream to create an army of life savers. In 2011 they along with legislators drafted a bill that would require all children in the State of Minnesota to learn hands only CPR before they graduate. Now that was a good dream, one that we pushed hard for. Tireless days were spent pounding the capital halls, sending emails, and phone calls until we were blue in the face. We watched our bill pass in the House and then the Senate. The next stop was the Governor’s desk. The pressure continued with drop in visits, phone calls, we were not going to give up until the Governor signed our bill into law. 
For me I had one girl in mind when I walked into the Governor’s office and that was Jamie. Jamie is a sudden cardiac arrest survivor who died at 18, however she was brought back from the brink with a little CPR. CPR can and will save lives. The Governor heard our cry loud and clear, April 23rd will be a day to remember. On Monday, April 23, 2012, Gov. Mark Dayton signed the CPR Training in Schools bill (HF 2329/SF 1908) into law.
One day when my children complain about having to learn CPR in class, I will say “Hey now, your Mama lobbied hard for that law and now you will have the ability to save a life!” I am one of the few who can say, “I set out to change the world, and I did exactly just that.” To you the change may be small, but for survivors like myself it means that one more person has the chance at life.
To all of you who emailed, called, and visited the Capital I want to thank you from the bottom of my surviving heart. Without your help and the American Heart Association this Law would not have been possible.
{Child Loss} With Time the Heart Heals
It’s funny how time soothes our souls and slowly heals our wounds. I all most didn’t realize what today marked. A day that I would never forget. It was a day that women long for. I remember standing in my bathroom watching the hour-glass spin on the EPT. Part of me had hope and part of me was preparing for a “not pregnant” to pop up. It seemed like hours had passed, I didn’t want to look. To my surprise the test screen said “pregnant.” The test dropped to the floor, shaking I smiled slightly, and thought “finally my calm has come.” I showed the test to Scott, he was over joyed, his eyes filled with tears. Tears because we had just conquered the impossible. In that moment we were happy, the cheating and the lies they didn’t matter. Because now two had truly become one.
Calls were made to the doctor, since I got pregnant just months after my P.E. I was considered high risk. The doctor told us it was a long shot, and that time would tell if the warfarin sodium had done any damage to the baby. We had a 50/50 chance of bringing a baby into this world. To me those were good odds so I started the twice a day Lovenox injections and a crazy low vitamin K diet. I started showing right away, there was no hiding the fact that I was with child. My baby belly to me was a symbol of survival and my way of saying Fuck you nuva ring, I made it. Morning sickness never came, sleep was something I couldn’t get enough of, and cravings were plentiful.
The doctors said our child had a strong heart beat and that he was a fighter. The first time I saw him I fell in love, that was my child on the screen, and there was no greater gift. They talked about the odds of a blood clot forming, they told me the baby could be born Lovenox dependant, and that I could bleed to death during child-birth. Bleeding to death is not how I wanted to go, so a C-section was planned, and it was decided that our son would be born early. Being born early would be best for both baby and mommy.
While I was busy planning and dreaming of what was to come, my body was brewing up a different plan. It was the Tuesday after Mothers Day, I sat in the waiting room and looked around at all of the swollen bellies. My name was called and into the ultra sound room we went. The tech fumbled with the wand, minutes went by, and she just kept clicking on the key board. She sat their in silence adjusting the colors on the screen, soon she got up and walked out. That’s odd I thought, she came back with one of the doctors. He stared at the screen with her looking as the colors changed. He coldly said “there is no heart beat.” At first I couldn’t comprehend what he was saying. He explained to me that my son had died, that my baby was dead. He told me, “I’m so sorry for your loss. it’s probably for the best.” He asked if I wanted to talk about the options. I said no and stormed out of there.
