{Life Lessons} Photo of Happiness

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Out of all the photos we took in Nebraska Jay loved one the most. To me it was unflattering, I was in the process of deleting it from my phone when Jay said “no that is my favorite photo, it’s so genuine.” You can imagine the look I gave him, I immediately pointed out my double chin and how this photo made my look heavy. He told me I was beautiful (he’s a smart man) and that he loved this photo because it shows pure happiness.

I let this photo sit on my phone. From time to time I’d go to it and just look at it. After awhile I stopped focusing on my chubby chin (thank you lymph node and saliva gland removal) and noticed how happy I was in this moment. Sure I was suffering from terrible period cramps (a reminder that I was no longer pregnant), but this photo doesn’t show that, it shows a woman living in the moment, smiling at who knows what. Oh smiling because she was about to burst into a full laugh because Jay was playing photographer.

These are the moments we live for. Moments of pure joy amongst the mundane. These moments chase away the darkness and bring in the light. Our smiles no matter how chubby the chin chases away the darkness and brings light into our hearts. This photo doesn’t show a woman with a broken heart struggling to bring home a child of her own. This photo doesn’t show a woman who has three babies in heaven, it is proof that Love and Joy always prevail. That I have a choice, a choice to grieve or grieve while living the best life I possibly can.

I will never get over the death of my babies, those little ones will always be a part of me. Just as I am a part of them. I live this life for Lucia, Baby E, and Emmet. My boys are the reason behind my strength, my faith, my joy, and my eternal happiness. I chose happy because I know that is what my sons want for me, a lifetime of happiness.

{Infertile Me} Emmet James

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As the blizzard poured down around me I looked out the window and remembered that the doctor said Snow Pea’s results would be in on Friday. Friday went without word, so I logged in to my online chart, “1 new message” it said. I held my breath, my heart raced, I knew what the message was. It was the answer, the answer that Jay and I had been waiting for. It took a while for the words to sink in, “normal (46 chromosomes) XY.”

In the moment I couldn’t remember if XY was a boy or girl, Dr. Google told me XY = boy. Jay and I had a perfectly normal boy. Snow Pea was a boy. There is no how behind the why, and the why has yet to be answered. It’s a blessing and a curse. My baby, our baby was a healthy little boy whose heart just stopped. The placenta was perfect and Jay & I are genetically normal, it doesn’t add up, but in the end we still had to give a healthy baby back to God.

Emmet James was called home before his feet even touched this earth. Emmet James was born sleeping on March 5, 2018. This little boy was loved beyond measure, deeply wanted, and is desperately missed. Emmet was courageous, he was the little beta that could, he proved that low betas can grow into healthy heart beats. I carried his little heart for 11 weeks 1 day. He was ours and we were his. Emmet James, my baby you will always be.

Emmet James is my second and Jay’s first son. A son that we had to give back before our hearts were ready. I have to believe that Emmet found his siblings in heaven. That Lucia was waiting for him with Baby E at his side, welcoming Emmet to the other side of the rainbow. I am a little jealous because Lucia and Baby E got to meet Emmet before we did.

Emmet James was cheated out of a lifetime. He will never get to go finishing with his Papa and he will never get to play tic tac toe with his Nana. Emmet will never get to take a plane to California to visit his Nana and Papa, Jay’s parents they got cheated too. I will never get to teach him how to ride a bike, tie his shoes, or take him on a road trip. Jay will never get to teach Emmet about World of Warcraft, computers, and Back to the Future. Yes, Emmet’s name comes from Back to the Future, Doctor Emmet Brown. Emmet deserved a life time, to feel the grass on his feet, to laugh, and to love beyond measure. His life was cut far to short and we sent him off with more love than one soul could ever handle. Our baby, he will always be. Emmet James you dear, will always be ours.

{Infertile Me} Take a seat, let’s get real

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I know what you are wondering “did snow pea’s results come back?” Umm nope, the wait still continues. Right now the lab is taking 3 to 6 weeks to complete the testing and provide the results. Trust me I ask the doctor at least once a week if he’s heard anything and it’s been a big fat nope. So we wait.

