{Nuva Ring} She Had to Break, Before She Could Shine

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One email told me that my settlement check had been cut and mailed out. I knew that the post office closed at 5PM, so today wasn’t going to be my ending. I got home at 5:10, breezed past my Birchbox and opened the mail box to find the all important “we missed you card.” The back of the card said the post office was open til 5:30 PM, it was 5:10, I knew I could make it and I did with 8 minutes to spare. Damn it door is locked, I show the man looking out the window my card. He opens it a crack to tell me they are closed, I explained “sir the back of the card says 5:30.” He points to the hours on the door, the door says Close 5:00 PM and 3:30 PM on Saturdays, again I pointed to what the card said. He explained he was the supervisor and they were closed. I had come so close, yet so far from being done.

I could feel the tears fighting through, I looked at the man and said “Sir, I have been waiting six years for this letter, I know waiting one more day won’t hurt, but you see Sir that letter is my closure, its a settlement check, a check I’ve been waiting six years to see. He started to notice the tear rolling down my cheek, he said “here let me look at that, I don’t normally make exceptions, just wait here ok. He closed the door and disappeared inside, he emerged a few minutes later and told me to come in. In his hand was the letter with a logo I have seen dozens of times, but today it meant it was all over, I just needed to sign and closure would finally be mine. I tearfully thanked him for making the exception, explaining he has no idea what his kindness meant to me.

The tears began to fall, I sat in the drivers seat holding the envelope in my hands, quickly realizing that my tears were staining the envelope, I figured I should probably open it. I did, never in a million years did I think I would see this day. Never in a million years did I think I would see a check. It was just this distant far away untouchable thing, that was never meant to be mine. Yet, there it was in my hands, my name was spelled correctly, its mine and mine alone. I was never in this for the money, I am humbled by what I received. The check doesn’t take away what happened or undo the past six years or bring back my son, but in some way it validates that what happened to me was wrong. Merck never had to admit wrong doing, they will not be held accountable for the deaths or thousands of injuries that the Nuva Ring caused, they simply just had to payout and walk away to operate another day.

I never signed up to get rich, I wanted to stand up for myself and to prevent this from happening to anyone else. Having your life change in seconds scars you, it changes you in ways words cannot begin to describe. If I would have known that this little plastic ring would bring me to the brink of death, I would have left it on the prescription pad and asked my doctor for something else. We as humans cannot see into the future nor can we relive the past, we are in this haze called the here and now, it holds us and comforts us, in away it protects us from the journey ahead. Because if we knew our road was going to be lined with pot holes, tears, and fear, we would stop traveling and stay just as we are. October 22, 2009 taught me more lessons than I could ever begin to explain, it taught me to fight for myself and to always listen to my body, because she will never steer me wrong. It taught me to love my friends like sisters, to cherish my family, to dance on the good days and to fight on the bad. Faith is something I always have, as long as she is at my back, I will face the wind and sail the angry seas.

Survival is a funny thing, you go through phases and it is an ever changing sea, no wave nor current is the same. There are moments where I feel guilty because I lived and someone else’s daughter died. One out of five people will survive a pulmonary embolism with infarction, one out of five is a shitty equation if you ask me. I feel guilty that I have no long term physical or cognitive side affects from my Stroke. I see other stroke survivors struggling and my heart breaks, I know why my out come was different than there’s and it kills me inside to know that if they had received TPA there outcome most likely would have been like mine. I am forever in debt to my Woodwinds care team, One question saved me, if the doctor never paused to ask “are you on a birth control,” my mom would have picked out my urn instead of my 27th Halloween themed birthday cake. Woodwinds will always have a place in my heart, because its where my second story began.

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Looking back my second story has been a beautiful disaster. A disaster that is mine and mine alone, I would not trade this journey for anything in the world. On October 22, 2009 I had no idea that one moment would lead me to give a speech on the capital steps in front of members of congress. I had no idea that I would be come a You’re the Cure Advocate and lobby in Washington D.C., I had no idea that I would be a voice that would help get the MN Stroke System of Care passed and funded. I had no Idea that I would be a Go Red Spokeswoman who shined on billboards and a public service announcement. Money doesn’t matter, using your story to make a difference is how you fight back, fighting back is what matters. Merck may never have to admit their wrong doing, but I can tell the world what happened to me, through my story I can save another woman’s life. I can get her to think about her heart health, her risks, and get her to ask her doctor questions, questions that will lead to answers that will improve her quality of care and ultimately her quality of life.