Stormed off to the Prius as I put the key into the ignition the tears began to fall. I placed my hand on my belly and dared to ask why. I could barely dial the phone, when my Mom answered all I could muster was "Aloucious died." My Mom, she was trying to hold back her tears, she said "I'll call your Dad. I went home to an empty house, Scott was in Vegas, I tried calling him but he didn't answer. I barried myself in bed, I didn't want to face the world. I wasn't ready to lose my child. The door bell rang and standing at the door was my Father.
All I could do was cry as he wrapped his arms around me and held me tight. He said to me "I don't know why this happened. We just have to have faith." I stood there in his arms crying, my whole world shattered around me. He told me to get dressed and took me out for breakfast. I could barely eat and didn't want to face the world. The rain fell softly as we walked to the car I asked "Dad can we bury Aloucious under a birch tree?" Of course he said, yes we can, why don't we go look for one now. We strolled through the nursery lot for a few hours looking for the perfect tree to place my son under, a tree that would have deep roots and strong branches. We didn't find the perfect tree and now cold from the rain I just wanted to go home.
Home is where I was when Scott finally called. I had asked him to come home, to be with me. He told me "no." I was crushed the man I needed most had failed me and left me standing alone. Alone to make decisions about our son. After talking to a nurse about my options it was evident that I would not go into labor on my own. I needed surgery. Sherri she had left work early and sat by me in the waiting room. As I went back to surgery I gave her my wedding rings to hold on to, she had tears in her eyes as she said "see you in a bit." The nurses told her the procedure would take about 40 minutes. 40 minutes melted into an hour and that hour melted into two. Soon she was told that I was out and in recovery. My ordeal, my son was no longer a part of me. I was now a mother to a baby in heaven.
I was angry, sad, and frustrated. I went through the phase where I thought my son's death was my fault and often thought maybe I wasn't good enough to be a mom. That maybe this was God's way of showing me that he didn't have faith in me. I was angry and scared. No one I knew had gone through this before. Babies just don't up and die. There had to be a reason and we would have to wait two long months for the results.
As I waited the anger started to fade, grief slipped into every day life, and I slowly started to feel a live. One thing was certain something had to change. I needed to re-evaluate my marriage and the man I called my husband. It was hard for me to fathom that Scott didn't care enough about me to get on a plane. Vegas and Ultimate Electronics were more important than his grieving wife. This was my moment to reclaim myself and to fight for what I wanted in this world.
An that I did, in June I walked away. I was done and I had nothing left to give. Two months slowly passed and the answers I had been waiting for were ready. Just like before I walked into the doctor's office alone. The nurse asked if Scott would be coming. I told her no, I left him about two weeks ago. We are getting a divorce. Oh, she said. "Well some marriages can't survive the death of a child hun." I just looked at her and said "my son gave me the strength to walk away from a man who cheated on and lied to me. He had nothing to do with my leaving or our demise." She just looked at me. The doctor came in and told me "AJ, I wish I had more to tell you. Your son was chromosomally perfect and well, we have no idea why he died. His little heart just stopped. It happens hun." That's all I needed to hear. My son was perfect. My beautiful boy was perfect and I was proud of that.
Time heals the heart. At first I didn't want anything to do with babies. Swollen tummies made me retreat and I cried behind closed doors. Friends walked on egg shells as they announced their pregnancies and shot me half smiles. Half smiles turned into hugs. Babies are a beautiful part of this world and I have faith that one day I will get to say hello instead of goodbye to my child. Goodbyes are hard, yet it gave me more strength than I could ever imagine. Maybe I am lucky because now I have a little me in heaven. A son that is always with me. I can feel him in the breeze. Sometimes I let my mind wander and wonder what he would be like today. Would he have my curly hair, his dad's eyes, and I just hope he'd have my intelligence.
Shortly after Aloucious death I got a tattoo on my right foot. Because of the blog we nicknamed him little bear. So it was only fitting that I get a tattoo of four small bear paws. Two paws are red and black those were Scott's favorite colors. The other two are pink and orange which are my favorite colors. The tattoo artist thought it was a lovely tribute and as I told him my story his eyes filled with tears. He told me that he was glad to be in the presence of one hell of a fighter. I smiled and winced a little as the needles pushed into my skin. Now when I look down I am reminded that Aloucious is always with me and that I made it though hell. Hell because in 10 short months I survived a stroke/P.E. child loss, and had the strength to walk away from a man who would never love me. Strength that I gained when I carried my child and walked through his death alone.
