Tag Archives: Infertility

{Infertile Me} Lost Miracle

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National Infertility Awareness Week hit differently this year. It came in quietly and then started to sting like a thousands wasps hitting my skin. TikTok was full of stories of hope and happy endings. No matter how fast I scrolled the next video would be a “I beat infertility story.” A story that I would normally cling to as evidence that my turn was coming. As evidence that God grants miracles to the weary. I’d hold their testimony like a blazing torch against the darkness. Except the darkness never broke and my miracle was not granted. God provided a way, yet he held back on the miracle.

On April 17th we were filled with so much hope and in my gut I knew our transfer took. We woke up early and drove to Mayo for our blood test. On the way home I ignored my phone. I wanted to stay in this blissful state of hope. I wanted to continue living in the land of my gut was right. One notification from the Mayo Clinic app ripped us from that land, our beta was less than 0.05, we were not pregnant. Our forth and final transfer had failed. We are the other side of infertility, the side that doesn’t get the miracle that they so desperately prayed for.

This side doesn’t get much attention as broken hearts do not create hope. If you are out of embryos and funds, you are cleared to the side to make way for the deep pockets of the hopeful. IVF is an industry just like any other, selling hope one cycle at a time. It’s a billion dollar business with little to no price regulations. Success stories sell hope and hope + success = profit. To anyone in the outside looking in I am just a mark in the failure column. Yet I am more than a mark in the failure column, I am the story of persistence, strength, and unwavering faith.

We focus so much on the positive outcomes that we forget about the grieving couples. We forgot about the couples stuck in the land of what ifs. We don’t want to discuss the couples who received subpar care or those that didn’t even get to the starting line due to BMI. IVF is not widely regulated and clinics can set their standard, because success is everything to them. Some clinics only take easy cases and turn away the complicated messes like myself. On paper I am a mess. I have complicated anatomy, endometriosis, adenomyosis, with a side of diminished ovarian reserve. I require more care than most clinics want to provide. If you don’t fit the clinics mold of quick and easy cycles you are pushed to the side to find a different clinic.

Mayo was my holy grail. A clinic that was willing to take the extra steps and loaded the deck so I’d have a better chance at success. Mayo was my 4th fertility clinic and the 1st to order an MRI. That MRI is what lead to the diagnosis of endo and adenomyosis. I had excision surgery in October to remove stage IV endo from my body and started a Lupron Depot protocol to prepare for a frozen embryo transfer. Transfer day came in February and we quickly learned that the lab somehow thawed the lower grade embryo instead of our higher grade embryo. I didn’t make a stink, I went with the flow and ok’d the transfer of the wrong embryo. I didn’t want to mess with fate and I felt that fate was a foot that day. We found out on March 4th the transfer failed and we were set for a WTF meeting on the 9th.

I met with a different doctor that day. One I hadn’t seen before. Mayo has a team approach and they supposedly discuss each case at length during lunch so everyone is familiar with all patients. This doctor wasn’t familiar with my case. I had asked for Lupron Depot, he told me it wasn’t necessary. He actually laughed at some of my questions and concerns. When I mentioned vaginal progesterone, he went on to tell me it wasn’t necessary and research doesn’t support it. When I mentioned the other doctor ok’d it he said “oh oh ok, I will write the order then.” I moved forward with the protocol because I assumed he had spoken to the other doctors that were handling my case.

On April 8th we transferred our last remaining embryo and on April 17th we found out it failed. I got a little tipsy that night and fired of an email with a list of concerns as I cried in my bathtub. I’m not proud of it, but it happens. Dr. K responded to my email that Monday and I ignored the response. I had a WTF appointment set for Tuesday and I was still debating whether or not I was going to log on to it. Early Tuesday morning I got an email from billing and that email lead me to open Dr. K’s response. Anger started to boil within me as I read the fist two paragraphs. Fuckery was a foot and I wasn’t having it, not today, not now, not ever.

The doctor I spoke to back in March told Jay and I Lupron Depot was not necessary, Dr. K said it absolutely was and recommended it for future transfers. The reason it wasn’t used this time around was because the doctor told his team that I refused the medication as I wanted to move quickly. Now I’m not an expert but “refused” and “not necessary” are two very different things. I didn’t refuse the medication, I asked about it and I asked for it. He said it wasn’t necessary so I assume he spoke to Dr. K, so I didn’t question it. I went forward on his word. All I know is if my WTF appointment had been handled by Dr. K we’d be on a different path right now. It just sucks that one doctor took it upon himself to make a decision that affected my care and compromised the outcome of my transfer.