I am who I am because of Merck and the Nuva Ring, they will always be apart of me. In one moment of disaster I found my purpose and I am never leaving my soap box. But the thing is behind every thriving survivor is an amazing village of supporters. I am so grateful to have the worlds greatest best friends, Sherri, Jilliann, Lisa, and Tara never left my side, on the bad days they picked me up and pushed me to go a little bit further. My parents, they are the rock in which I build my house upon, they gave me strength when I had none. My Mama always looked over my INR numbers and medication lists to make sure the doctors were treating me correctly. My Dad and I are like two little old men sitting on a porch discussing chest pain and the days gone by where we could run and fight to live another day. Now we just sit in our rockers and watch the world go by, running is for the young folks and well neither of us would win a fight. My dad has rescued me from more tight spots than I can count, he’s never seen the ocean, he made damn sure that I traveled the globe not once but twice, so I am paying it forward, I am taking my Dad to the seashore, I want him to feel the mist and to stand on the edge of the world.

I got a chance to be the Auntie that I was always meant to be. Sophia and Jack could be learning about me from old photos and their mama’s memories. Because of early intervention and research their Auntie was saved, they get to hold her hand. The day I became an Auntie is the day my heart healed, Sophia and I have been bonded since day one, little Jack is learning all about super Auntie. Those two have my heart and there will always be a surprise for them in my purse. Sophia and Jack are why, there tomorrows are what I am fighting for. Both of them deserve to grow up in a world free of heart disease and stroke.

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Second Chances are far from perfect. Lucia was to be the sun after my storm. Instead God had other plans and just as before the winds of change blew through and I had to sail the waves of grief. Losing Lucia allowed me to put myself first, I called it quits and walked out of my loveless marriage. Divorce was not an end, it was merely a beginning. I traded the ex-husband in for a little muppet like dog, which is one of the best decisions I’ve ever made. You can never go wrong with a dog. On a hot August day a small white dog with a big gray nose rescued a human and he never looked back. Cullen became the glue that kept me together, as long as I had him at my side, I was never alone. Together we took on uptown, strolled through the parks and picked up glass on the beach. Cullen has provided me with endless laughter, he makes the bad days brighter and life is more fun with a muppet like dog at my side. Cullen was the love that my heart needed.

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Love found its way in, Charlie will always be apart of me, I think that in away Charlie knew that he was not my forever, only a mere moment. He allowed me to be, to heal, and to find myself. Charlie allowed me to believe in love again and when he died, my heart broke. Yet I knew Charlie wanted me to carry on with living and not be stuck in the land of what if. I had to break before I could shine. Jay fell into my in box at the perfect time, my heart it was ready to love again. Jay’s love was the glue that my heart needed. With each date I began to fall for him. In Jay I found home, he has my heart and I have his. Jay joined me on the tail end of the Nuva Ring law suit journey, I am glad that he is at the end, because together we can turn the page and walk away to start a new chapter. Because this is only the beginning the best is yet to come.

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There were moments where I wanted to throw in the towel and give up this fight. But then I looked in the mirror, I faced a woman who lived through the worst day possible. She never thought the birth control she took would almost take her life. She was weary and weathered, yet she still faced the sun. Her womb carried children she never met, yet she still has faith that one day she will hold a baby in her arms. Her heart was broken and jaded, yet she still manages to love. Little did she know, she just had to break before I could shine. I am living on borrowed time, my life it is a beautiful disaster and each day I am standing above ground means that the best is yet to come.

Merck you may have won this battle, but the war, it rages on. I will not give up until there are none, because no woman deserves to fight alone.

{Hearts on 22} Life, It Goes On 

Year six

“Dear 26 year old Self,

If I had known what was going to happen today I would never have gotten out of bed. But you being the optimist got up, you put your cranberry colored flats on, left a half eaten muffin on the counter, guzzled some coffee, and drove off to work. You just started a new job, a new challenge always gets us excited you were knee deep in learning the ins and outs of repossessions and collections. Because you were knee deep in lets face it we were trying to impress our new boss, so we brushed off our gut feeling that something was wrong.

Since Monday you brushed away the sick feeling, the raging pain, fever, shortness of breath, and everything else you did not have time for. You made it to the Sun Ray shopping center, you started to feel an annoying stab in your lugs, you being you ignored this. The situation did not improve and by the time you reached Saint Paul you could barely breath. Yet for some reason you thought you’d be all right, truth is you were not all right. Something in you made you take the Lexinton Parkway exit and head back to Woodbury.