May 12th will be the second anniversary of my son's death. Someone told me once: "You never get over the death of a child. You, you just learn how to live with it." That person was right. I will never be ok with Aloucious being gone. However I have learned to live with it. Maybe it's because I am getting older and a tad bit wiser that I can be at peace with his death. Indian people believe in cherishing the life and honoring the spirit that lived within. A birch tree was planted in Aloucious honor and one day Sophia will be old enough to play under its branches. She will feel the warmth of her cousin surround her and his story will seep into her heart. I just hope that this birch tree will be the only one I plant in the memory of a child. My heart can only handle one birch tree. Maybe one day I will get to sit under that birch with Aloucious' brother or sister in my arms.
{Hearts} On 22 – I Made A Promise To My Heart
February is for lovers and now thanks to the American Heart Association it is now known as National Heart Health Awareness Month. Or simply “Go Red!” Before October 22nd, 2009 it was about my family and sharing my family’s story. I wore my red dress proudly, shared Emma’s story, and talked about almost losing my father to heart disease. Today I still wear my red dress proudly, talk about Emma, my Dad, and now I am sharing my STORY. 
A story of hope. I am living proof that with the right care you can survive a stroke and come out on the other side shining. Sadly not every survivor bounces back and they struggle to find themselves again. I often think about the ones who died, most never saw it coming, and their families were left wondering.
I admit that I have survivors guilt. Sometimes I lay awake at night wondering why did I survive that day? I think about my cousin who died at the age of three she wanted to live, she wanted to grow, yet God chose her that day. I have stood at funerals and thought “God you saved me……Why couldn’t you reach in and save my friend? What makes me different? Ah moments often come to me when I am in the shower or driving in the Prius. One day it dawned on me, the ER Dr told me that day “AmandaJean if you had gotten here five minutes later than you did, you would have died.” By sheer luck I beat death.
Luck was on my side that day. I often tell people I consider myself lucky. Lucky because I had a pulmonary embolism induced stroke. People usually give me a funny look and say “Why the hell is that lucky?” Its simple really, if I never had my P.E. induced stroke I wouldn’t have found the strength to fight for me. My stroke taught me to fight for myself. In hindsight I think it was God’s way to prepare me for the worst year of my life. In October I had my stroke, in May my son Alucious died, and in June I walked away from a loveless marriage. Now those three events add up to one big pile of shit. So to me my P.E. induced stroke was the training wheels I needed to get myself through the worst 9 months of my life.
Mostly it has allowed me to be a voice and to lobby for a better day. A day where we are all living heart healthy. My dream would be to find a cure for heart disease and eliminate stroke. It’s a big dream however I am confident that we can achieve it together. Hundreds of women came together to celebrate “Go Red” at the annual lunch and learn event held in Minneapolis.
The room was filled with amazing energy. Every single woman was wearing red and we demanded a better tomorrow. Stories were shared, our blood pressure was checked, we got red lips, and we made promises to our hearts. A promise to live a heart healthy life.
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On National wear red day my Twitter feed exploded. So many amazing beautiful women tweeted "I'm going red for @NinjaInTheCity." I was literally in tears hundreds of men and women across our great state wore red in honor of me. Even their children wore red and that made my surviving heart burst with joy. I am deeply honored by their simple act of wearing red in my name. So if you wore red on February 4th in my honor, know that I thank you from the bottom of my surviving heart. You made my day so bright and are encouraging me to be a thriving survivor. I promise to not only survive, but to thrive!