I am really good at waiting and waiting some more. During this wait, I’ve decided to leave no stone unturned and to go into our final transfer with as much knowledge as humanly possible. I will be meeting with a hematologist in early May to discuss my old friend Lovenox. I personally don’t think I need it, but people with medical degrees feel that I do. I am in an odd spot, I don’t fit in a box, and the doctor just shoved me in one with a Lovenox prescription. The dose is a major question and issue. Just like with Lucia, snow pea’s heart stopped a week after I increased the dose. The manufacture says Lovenox is safe for pregnant women and that it doesn’t cross the placenta. But let’s be real, anything a woman consumes can possibly cross that magical thing called a placenta. I also know one shouldn’t leak like a sieve after injecting themselves or have the injection sites randomly bleed through out the day. White shirts and I were no longer on speaking terms, hello darkness my old friend. I don’t want to be shoved in a box, I want a protocol that is tailored to me and my weird ass body. Why? Because I have no clotting factors, my blood clot was a total fluke, I drew the short straw and my life hasn’t been the same.

IVF is much the same as Lovenox protocols. It’s a one size fits all approach and if you don’t fit, they will make you fit. Very few reproductive endocrinologists are willing to reinvent the wheel. They prescribe the same protocols over and over again. I have no complaints here, we got 3 embryos from our protocol and we did get pregnant. It’s just Snow Pea’s heart stopped without notice or known reason. It just stopped and I have yet to carry a baby to term. At the moment we are tossing around first trimester bed rest, reduced Lovenox dose, and an antihistamine protocol to keep my inflammation down. Will it work? Who knows. I’ve got one last shot at a bio child and I am not willing to blow it on junk science and voodoo.

Speaking of fit, if I fit, I sits. Dexter the cat taught me that and right now this mama doesn’t fit in any boxes…. This mama has fallen off of the healthy wagon and needs to chase that fucking thing down and jump back on. A few years ago I had success on weight watchers. I had lost about 20 pounds before I found out I was pregnant with baby E and then shit just went down hill from there. Losing babies is hard and cupcakes and carbs were my friends. We got along a little to well and mama’s waistline expanded a little to much. This morning I put in my card info and signed my ass back up. I am officially on the wagon and I am not getting off until I am pregnant again.

I am starting this journey at 241 pounds (yup I just wrote that number out loud). This is the biggest I have ever been. I’m not happy, I feel sluggish and I wish I could blame my now juicy ass (juicy as in plump, not, get your head out of the gutter) on the IVF meds. But I can’t, because this mama loves cupcakes, cookies, fancy coffee, carbs, yes give me all the carbs and I despise vegetables and anything that screams “I’m HEALTHY!” This has got to change because I want my body back. I am not aiming to be thin, I just want to be me, a healthy me. If I can get to 200 by the time transfer day arrives, awesome, if I’m still pushing 230 to 220 that’s cool too, because at least I know I’m working darn hard to get there.

{Infertile Me} Genetically Normal Parents

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As I walked through the skyway my phone rang. It was a number I have seen hundred of time and I instantly answered with worried hope. It was Park Nicollet, the genetic counselor was calling me to go over my test results. She informed me in a cheery voice that I was genetically normal, I have no deletions or translocations, my chromosomes are perfect. She went on to say that Jay was perfectly normal too and that our risk for an abnormal embryo is .00004%. Which means Jay and I are capable of creating normal embryos and I should be carrying a baby to term. Which is maddening because our baby died. We put two embryos in and only got one very wanted baby.

Relief is not what I feel. I am still holding my breath snow pea’s tests are still in process and right now her story is the only story that matters. I just know she’s gone and we do not have a why or a how to put behind it. Then again I’ve been tortured for eight years knowing that there was no reason for her big brother’s leaving. Lucia was genetically normal, his little heart just stopped and there was no reason for it, it just stopped. Baby E was an easier pill to swallow, poor baby had 69 chromosomes, that baby, our baby had a reason for leaving because one cannot live with 3 sets of chromosomes.