Turning around was the best decision you made that day. You contemplated going home, the voice in your head said go to the ER, thank God you listen to it. Within an hour you were told that your situation looked bleak, your chance of walking out of there alive was slim. Your oxygen level was below 50%, a massive clot was blocking the main valve to your heart, and not to mention a few of your lung sacks exploded, and to top it off you had a stroke. You my dear almost died five days before our golden birthday.

Year 26 was to be the end of your story, but something in you decided “today is not the day” and you reached down to grab the last shred of hope you had and fought back. You AJ got the best birthday present. It did not come in a box with a fancy bow nor did it have a pretty gift tag, you got a second chance, you got life. There is no greater gift than the gift of life. Smile young lady, you are the 1 out of 5 who got to walk away and live another day.”

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Life, it goes on.

There are not enough words in the English language to describe how amazing my survivor journey has been. I have gotten to do a lot of incredible things that would not have been possible without the fast action of the Woodwinds ER team, nurses and staff. I am alive today because they looked past the norm and dug deeper to find out why this healthy young woman could no longer breath.

The clot was found because the Doctor took the time to ask me five little words: “are you on birth control?” Those five words saved my life, because I said yes a d-dimer was order, that test lead to the CT scan that found the massive clot in my left lung. I have no long term cognitive or physical side affects from my stroke because I received the life saving clot busters, they made all the difference and allowed me to walk out of that hospital on my own.

Ever since that day I set out into this world to make sure no other woman had to endure my fate, I have succeeded in this. My story has educated and saved countless lives. “Oh the places a birth control related P.E. and Stroke will take you!” From billboard, to public service announcement, to the steps of the United States Capital building, my story has been heard loud and clear, and my struggles are paving the way so that others can know the sign of blood clots and stroke.

I do not consider myself a victim and I refuse to live in the Nuvaring’s shadow, I am a survivor and Merck can never take that away from me. It doesn’t matter that Merck does not have to accept responsibility for my injury, I know that there product did this me. In away that moment of disaster catapulted me into an amazing second chance that is filled with passion and purpose. Nuvaring almost took my life, it will not take my second chance away from me, that is mine and mine alone.

Life, it goes on. I became a mama to a baby in heaven not once but twice. I got divorced, rented my first apartment ever, adopted a dog, quit my job without a plan, only to find a job that I hands down love, and I managed to find MYSELF. I got to watch my niece take her first steps, hear her little voice yell “AUNTIE” excitedly, and mostly I get to bond with her as I paint her little toes pretty colors. I’ve gotten to reconnect with my parents through crazy little road trips and spent my summers collecting glass on the beach. I fell love only to fall out of it. I miss Charlie every day, but I have to believe that he somehow lead me to Jay, in Jay I found home and soon I will be his wife. I got to meet and hold my nephew Jack, his sweet little chubby cheeks will melt your heart.

If it were not for the Woodwinds ER staff and medical research the fore mentioned would not have been possible. My niece and nephew would be learning about me through photos. Jay and Charlie would never of had the chance to fall in love with me. There would have been no participating in the Go Red campaign, there would have been no participating in lobby days or giving a speech on the capital steps, and this blog would have ceased on 10/22/2009. My Mama would have picked out my urn instead of my 27th Halloween themed birthday cake, and my story would have ended as silently as it started. I am alive today because of RESEARCH, research is what saved me, and I will support medical research for as long as I am standing. Because if you need proof, its right here, I am proof that it does and will continue to save lives.

Words cannot express how thankful I am for the doctors and nurses at WoodWinds Health Campus, that place is more than a hospital, it is where my second story begins and for that I am grateful, grateful that because of the care I received, I got to walk out of the front instead of being rolled out of the back door.

To learn more about Pulmonary Embolisms and Women’s Heart Health Please visit the following sites:

Pulmonary Embolism: http://www.mayoclinic.org/diseases-conditions/pulmonary-embolism/basics/definition/con-20022849

To learn more about blood clots: http://www.stoptheclot.org/

Women’s Heart Health: https://www.goredforwomen.org/

To learn more about strokes: http://www.strokeassociation.org/STROKEORG/

To join us in the fight for a healthy tomorrow: https://yourethecure.org/aha/advocacy/default.aspx

To learn more about the dangerous side affects of the NuvaRing: http://nuvaringtruth.com/

“Educate yourself and safe a life today”

{Lucia & Baby E} My Babies You Will Always Be

  “For as long as I am breathing, my babies you will always be”

In story books, everything is perfect. Girl meets her prince, her prince knocks her up, and nine months later the family of two becomes three. The writers make pregnancy out to be magical and easy. On the pages, every woman gets pregnant, every marriage is a happy one, and every child gets a happy ever after.