A promise to carry this energy of finding a cure and preventing heart disease into the next 10 months of the year. To contact my legislators, congressman, and anyone who will listen to me to enact legislation that will better the lives of all Minnesotans. Each of you are capable of saving a life. All you need to know are three letters C. P. R. Take a few minutes and google it, watch a YouTube video, or heck take a first aid course and learn how to perform CPR. Once you’ve earned your CPR cred you can learn the meaning of F.A.S.T.
When dealing with a possible stroke you need to be: F.A.S.T.
F—FACE: Ask the person to smile. Does one side of the face droop?
A—ARMS: Ask the person to raise both arms. Does one arm drift downward?
S—SPEECH: Ask the person to repeat a simple phrase. Is their speech slurred or strange?
T—TIME: If you observe any of these signs, call 9-1-1 immediately.
When you are F.A.S.T you can save a life.
So go ahead make a promise to yourself, your family, and to the world that you will be heart healthy. Take the time to learn CPR, remember to act F.A.S.T., and listen to your heart. You only get one heart and that heart will never steer you wrong.
{False Hope} and Cracker Jacks
When I was a little girl I held out such hope and wonder for the prize that lay hidden with in my box of Cracker Jacks. Hope that inside the box I would find a decoder ring. I carefully ripped the top of the box off, dug my little hand into the caramel covered goodness, and pulled out the prize envelope. Only to find that I had received another sticker, comic book, or plastic frog. That decoder ring eluded me and I began to think that Crack Jacks lied to me. That they never put a decoder ring in their boxes of yummy goodness and it was just an advertising ploy to sell more Cracker Jacks.
The decoder ring eludes me to this day. Every now and then I buy a few boxes just to see if that decoder ring is inside. It never is and the plastic frog has been replaced with cheap stick on tattoos. Is the decoder ring a lie or is it truly a prize one can find in the bottom of their Cracker Jacks box. We will never know until we peel the top off to find out.
This morning I awoke to yet another Facebook post about a friend being pregnant. This time those words “I’m pregnant” stung and cut through my heart. Why you ask? Its simple this person led me to believe that they could never get pregnant. Because her ovaries and fallopian tubes were filled with scar tissue. I believed her and felt bad for her. An when I found myself in the same infertile boat, I leaned on her for support. Little did I know she was taking my words and twisting them into her own story, using them for her own benefit, and now she is proclaiming a miracle.
By days end her status was filled with hundreds of well wishes, prayers, and congratulations. No one stopped to question the fact that she lied. For years she has told people that it would be impossible for her to get pregnant, let alone carry that child to term. Here she was telling all of us that she is now with child, a child that is a miracle. I am happy for her and glad that she is pregnant.
However on the same coin I wish she would come forward and tell the truth. Because now she is providing hundreds of women like myself with false hope. I was to upset to go into work this morning. So I called A and told him what I had found out. He claimed bull shit right away. There I was crying in the arms of a friend and questioning where my prize was. I told A ” I want a prize god damn it. I lived through hell and what do I get nothing.” He looked at me and said “I hate it when you cry.” Followed by “AmandaJean your prize is better than a baby. Your prize is your life. You are walking, talking, living proof that people can and will survive a pulmonary embolism, stroke, and cancer. An that babes is the best prize of all.”
A is right, life is the best prize of all. He also reminded me that not everyone has a friend who offers to carry a child for her. That not everyone has a friend who will endure weeks of hormone injections to give her eggs away. I’d say I am one lucky woman. My decoder ring doesn’t lie inside a box of caramel coated popcorn, it lies within the hearts of two women, and those women are giving me the greatest prize of all. They are providing me with HOPE that one day I to will be a mom.
At the end of the day I do not need to lie to make myself better or bigger. Some people make gashes out of paper cuts, mountains out of mole hills, and I choose to make the world better by sharing the hell I went through. My five-year old self still holds out hope that inside a box of Cracker Jacks lies a decoder ring. Maybe one day my son or daughter will rip off the box top, reach inside, and come running to me saying “Mommy I found a decoder ring.”
Have Bear Will Travel 