Three. Embryo #3 is safety tucked away in a cryo tank waiting for the day that their mother becomes strong enough to transfer it home. Today my mind isn’t there, I cannot fathom going through another transfer. Tomorrow I will change my mind and cling to the hope of what could be. Flip flopping is what I have been doing. The genetic counselor said that there is a high chance that Embryo #3 will most likely result in a normal pregnancy. It will be easier to make a decision of what to do with #3 when we get Snow Pea’s results. In a way I pray that something was wrong so that I can have a why and a how. It’s maddening, it is a blessing and a curse when they tell you “your child is normal and well we don’t know why he died.”

After Lucia died I honored him by having four small paw prints tattooed on my right foot. I knew in my heart that Snow Pea deserved to be a part of her mama to. So I searched the web until I found the perfect imagine of Snow Pea blossoms. Snow Pea is forever etched in my soul and on my skin, she will always be with us. When I look down it brings a smile to my heart, knowing that her memory is with me where ever I go. My baby she will always be.

{Infertile Me} I will always choose you

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Right now this loss doesn’t make sense. Going into this I knew I could walk away with empty arms. I pushed that risk down to the bottom and filled my heart with hope. Jay and I had won the battle, with a positive test in hand we beat infertility. My prayers had been answered and God spared us a miracle that cannot be replaced. Everything I went through no longer mattered when I saw the heart flicker. Week by week I got to see our beautiful baby grow on the ultrasound screen. Little ears, a tiny nose, and hands, were all there clear as day. The baby’s heart was strong and everything looked great. I was graduated from the fertility clinic to our Perinatal And OB doctors. We were having a baby and not just any baby, but a super fancy science baby.

At 10 weeks 3 days a quick peak ultrasound at the perinatal clinic told me that my baby was no longer alive. The baby’s heart went from 182 beats per minute to utter silence. This is the part of pregnancy that I hate. We have no idea what is going on inside our bodies. We have no idea of knowing whether or not our babies are thriving or gone. I woke up that morning happily pregnant, talking to my baby, and planning the nursery furniture, only to have the rug ripped out from under me. And I am so fucking tired of having that rug ripped out from under me.

Part of me was cautious, yet once I saw the flicker I was all in. This was our baby, our turn, our rainbow and I was filled with joy. I thought since I had paid my dues by giving my first born and 2nd baby back to God, he would for sure let us keep this one. Because come on God isn’t cruel. Right now I can tell you I am angry and hurt. Three pieces of my heart rest in heaven and that isn’t fair. This life is not fair. I will never understand why some babies get to live while others are called home.

If my babies had a choice, they would choose life and I would choose them over and over again. The pain of loosing a baby never goes away, you just learn how to live with it. My third loss isn’t easy, it hurts and it’s not fair. Yet it is our loss, our journey to walk and our cross to bare. Jay and I are working through it and together we are mourning our snow pea’s leaving. Snow Pea did not have a choice in this, if she did I am confident she would have chose us, just as we chose her.

{Infertile Me} To Beautiful for Earth

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A week from today I was going to share our pregnancy news with everyone. I had plans of taking a photo of a onesie that said “my first baby sitter was an embryologist” surrounded by all of the needles used during IVF. This would have been a striking photo to prove to the world that against all odds, we persisted. That photo has yet to be taken, it’s just an idea that will never come to be.

At 10 weeks 3 days I learned that our baby no longer had a heart beat. Those words just like two times before cut me like a knife. This loss is much harder than my last two. We lovingly called this baby “snow pea.” Snow pea was a fighter our first beta was a low 9.4, then it went to 17.6, then 96, and finally 369. At 6 weeks Snow pea had a heart rate of 104 and was proof that miracles do happen. Snow pea fought so very hard to stay with us and we are grateful for the 10 weeks and 3 days that we had with our baby. That was 10 weeks and 3 days of us enjoying this pregnancy and talking to our little Snow Pea. Snow Pea was loved deeply and desperately wanted. We could not wait for September to arrive, as we wanted to meet Snow Pea and take our baby home.