It’s taking everything in me to get out of the land of what if’s. To get out of the land of should have, would have, and could have. I cannot go back to March 9, 2021 to advocate for myself and ask questions. As much as I want to I can’t. All I can do is move forward one very slow step at a time. I have to reimagine what this life will look like. One thing I do know is, I cannot imagine this life without children. I have so much love and patience to give to a child. My heart was made to mother. Somehow someway we will complete our family and that child will be so very loved. What’s getting me through the darkness is planning for the child I never imagined. Adventure is still out there and I know in my heart that one day we will have a pint sized sidekick by our side.

Right now I have to believe that God does not turn his back on the weary and that he heard my prayers. He heard every word, yet there was a miscommunication and my miracle got stuck somewhere in the space time continuum. Or just maybe my miracle went to someone who needed it more than I did.

{Infertile Me} IVF Is Not For Certian 

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There is a misconception that IVF is a given. That  everyone who goes through with IVF gives birth to a baby. Truth is, it’s not. There are so many moving parts that need to connect just right in order for that science baby to thrive. 

First step, Stims. My body could respond awesomely to stims and grow dozens of eggs. Or it could peater out and we end up with a few or none at all. It’s literally a crap shoot and a shoot we only have one chance at winning. If Stims are successful we get to move to step two. 

Second step, egg retrieval. I could go through this process and find out that my follicles were empty resulting in zero eggs. Or we could get let’s say 10 eggs and out of those 5 will fertilize and if we are lucky we will end up with one viable embryo that makes it to blast. Or out of the 10 hypothetical eggs zero fertilaize and were right back where we started. If we’re lucky we get granted a pass for step 3. 

Third step, frozen embryo transfer. The day we’ve been working toward and praying for. The embryo thaws nicely and is ready to return back to me. We wait, we will have to wait two long weeks to find out if it took. It’s not a guarantee and there are so many factors outside of our control and all we can do is hope for the best. 

Before I can even think about step one through three, I have to sit down with a perinatologist and discuss if it’s even possible for me to safely go through Stims. Stims = crazy amount of hormones that could possible cause another blood clot. Blood clots and AJ do not mix well. Lovenox, will be my new best friend as it will hopefully keep the clots away. I’ve been pegnant twice before so I have no doubt that she will let me move forward. After all it is my body and now the question is “is it safe for me to possibly carry twins?” 

Since we are only doing this once and we are opting out of genetic testing it’s crazy expensive and culturally it doesn’t sit well with me our best bet is to implant two. Two little embryos that could. Twin pregnancies carry lots of risks, risks that my body might not be able to handle for she is battered and bruised. In my heart I feel a little selfish asking God for two beautiful embryos, but two is our best chance in conceiving one. If we get twins we will be overwhelmed , yet very happy. 

For now I am in limbo. I meet with the perinatologist on Thursday and once I get the all clear I call the clinic and we start stiming for an August egg retrieval. The plan is to give my body a month to come off of the Stims and by October we should be ready to implant our little embryos, the baby we’ve been waiting for. 

IVF takes a lot out of you. It’s a lot to wrap your head around and to take in. Like who knew there were so many treatment protocols and that you can pick which gender embryos are implanted. Like holy buckets I can pick if I want girls or boys or one of each. Part of me just wants to tell them “put them in and I’ll find out later” and the other part wants to know. I have a sleeping son and one unknown baby, I think those babies would want a sister. My heart wants a girl, Jay wants a girl, we will most likely transfer a girl embryo. With our luck we will end up with all boys, and we will love them just the same. 

With a little luck and a whole lot of faith we will get a lot of eggs that will turn into viable little embryos, that will become our take home baby(s).  

{Infertile Me} Infertile Mertyle with the old EGGS 

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I am a firm believer in second opinions, especially when it comes to the medical profession. In January I settled in to my fertility clinic, I liked the doctor and her staff, they seemed confident that IUI would work. We did 3 IUI cycles and each one resulted in a big fat negative. Heart breaking, that is what the last 6 months have been. In March I learned that my clinic was not covered under my insurance  plan and that I needed to go to CCRM Minneapolis. I kicked my feet, tried to appeal to the insurance company and eventually gave in and scheduled a consult with CCRM. 

Night and day difference. Dr. Hayes didn’t rely on some other doctor’s data and findings. She ordered a slew of tests for Jay and I. Tests that would tell us our over all reproductive health so she could get a better idea of what we are working with. Since the old clinic said everything on my end was normal, I didn’t give it a second though and was confident CCRM’s findings would be the same. I should know by now nothing in my life is easy…….. AJ with the old eggs, yup that’s me AJ with the old ass eggs. 