I am jealous. Jealous of fertile Myrtle who lives down the lane. For she gets pregnant with ease and carries her babies to term without worry. Blood clots, stroke, and irregular heart beats never cross Myrtle’s mind. She does not have to wonder “should I take my shot at 2pm or wait until I get home?” Myrtle  never has to look up at a screen and hear the words “I am so sorry” as they squeeze her shoulder. Myrtle doesn’t know the heart ache of seeing a lifeless baby on the screen. She does not know what it’s like to have a doctor say “maybe it’s to early, maybe next week we will see a big healthy yolk and a fetal pole!” Myrtle does not have to drive home fighting back tears as she looks in the rear view mirror wondering “why me, why my baby.” 

I desperately want to be Myrtle. I want to be able to not just carry, but to hold my own flesh and blood. To look my living child in the eyes and to watch them grow. After Lucia I had lost all hope, countless times I was told “no more babies.” That pregnancy wasn’t safe for me and that my uterus was to beaten to function. I made peace with my fate, that my only child is in heaven. Lucia will always be my first and I will love him until my last day on earth. My baby he will always be. 

Maybe I just needed time to heal and recover……… On Mother’s Day I looked down at a bright blue plus sign. The impossible, happened. I was terrified and thrilled that my rainbow was on board. I did my best not to get attached. Jay was over the moon and he wanted to be apart of every appointment. We started picking names, planning the nursery, and talking about our future. The excitement was short lived, this rainbow was not meant to be ours. 

This baby wasn’t meant for us. At our first ultrasound an empty sac is all they saw. It measured correctly 6weeks 6 days, but no sign of life was inside. The sac it grew bigger, yet nothing took up residence. No yolk, no fetal pole. I looked up at the sky and I knew that this wasn’t meant to be. Jay said “babes it’s just wasn’t  CoraLeigh.” He secretly wanted a girl and fell in love with the name CoraLeigh. 

My body is a dick and it didn’t want to let go of the pregnancy. I didn’t want a D&C, I held out until it was evident that I wouldn’t misscarry on my own. A plan was made, ultrasound and antibiotics were on deck and on July 7, I went under. Surgery went well, the hysteroscope showed that my uterus was healthy and not bruised. The doctor said “she can and will be able to carry babies.” I can have babies too. Those are the only words I needed to hear. 

Baby E, was more than an empty sac. The pathology exam found that it was a partial molar pregnancy, meaning two sperm fertilized one egg and abnormal cells took over. Jay and I didn’t fail, our little baby just had to many chromosomes, it was a genetic accident, this little one wasn’t meant to be.

I am 2 and 0. God holds my babies. I have my days where I wonder what Lucia would be like today. He would be 5 and in kindergarten. I wonder if he would have my curly hair, or his dad’s eyes, and if his smile could light up a room. If he would be a wall flower or daring like his mom. Lucia was here for a brief moment yet he left foot prints on my heart. My baby he will always be. 

If Baby E had the correct number of chromosomes I would be 6 months pregnant today. We would know if we were expecting CoraLeigh or Oliver. We secretly wanted a girl, but we’ll take anything we can get. Jay and I would be putting the finishing touches on the nursery and picking out the perfect car seat. I would be knee deep in appointments, ultrasounds, and Lovenox injections. I want those things, I desperately want those things. 

Losing a child, makes you want children even more. I want to prove to the world that I am capable of carrying a baby to term and that I am worthy of being  a mom. Jay and I have so much love to give, we are patient and kind, good parents we will surely be. I have faith that my third time and Jay’s second time will be the charm. 

One out of four women will experience pregnancy loss. I never thought I would be the one twice. Never did I think I would be 2 and 0. Babies seem to elude me, yet I have faith that my turn is right around the corner.

{Nuvaring} The Ultimate Price Paid

“What counts in life in not the mere fact that we have lived. It is what Difference we have made to the lives of others that will determine the significance of the life we have led.”

