{Nuvaring} The Ultimate Price Paid

http://www.youtube.com/watch?v=4_AYn-Jympo

“What counts in life in not the mere fact that we have lived. It is what Difference we have made to the lives of others that will determine the significance of the life we have led.”

-Nelson Mandela

I am Erika Langhart, you are Erika, your daughter, your granddaughter, your niece, and your wife are all Erika. Erika was a vibrant young woman who endured my fate. The difference between her and I, is that I got to live another day. Erika wanted nothing more than to live and to prosper in this world. Yet her light was snuffed out, she died due to complications caused by the third generation progesterone in the Nuvaring. To this day the FDA still claims that the Nuvaring is safe for women to use.

Erika, if she could speak would tell you that it is not safe. I am not Erika, but I can tell you that it is not safe and that there is nothing good about the Nuvaring. It will blindly launch you into a disaster that will become your every day life. Erika is only the tip of the iceberg. Many more women followed her foot steps, some went before her and some went after her. There names deserve to be remembered, their lives deserve merit, and mostly their deaths deserve to be more than deaths.

Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey, they did not want to die and they should not have lost their lives. Their deaths could have been prevented, if only they had been thoroughly educated about the dangerous side affects of the Nuvaring. That is what gets the most, their deaths could have been prevented. If only they had known about the risks, they would all still be alive today. I have no doubt that all of them would join me in this fight. That they would use their voices to educate the women in their lives, in their communities, and states about the adverse affects of hormonal contraceptives.

Doctors will tell you that the occurrence of a blood clot is rare. I am living and breathing proof that rare happens. It happens every single day all over this world. The Nuvaring doesn’t give a shit if you are rich or poor, the color of your skin, or your age, its just a thing and it will strike when you least expect it. I woke up at 5:50 AM, I was a healthy vibrant young woman and by 7:30 AM I was fighting for every breath I took. Rare, rare happened on October 22, 2009 five days before my 27th birthday. The only reason I am alive is because the ER doctor paused and asked me if I was on a birth control. That one question lead to a D-Dimer test and that Test lead to the scan that revealed the massive clot in my lung. I was diagnosed with a Massive Pulmonary Embolism with Infarction, low oxygen, and sinus tachycardia. An if that wasn’t enough, to top it off I had a stroke too. In layman’s terms I was a hot mess and my future was uncertain.

1 out of 5 will survive a pulmonary embolism. You can do the math, that means four people had to die so I could be the one would lived to the tale. No one should have to go through that, it is terrifying, no one should have to wonder “is this my last breath.” I did the only thing I could, my daddy always told me “when all else fails, pray.” Pray, is exactly what I did and I needed to put the why behind the how. I needed to know why this happened to me. It was proven that my pulmonary embolism was caused by the third generation progesterone in the Nuvaring. My birth control, almost took my life. I was almost Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey. But for some unknown reason, I was spared, I lived to fight another day and because of that I will not give up. I will not rest until the Nuvaring is removed from the market.

I will be damned if another woman endures my fate. My years are borrowed and in my heart I know that Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey would gladly trade places with me, they can’t so I chose to fight for the tomorrows they never got to see.

To learn more about the Women who lost their lives and about the continued fight to educate women on the adverse side affects of the Nuvaring, please visit: http://nuvaringtruth.com/

{Life Lessons} So close to motherhood, yet so far away

WaveOn Mother’s day I got the bright blue positive that we all hope and pray for. That little plastic test proved that my body still worked and that I was still worthy of motherhood. Little did I know, this to would be a test and I would once again have to face loss. Fate she can be kind, yet without warning she can churn the seas. At the end of May Jay and I found out that a gestational sac had developed yet it had nothing inside. There was no heart beat, no yolk, and simply no sign of life. It was not meant to be ours.

Someone else needed a baby more than Jay and I did. This, this just wasn’t our time and as Jay put it “Babes it just wasn’t CoraLeigh in there.” Yes, we secretly wanted a girl. June proved to be a test, losing a pregnancy isn’t easy and it put a strain on our relationship. Words were said, tears shed, yet we came out of it more in love than ever. My body didn’t want to let go of our little sac that couldn’t, so a D&C was scheduled and I began to pray. Pray because the last time I had one, it didn’t end so well and it left me with more scars than healthy tissue.

I picked out the expert, we talked through the procedure and he promised that he was going to do it right. On Monday I went under and he did it right. To my surprise as well as his, my uterus had hardly any scar tissue and the tare in the uterus healed perfectly. My chances of having a healthy pregnancy are as high as they can be for a pulmonary embolism/stroke survivor. I have a feeling that my third time and Jay’s second time will be the charm. I am not going to give up on motherhood just yet, this this is a dream I have always wanted.