I spent months doing IUIs that would never have worked. I’ve got old eggs and Jay’s got dumb swimmers. In that moment I felt a little violated by the other clinic and instantly wondered did they know about this and just carried on for the money? I’m sure they knew my resting egg count was low and that only 2% of our swimmers were champs, but they didn’t care, because we paid the bills and so they carried on with treatment. I can’t think about this, if I do it will just cause me more stress than I need right now. I want to believe that they had good intentions but as I’ve learned the IVF industry has a douche canoe around every turn. 

So what happens now? Well our only option of achieving a human of our own is IVF. Each month that ticks by my egg reserve drops, so we need to move quickly. Quick like little bunnies! We already know that we are not going to retrieve a huge number of eggs. At this point we will take what we can get and ICIS will be used to make sure only one swimmer fertilizes the egg. I just pray the our embryos will make it to blast and that will we have one or two to transfer. In my heart of hearts I know my body, she is weary and she can only handle one cycle, we’ve got one shot at this and there will be no do overs. One shot to make CoraLeigh or Oliver a reality. 

Summer. I want a summer. Sophia and Jack need their auntie this summer so IVF is on the back burner until August. In July I am sitting down with a perinatal physician to go over lovenox protocol, when to start it and when to stop it and what dose it should be. We will also be discussing if it is safe for me to carry more than one baby. Once the protocol is determined we will begin the really fun IVF meds and start growing eggs that with a little luck will become embryos.

My rainbow baby is just one embryo away and I cannot wait to have a baby that we can keep. 

{Baby E} My baby, you will always be 

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Two years ago today it was Mother’s Day and I found myself sitting on the bathroom floor starring at a plus sign in disbelief. For years I was told that getting pregnant would be a small feat and one I’d most likely never achieve. Yet there I was sitting on the brown tile floor starring down a test with a plus sign. In that moment the impossible became possible and I was going to be a mom again. 

Having lost a child before I was skeptical, nervous, and scared that something would go wrong again. I was excited, but not to excited. I didn’t want to get attached to this little one until I saw the flicker on the 6 week ultrasound. A flicker is all I needed to see to reassure that this one was real and that I was going to be a mom again. I counted down the days until our perinatal appointment. Jay was excited and nervous, he had started to look at baby gear online and we had picked out names. We were going to have a baby. 

All it took was one swoosh of an ultrasound wand to dash our hopes and dreams. An empty sac showed on the screen. I was 8 weeks and some odd days, we should have seen a yolk, a fetal pole, and that elusive flicker of a heart beat. Instead we saw a cold empty sac. We were quickly sent down the hall to meet with the doctor, she kept on saying “let’s give it another week.” I knew deep down that this baby wasn’t meant to be ours and I didn’t want to entertain another ultrasound. 

My gut was right. A few weeks later we had another ultrasound and just like before the sac was empty. A surgical consult was scheduled and a plan was made to ensure that the horror show of the 2010 D&C did not occur again. A girl’s uterus and cervix can only be punctured so many times. The procedure was completed on 07/07/2015 and the pathology reports revealed that the little empty sac was more than a sac. I had a partial molar pregnancy, our baby had to many chromosomes, two sperm fertilized one egg, and Baby E, just wasn’t meant to be ours. 

It’s been two years since I saw that plus sign, my rainbow it eludes me. I have tracked my cycles like a boss, peed on more sticks than I can count and have seen zero plus signs. In October I put my big girl pants on and sat down with a reproductive endocrinologist, secondary infertility is the label I received. She walked me through our options and explained which ones were safe for me. Its been a journey, we’ve had 3 failed medicated IUIs and now our only hope is mini-IVF. 

There are days where I want to throw in the towel and call it. But this tiny voice reminds me “you are already a mother to angels, you can do this one more time.” Fertility treatments are exhausting, you have ultrasounds, meds to take, IUIs to schedule, injections and so on. It’s literally a second job. For now we are taking a break and on the 22nd we have a consult with a new clinic and I am praying that they will 1. Approve me for mini-IVF and that 2. This will be my time to catch that rainbow. I have faith that my turn is coming, it’s just taking awhile for that darn bottle to point to me. One day, we will get our take home baby. 

In the mean time I rest easy knowing that my babies are together in heaven just like they would be on earth. Lucia went first and Baby E followed 5 years later. They will always be apart of me, they are the reason I walk this earth with a broken heart and they are my strength for a better day,  a day where I too will get a take home baby. 