-Nelson Mandela

I am Erika Langhart, you are Erika, your daughter, your granddaughter, your niece, and your wife are all Erika. Erika was a vibrant young woman who endured my fate. The difference between her and I, is that I got to live another day. Erika wanted nothing more than to live and to prosper in this world. Yet her light was snuffed out, she died due to complications caused by the third generation progesterone in the Nuvaring. To this day the FDA still claims that the Nuvaring is safe for women to use.

Erika, if she could speak would tell you that it is not safe. I am not Erika, but I can tell you that it is not safe and that there is nothing good about the Nuvaring. It will blindly launch you into a disaster that will become your every day life. Erika is only the tip of the iceberg. Many more women followed her foot steps, some went before her and some went after her. There names deserve to be remembered, their lives deserve merit, and mostly their deaths deserve to be more than deaths.

Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey, they did not want to die and they should not have lost their lives. Their deaths could have been prevented, if only they had been thoroughly educated about the dangerous side affects of the Nuvaring. That is what gets the most, their deaths could have been prevented. If only they had known about the risks, they would all still be alive today. I have no doubt that all of them would join me in this fight. That they would use their voices to educate the women in their lives, in their communities, and states about the adverse affects of hormonal contraceptives.

Doctors will tell you that the occurrence of a blood clot is rare. I am living and breathing proof that rare happens. It happens every single day all over this world. The Nuvaring doesn’t give a shit if you are rich or poor, the color of your skin, or your age, its just a thing and it will strike when you least expect it. I woke up at 5:50 AM, I was a healthy vibrant young woman and by 7:30 AM I was fighting for every breath I took. Rare, rare happened on October 22, 2009 five days before my 27th birthday. The only reason I am alive is because the ER doctor paused and asked me if I was on a birth control. That one question lead to a D-Dimer test and that Test lead to the scan that revealed the massive clot in my lung. I was diagnosed with a Massive Pulmonary Embolism with Infarction, low oxygen, and sinus tachycardia. An if that wasn’t enough, to top it off I had a stroke too. In layman’s terms I was a hot mess and my future was uncertain.

1 out of 5 will survive a pulmonary embolism. You can do the math, that means four people had to die so I could be the one would lived to the tale. No one should have to go through that, it is terrifying, no one should have to wonder “is this my last breath.” I did the only thing I could, my daddy always told me “when all else fails, pray.” Pray, is exactly what I did and I needed to put the why behind the how. I needed to know why this happened to me. It was proven that my pulmonary embolism was caused by the third generation progesterone in the Nuvaring. My birth control, almost took my life. I was almost Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey. But for some unknown reason, I was spared, I lived to fight another day and because of that I will not give up. I will not rest until the Nuvaring is removed from the market.

I will be damned if another woman endures my fate. My years are borrowed and in my heart I know that Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey would gladly trade places with me, they can’t so I chose to fight for the tomorrows they never got to see.

To learn more about the Women who lost their lives and about the continued fight to educate women on the adverse side affects of the Nuvaring, please visit: http://nuvaringtruth.com/

{Life Lessons) One Little Genetic Accident 

Pregnancy lossWhen Lucia died I was never given the option for genetic testing, instead I had to literally demand it. Many thousands of dollars later we learned that he was genetically and chromosomally perfect. There was no why or a how behind his death. He just simply stopped being and for some strange reason that news brought me comfort.

Fast forward five years, this time around it didn’t really cross my mind to ask for testing. I figured an empty gestational sac is simply just empty. To my surprise the doctor emailed to tell me that the pathology results were in. I thought to my self “Pathology” results? I don’t remember them mentioning anything about testing.” 

The proof was in the testing. The little sac that couldn’t was more than just a little sac. It was a sac filled to the brim with answers. A human cannot have 69 chromosomes, we only need 43, no less and no more, only 43 will do. I wondered to myself “How the heck does one embryo get 63 chromosomes? I must be broken or Jay is broken, someone must be broken?” I read a little further and the answer to my question was in the text “two sperm fertilized one egg.” It happens in every 1 out of 3,000 pregnancies and the likelihood of it reoccurring again is very slim. 

The true medical term for this is: partial hydatidiform mole or a partial molar pregnancy, which occurs when the egg receives two sets of chromosomes from the father, usually because the egg has been fertilized by two sperm instead of one. The egg now has 69 chromosomes, instead of the normal 46. 69 chromosomes means no baby and your body will recognize this and the miscarriage process will start. That is if your body is smart, mine is not that smart……..