We will not be brining Snow Pea home in September, instead we will be saying Goodbye. I prayed so very hard that this was the one who was meant for us to keep. It’s cruel, I went through hundreds of shots, dozens of scans, and a dilation surgery to end up with empty arms and a shattered heart. My heart she is broken. Jay’s heart is broken too. Our world is turned upside down as we are no longer planning for this little ones arrival, instead we are thinking about next steps as I cry into his chest repeating over and over “this isn’t fair!”

It’s not fair. I am angry, I am sad, and I am broken. I knew the risks going into this, we were so close to being out of the first trimester. I was breathing a little easier and sharing with my closest friends that Snow Pea was on board. Now I have to try and remember who I told so that I can break the news that Snow Pea was to beautiful for earth.

Right now we have no answers, those will trickle in during the weeks to come. Since this is my 3rd loss we are going to have genetic testing done to look for translocations and any other chromosomal abnormalities. Snow Pea will go through testing as well and we will get to find out if Snow Pea was a girl or a boy. Jay and I are leaning towards girl. If our hunch is right, she will be forever known as CoraLeigh Rae or if we are wrong Snow Pea will be named Emmet James.

I have to believe that Snow Pea is with her brothers in Heaven. That somehow some way Lucia was their waiting for her with Baby E at his side. That Snow Pea is whole and that she is no longer in pain. She was a fighter and whatever was wrong with her was to strong for her little body to fight. This morning we talked to her and told her it’s ok that she had to leave, that we understood and that we loved her beyond measure. That we will miss her and we will always always love her until our last breath.

{Infertile Me} “IVF Got This”

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A couple days ago I stood in front of the fridge looking for available magnets to pin up Christmas cards. I knew on the side four magnets held our “operation embryo” calendar. September is when we started this journey. It seems like a life time ago where we spent part of our mornings carefully mixing injections and trying to find the least bruised spot on my belly. Five times. For a week I was getting five different shots a day. Three in the morning and two at night. Every prick was in hope that my follicles were growing strong eggs that would turn into our embryos.

IVF is not for everyone. It’s overwhelming and there are to many variables to count. It’s stressful. It’s painful. It’s emotional and though the bruises will fade your body will never really be the same. Fear sits with hope as you struggle to come to terms with all available outcomes. I was afraid that I wouldn’t get any or many eggs. They don’t really tell you how many eggs you have while you are stiming. They just cheerfully say “everything looks good.” I told myself “if we get five eggs I will be happy.” Anything more than five would just be a blessing.

Fifteen follicles lead to eight mature eggs. Eight. We got eight, eight incredible and non-edible eggs. Seven of the eight fertilized and three of the seven made it to blast. We have three embryos waiting for us and my heart is full. The big three leads to a new set of fears. What if they don’t take? How many should we put back? Oh god what if we put two in and get four? These questions seep in at night and I am reminded to follow my heart. Because of my age and the fact I am only doing this once we are transferring two back to me.

Two. December wasn’t meant to be our month. My anatomy proved to challenging for a proper transfer so our embryos were lulled back into a frozen state. It should be noted that the doctor almost put the big two in the wrong place. Thank God the embryologist checked the catheter and saw that we had hitch hikers. Otherwise the big two wouldn’t have had a proper chance at taking hold and growing into our baby(ies). That part scared me and the clinic has reassured me over and over again the big two are frozen with their sibling, embryo #3. No one was lost, my embryos are safe and sound.

January. January is a month of what could have been. Baby E was due in January, a winter baby you were meant to be. But Baby E was never meant to be ours and we are left with a lifetime of wonder. As the snow softly falls and temperatures drop I will be prepping my body for the big two. The big two who will lead to our take home baby(ies).

If you would have asked me three years ago “AJ would you do IVF?” I would have most likely said no. I didn’t think I was strong enough to go through it nor did I think I truly deserved a real chance at motherhood. Some days survivor’s guilt gets the better of me. Both of my children were unplanned, yet they were very much wanted. Our road to parenthood compared to others is very short. Some women try for years and spend thousands of dollars trying for a baby with no luck. Those women are the true warriors for they never give up instead they search for the next thing that will increase their chances at motherhood.