{Infertility} The Ugly Truth about Chasing Rainbows

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When  a woman has a misscarriage or a still birth people often say “oh you can try again. You will have another one, don’t worry.” They do not realize that those words or even the thought of trying again cuts through her soul. She wanted THAT baby. She did not plan for a future baby, she had planned on brining THAT baby home. 

My journey to motherhood has had more potholes than smooth pavement. I watch friends fall pregnant on a whim. I for some reason do not have access to the baby water or whatever magical dust is flying around. Five years. Five years stood between Lucia and Baby E. Both my children were not planned, yet they were desperately wanted and now the desire to mother someone is strong.

Before Baby E I had made peace with the fact that I would never carry a child. Adoption, was going to be my best option. Doctors told me that my uterus was to broken to carry a child and mostly it was a risky endeavor. Girls with a history of blood clots and stroke, well it’s not recommended that you become pregnant. I felt cheated and robbed, one decision affected my whole fertile life. All my friends who went on the NuvaRing got babies, I got a blood clot. This was the hand I was delt and with time I learned to live with it. 

That is until a blue plus sign showed up. I was scared, no not scared, I was fucking terrified. I had been pregnant before and it didn’t turn out so well. I went home with empty arms. I was cautiously  getting attached to the group of cells I was carrying, the only thing that stood between me and my child was a viability scan. Every high risk pregnant woman dreads this scan. The scan is completed at 6/7weeks gestation, if there isn’t a heart beat, game over. Jay was excited for the ultrasound, as soon as an empty sac flashed on the screen, I knew in my heart it was over. God didn’t give me a second chance to be a mom. He brought me so close to motherhood, yet pushed me one step back. This rainbow was not meant to be ours. The chase was back on.

The world of baby making is not pretty. It’s pretty much a second job. There are charts to be charted, temps to be checked, sex dates on calendars, ovulation test to pee on and then there is the two week wait. The wait to see if all of your hard work (literally) and charting paid off. Month after month went by without a blue plus sign. Something in my gut said “lady you are a little off.” 

A year went by with no luck. Down the fertility rabbit hole we went, I’ve had more blood test and scans (the ultrasound wand and I are on a first name basis) than I can count. My body and I are not on good terms right now. My egg reserve is good, yet something is a miss. Luteal phase failure, progesterone and I are not on speaking terms. She is suppose to be my girl and rise to the baby maintaining occasion. Bitch is sitting in her seat exchanging gossip and not paying attention to her job at hand. Getting her to step up is tricky, yet she is my only hope. I need her otherwise I’ll never catch our rainbow.

Talking about infertility makes me feel like I failed as a woman. I’ve got one job and that is to birth babies. I think in away women judge each other. Having fertility help is like the new c-section vs vaginal birth debate.  Yes it’s true only a small percentage of the population needs fertility assistance, yet it doesn’t make me any different than fertile myrtle from down the lane. Maybe in away it makes me more of a woman because I have to endure a shit ton of testing and scans and needles to get my prize? Probably not, but I just want to throw that out there. 

The getting pregnant process doesn’t scare me. The pregnant part is what scares me. Carrying a child scares me. Not knowing what the next scan will show is what scares me. My therapist assures me that my fears are healthy and normal. That as time goes on they will ease. But for now in this moment they are very real and it’s scary. I desperately want to be a mom, yet 9 months of pregnancy terrifies me. Jay does his best to ease my fears and calms me down. He knows what I’ve gone through, it’s a lot for one soul to carry. Jay tells me that  I am strong and that I am capable of carrying our child, we just need to catch our damn rainbow and never let go, well when they are 18 will let go. 

There is a five year gap between Lucia and Baby E. Which is not normal, it’s not normal to have a five year gap or to loose two babies in a row. Which the term loose is still strange to me, I know where they are and they are not lost. The fore mentioned is the ugly truth of fertility. Some ladies have what it takes and then there are those of us who desperately want to be fertile. 

When someone asks me “do you have children?” I should be able to say “yes, but they died,” without fear of being judged or the awkward look of pity. Just like infertile women, women of dead babies get swept under the rug. It’s like we are societies dirty little secret, like we live in a fairytale land where every woman is fertile and every baby lives. 

Truth: that land does not exist and life, it’s ugly and hard. I learned this the hard way. Yet I like many women still hold onto a glimmer of hope that my next pregnancy will be successful and that it will result in a live birth. While you are doing summer things, I will be getting poked, prodded and scanned to make sure my lady bits are in working order, because this, this is going to be the year we catch our rainbow!