The embryo had only partially developed and a cluster of grape-like cysts, which is known as a hydatidiform mole began to grow and take over. Now the waiting begins and the lab work starts. The doctor is going to follow me until my HCG level returns to zero. If it does not reach zero it means that there is abnormal tissue growing and I will have to under go chemotherapy to kill it off. That in itself does not sound fun and it is a road I would like to avoid. In the mean time I am keeping everything crossed that my HCG will return to zero. We want a big fat zero!! Come on zero, I want you and need you in my life!

Wait and see land is a terrible place to be and I want out!  I have many trips to the lab in my future and will have my blood drawn every few days until my level reaches zero. I am praying that on Monday my first blood draw will be a big fat zero. Jay and I want to move on and put our little ball of 69 chromosomes behind us. 

Nothing is every easy, all of the weird medical shit happens to me. Just once I would like a break from the office visits and medical bills. Leave it to me to be the 1 out of 3,000. In away it is cool that medical science has come so far that they can tell two sperm fertilized one egg. Like that is crazy cool when you think about it. Gosh darn I love science! 

My bright side in this situation is this: “I CAN get pregnant! My uterus may be beat up and bruised, but she sure as hell ain’t broke! The best part is: I am not going through this alone, I have an amazing man who is holding my hand every step of the way. Jay is making me laugh, giving me back rubs, and taking much needed naps with me. I am so glad I have him in my life! With Jay at my side all things are possible, one day we will have a little one to call our own. Right now Jay and I are settling for the newest addition to our family a little gray kitten with a very pink nose named Griffin.

{Life Lessons} So close to motherhood, yet so far away

WaveOn Mother’s day I got the bright blue positive that we all hope and pray for. That little plastic test proved that my body still worked and that I was still worthy of motherhood. Little did I know, this to would be a test and I would once again have to face loss. Fate she can be kind, yet without warning she can churn the seas. At the end of May Jay and I found out that a gestational sac had developed yet it had nothing inside. There was no heart beat, no yolk, and simply no sign of life. It was not meant to be ours.

Someone else needed a baby more than Jay and I did. This, this just wasn’t our time and as Jay put it “Babes it just wasn’t CoraLeigh in there.” Yes, we secretly wanted a girl. June proved to be a test, losing a pregnancy isn’t easy and it put a strain on our relationship. Words were said, tears shed, yet we came out of it more in love than ever. My body didn’t want to let go of our little sac that couldn’t, so a D&C was scheduled and I began to pray. Pray because the last time I had one, it didn’t end so well and it left me with more scars than healthy tissue.

I picked out the expert, we talked through the procedure and he promised that he was going to do it right. On Monday I went under and he did it right. To my surprise as well as his, my uterus had hardly any scar tissue and the tare in the uterus healed perfectly. My chances of having a healthy pregnancy are as high as they can be for a pulmonary embolism/stroke survivor. I have a feeling that my third time and Jay’s second time will be the charm. I am not going to give up on motherhood just yet, this this is a dream I have always wanted.

Sometimes I look at pregnant women and think to myself “you are so darn lucky.” Most women have no idea the struggles a pulmonary embolism/stroke survivor faces in pregnancy. My world is complicated and most of us are told “no more babies.” I took that statement as a challenge and lord willing one day I will hold a baby of my own. Someone has to go first and tread the waters so others can follow. Right now medical science knows so little about hormone induced blood clots and heart issues, I think it’s time to change it. More research needs to be done and when that happens more women just like me will be able to carry babies of their own.

For now I will settle for the knowledge that my body still and does work. I am blessed to have two children in heaven, my son Lucia and a baby we never got to know. I’d like to believe that this was a test, a nudge from God to let me know I am still capable of carrying a child. The little empty sac will always be apart of me and I will always wonder who it would have been. I have no doubt that my turn is coming and that Jay and I will get to one day share a super cute baby announcement with all of you.

{NuvaRing} Living In A Beautiful Disaster 

Ladies, from my heart to yours I can tell you that no amount of money is ever going to make us whole, it will not undo the harm, and it will not turn back time. I never went into this lawsuit for the money, I I wanted to make a difference and I did. I wanted to stand up for myself and to make sure that no other woman had to endure my fate. 

 I had a massive pulmonary embolism with infarction and because of that I can no longer have children. I used the nuva ring because it was suppose to reset my cycle and I would hopefully then get pregnant. I wanted a baby more than anything in this world, instead I got handed a blood clot. 