IVF, its a game really. IVF is about stacking the deck and letting God take care of the rest. Our deck is stacked. I grow a beautiful lining, my hormone levels are on point and our embryos are both 5ABs, which translate to “science did everything it could and now it’s up to fate.” Fate and I have a love hate relationship. Without her I am nothing and with her I am everything. She has left me broken, yet she healed me within the same breath. I pray with all of my heart that Fate evens the score, that some how some way the universe will let us be parents to a take home baby(ies).

IVF got this! Faith, Science, and love will get me through the next phase. Our turn, our rainbow, our take home baby(ies) is just one embryo transfer away and Fate will lead us every step of the way.

{Lucia & Baby E} Christmas #7 without you

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This time of year makes me both happy and sad. Happy because I get to spend time with family and friends. Plus hello I love Christmas lights and all things to do with Christmas including Movies and cookies. Now that I have a niece and nephew Christmas is even more fun because I get to experience it through the eyes of children.

Jack is two and he is adorable. He tells me “Auntie I miss you so much” and holds on tight and then asks for another Christmas cookie. On Thanks giving day I took him shopping for Christmas gifts. I watched him as we carefully walked through Walmart looking for the perfect gift for mama and nana. He thought both of them would like Thomas the train because well he is obsessed with Thomas. We settled on something that wasn’t train related and he very happily dropped them into the cart. In that moment he was having fun and didn’t realize that I was teaching him the lesson of giving. It’s better to give than receive.

Sophia is five. She lets me know she is actually 5 and 3/4 as her birthday is in January. She artfully and patiently decorated Christmas cookies while we tell her not to lick them or her hands. Because no one wants to eat grubby cookies. She twirls in the kitchen while reading off her Christmas list. Which by the way is very short. Making sure that Auntie knows what emojis are. These are moments we’ll never get back and I will cherish them for a a million years plus one day.

In these moments my heart yearns for Lucia and Baby E. Lucia would be 7 and Baby E would be almost two this year. Both of them would have eyes filled with wonder and hearts filled with love as they anticipated Santa’s arrival. I can’t help but wonder what Lucia would have on his Christmas list. Would it be filled out with requests for Ninja turtles, dinosaurs, trucks or trains? Or maybe he’d be like his dad and ask for Star Wars, video games, and Superman. Only God knows what’s on Lucia’s list and his earthly mother will always wonder what he would like. Baby E would be easy, I’d just load him or her up with fisher price little people toys, a trike or even a ride on dinosaur. Baby E’s likes and dislikes are only known to God and that is alright with me.

Lucia has been gone for seven years, will 7.5 years to be exact. Seven years does not heal the heart, it just grows to make more room for love. Baby E was never meant to be ours, our little one has been gone for 2.5 years and he/she is proof that a woman can walk this earth with a twice broken heart. I miss my children every single day and especially at Christmas. Yet I am comforted by the fact that they get to spend each Christmas with each other and our Heavenly Father. I have to believe that Christmas in heaven is incredible for children.

Because God needed my children more than I did I will never get to decorate the tree with them. A stocking with their name on it will never grace our mantel. I will never get to load them in the car to go look at Christmas lights on the way to visit the mall Santa. But mostly I will never get to wrap a present for Lucia or Baby E. My children have given me a gift that cannot be wrapped. They taught me the meaning of love, strength and faith. It takes a lot to walk this earth with two piece of your heart in heaven. I am still a mother and my babies they will always be.

Sophia and Jack are too little to know that Auntie has babies in heaven. They just know that I am Auntie and that Auntie loves them without question. Christmas is magical. I like to believe that on Christmas Eve the veil is lifted and our babies and loved ones get to spend it with us. So leave an empty seat at your table, a special ornament on the tree and mostly talk about your loved ones as they will always be apart of your lives. Your loved ones they will always be.