We thought the  nuva ring took away my fertility, on April 1st 2010 I found out I was pregnant. Not just a few weeks but  a whole lot a pregnant. Somehow in the chaos of INR checks, scans, and injections a child was made. It wasn’t ideal, yet the timing was perfect. My son was the silver lining to a shitty ordeal. 

God he had other plans, I celebrated Mother’s Day with a swollen belly only to find out that Lucia’s light was no more. On May 12, 2010 Alucious Gregory Beaulieu Cohen was born sleeping. My daddy planted a birch tree in Lucia’s honor, at its base is a plaque that reads “Where there is love, there is life.” 

Tucked into the pages of my Bible is a card from United Hospital, on it are my son’s tiny little foot and hand prints, Lucia is always with me, no foot is to small to make an impact on this world. You see it doesn’t matter how many dollars are placed in my hand it will not bring my son back nor will it change the fact that I will never look my own flesh and blood in the face. 

So please find it in your hearts to be at peace with this, Merck technically under the law doesn’t have to give us a dime, hell they don’t even have to admit wrong doing and they can continue on as business as usual. Be happy that you are getting a few pennies, because a few is better than nothing. 

Be greatful that you are six feet above ground, be thankful that you greet the sun each morning, and never forget those women who would die to take your place. 

  This is my 6th borrowed year on earth and I am greatful that in those six years  I became a mama, got a divorce, found myself, adopted a rescue pup, held my niece, found  the perfect job, fell in love, and in July I will welcome my nephew Jack into this world. I made a life out of a beautiful disaster. 

My story could be different, On October 22, 2009 I had my massive PE with infarction when I was 26 years old, I was 5 days shy of my 27th birthday, and if I didn’t get to the ER when I did my Parents would have been picking out my urn instead of my 27th Halloween themed birthday cake. I got the best gift that year, I got life! I got to live! 

 And I refuse to be angry at Merck, there is no place for anger in a survivors heart. I am living in the moment and taking in every sweet sweet drop of borrowed time. Memories are what I am making and I am living without looking back. Life is a Beautiful disaster and I will ride it until the last grain of sand falls. 

{Heart Walk} Tomorrow is Why I Walk 

  

TOMORROW is why.

I want to have a billion more tomorrows. A billion chances at seeing the sunrise and set. I want a billion nights under star filled skies and a billion bon fires by the shore. I want a tomorrow. I want to get married again. I want to build a tiny home (I am obsessed with them), have a family, travel the world, and mostly I want to secure a healthy tomorrow for all of us. That is my wish that every single one of us will have a billion tomorrows. Life is so uncertain and your tomorrows can be ripped from you in a blink of an eye. I am going to focus on living in the moment and not waste a precious drop of sweet sweet time.

Life is why! 

Research will guarantee a healthy tomorrow for all of us. Please join us in the fight against heart disease and stroke, walk with us on April 25, 2015 at Target Field. 

Twin Cities Heart Walk 2015

{Heart Walk} Family Is Why I Walk 

  

Will you join us in the fight against heart disease? My father survived congestive heart failure when he was 50 and at 26 I had a stroke, at 31 I found out I was destined to follow in his footsteps. 

My stroke was a fluke, but my risk of developing congestive heart failure was always in the cards. Research saved our lives and it will continue to do so. Research will make my healthy tomorrow possible. 

All of us deserve a tomorrow. 

Please give what you can and come walk with us on Saturday April 25th at Target field. Together we can end heart disease.

Twin Cities Heart Walk 2015

{Heart Walk} Being an Auntie Is Why I Walk 

 

 Every day little girls are born into families where there Auntie lost her life to a Stroke or Pulmonary Embolism. They are growing up in a world where they only know her through stories and photos. They go their entire life without her, longing for the Auntie that was taken away all to soon.

This would have been Sophia’s world, but because of research my life was saved. Because people just like you are donating to the cause, research is funded and women like me get to walk away. We get to walk away on borrowed time, hold our nieces, and make memories with our families. 

I am greatful for this life I get to lead. For this little girl, and the memories I create with her. One day she will realize just how hard her Auntie fights for her healthy tomorrow. 

So please join us in this fight, together we can make a stand, together we can WIN this war. Join us at the Twin Cities Heart Walk on Saturday April 25, 2015. 

Twin Cities Heart Walk 2015

Life is why