To my fellow STILL and pregnancy loss mamas: “I see you. You are loved. You are strong and you my dear are fucking brave. You’ve got this. Your baby(s) matter and as long as you say their name they will never truly be gone.”

{Infertile Me} Almost Home

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I was this (AJ shows you her fingers almost touching) close to motherhood on Monday. Like so close I could imagine meeting my take home baby in 40 weeks close. Monday wasn’t meant to be our day. Don’t worry our little embryos are nestled back into the freezer and we will see them again soon. Just getting them back to me was harder than the Doctor thought.

You see when AJ was made a joke was played on her, she has a very complicated anatomy. I will spare you the details. Coupled with a botched D&C that left her cervix looking like a war zone filled with scar tissue, false passages, and hope. Those two things make it impossible, like they tried for an hour to get through said cervix impossible. Again I am going to spare you the details, just know it was pretty darn painful and stressful.

So where do we go from here? To surgery of course. Surgery to hopefully open said pain in the ass cervix and for the doctor to literally draw themselves a map so they know how to get in. Is it a guarantee? Nope, nope it’s not. But right no it’s all we’ve got. If it cannot be surgically opened and mapped our last resort is a gestational carrier, in which we don’t have Kardashian money so that is out of the question. The doctors are hopeful that they will be able to get into the cervix.

Now I know you are wondering “WTF AJ why didn’t they figure this shit out before hand?!” Like I get you and yes that was my question too. Truth is they ignored me because a lot of women say “I have complicated anatomy” and “10 times out of 10 we get in. You are actually my first.” And mistakes were made too. Communications fell on deaf ears and the nurses didn’t follow through nor did the doctor follow up. I’m sure if they could go back they would do it differently. But we can’t do that, we can only go forward with what we know now.

A plan is in place and they are going to do everything in their power to ensure that our embryos are transferred back to me. Am I angry? Yes of course I am, but I cannot let the anger take over. Am I stressed? Yes, yes I am, but once we get going on the plan it will fade. Has my PTSD bubbled to the surface? Why yes, yes it has and thankfully with the help of my therapist we will get through it. Dealing with medical trauma is no joke. I am going forward with an open mind and hope in my heart. Our turn may be delayed but it is still on the horizon and for that I am grateful.

{Infertile Me} Operation Transfer Take Home Baby

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The moment I have been prepping for is nearly here. All of the injections, blood draws, scans, pills and whatever else I have been through have lead me to this moment. To this very moment motherhood is only one embryo transfer away. It’s strange to think about. I walk in not pregnant and will walk out a few hours later pregnant until proven otherwise.

The pregnancy part scares me. The unknowns terrify me. I wish we could install a window in our bellies so we could see what they are up to. Ultrasounds give us a peek, but sometimes that peek is to much to bare. I’ve heard the words “there is no heart beat and followed five years later by “there is no yolk or fetal pole.” The ultrasound brought those words into my reality, they showed me that my children were no longer living. In those moments of grief I found hope. My heart she may be broken, but she is hopeful for a baby in her arms.

That hope and unwavering spirit brought me to IVF. IVF is not for the faint of heart, it is a battle from the start and you must keep going until you have nothing left to give. My stomach though bloated (leggings are my best friend right now), is a war zone full of bruised injection sites and estrogen patches. There is no guarantee that I will win this battle, that I will get to bring a baby home, but deep down I know that I gave it my all.

Sometime this month two beautiful little embryos will be transferred back to me with Jay at my side. The decision to do two wasn’t easy but based on my age, it is our best course. I pray with all of my heart that this will work, that some how some way God will settle the score and let me keep one or two of my own. He already has two pieces of me in heaven and my heart will always be broken, yet she has room for more. For more babies, more love, more hope, and mostly more strength.

Strength and faith are the only two things that have kept me going on this journey. Many times I wanted to fold, yet I dug deep and carried on. Losing two babies is more than one soul can handle, my heart goes out to the ladies who have more losses than I do. Those ladies, are the hero’s of this world as they are walking around with a tattered heart. My heart she may be broken, but she is ready. My turn has come, our rainbow is near, and soon I too will get to take a baby home.