Sometimes I look at pregnant women and think to myself “you are so darn lucky.” Most women have no idea the struggles a pulmonary embolism/stroke survivor faces in pregnancy. My world is complicated and most of us are told “no more babies.” I took that statement as a challenge and lord willing one day I will hold a baby of my own. Someone has to go first and tread the waters so others can follow. Right now medical science knows so little about hormone induced blood clots and heart issues, I think it’s time to change it. More research needs to be done and when that happens more women just like me will be able to carry babies of their own.

For now I will settle for the knowledge that my body still and does work. I am blessed to have two children in heaven, my son Lucia and a baby we never got to know. I’d like to believe that this was a test, a nudge from God to let me know I am still capable of carrying a child. The little empty sac will always be apart of me and I will always wonder who it would have been. I have no doubt that my turn is coming and that Jay and I will get to one day share a super cute baby announcement with all of you.

{Life Lessons} Stick Little Baby, Stick

Five years ago when I lost my son I had a botched D&C that left my uterus with more scars than healthy tissue. They told me that because of my broken uterus I would never carry another baby. I’ve spent thousands of dollars and traveled the country looking for a specialist who would tell me otherwise. At then end of the day they all had the same answer and I had to learn how to live with it. When I turned 30 I accepted the fact that the only baby I would ever carry was in heaven and that there would be no more. This was the card I was dealt and I have to play that hand until the very end.

Surviving is only half the battle. One has to learn how to live with the unknowns and the would haves. Each night as I lay my head down I ask God to bring me a family, more than anything I want to be a mom. I want nothing more than to have a child. Every day as I walk to work I pass dozens of pregnant women, they look so happy and swollen. I want that glow and swollen body, I want to be pregnant more than anything. I wish and I pray, but at the end of the day they are just unheard wishes and prayers.

Fate she is funny. She and I have a very rocky relationship. Sometimes we get along and other times she is beating me into the ground. Lately she has been nice, I got the promotion I wanted at work, the Nuvaring lawsuit is wrapping up, and I have a man who adores my every quirk. Me more than anyone knows that with the good there comes bad. So I have been looking up at the sky waiting for it to fall, checking the ground for pot holes, and instinctively dodging curve balls that do not exist. Maybe for once fate is going to let me be and finally have a few moments in the sun.

I long for the sun and the sweet calm that arises after the storm. On Mother’s Day fate stepped in. I realized that my period was late. At first i didn’t give it a single thought and went on about my business. But then this feeling sunk in, a feeling of what if. So I gave myself a pep talk and bought a pregnancy test. I knew in my heart of hearts that it was going to be negative. I stared at it for a few moments and decided well they only way you are going to know for sure is if you pee on it, lord knows the test can’t read your mind. I took it, then set it on the sink. I continued washing my hands, I looked over and holy shit there was a bright blue plus sign. It appeared in less than 30 seconds. I immediately picked it up and dropped it on the floor. That couldn’t be right? It had to be wrong. There was no way.

There was simply no way. I sat on the floor and looked at the thing for a good 30 minutes before it sunk in that I was pregnant. Then it dawned on me that I had phone calls to make and close people to tell. I told Jay, he was excited yet terrified. My Mama was elated and I, I was fucking terrified. Terrified because being pregnant is like playing Russian roulette, it could go one way or the other. You just don’t know until that first ultra sound.

My first ultra sound did not give Jay and I answers. It left us in limbo. The gestational sac measures at 6 weeks 6 days which is spot on. However the sac was empty, we did not see a yolk or a fetal pole. The doctor she was optimistic that in a week we will most likely see a healthy little fetal pole beating away. At this moment I am preparing for the worst and hoping for the best. I want to believe the doctor, I truly do, maybe the baby is just hiding or is stubborn. I fear that this pregnancy is most likely a blighted ovum and that fate is once again playing a fucking joke on me. Maybe it is not a joke, maybe it is a test.

My HCG came back at 8434, the nurse said that was a high number. But it is also the first number they have so the Doctor doesn’t know whether it’s falling or rising. I go in for another blood draw tomorrow, we want the number to double. On Friday we have another ultrasound and I pray with every fiber in my being that we will see at a yolk if not a little fetal pole beating away. I have been down this road before and it scares the shit out of me. With Lucia I had a two-week wait and that wait was worth it, we saw his little heart beat. I just pray that Friday will hold the same out come, because I want nothing more than to meet this little one in January. I want nothing more than to hold this little one in my arms. I want to be a Mama to a baby on earth, not just a Mama to a baby in heaven.

So if you have an extra prayer to spare please send it up for this little one. If you have an extra penny in your pocket and a wish to share please wish for this little one to stay. Because I want nothing more than to see a little healthy heart beating away on Friday’s scan. I survived the unthinkable and this little one is a survivor’s dream come true. This little one proves that the impossible is possible and that miracles still exist in this world.

{Heart Walk} Tomorrow is Why I Walk 

  

TOMORROW is why.

I want to have a billion more tomorrows. A billion chances at seeing the sunrise and set. I want a billion nights under star filled skies and a billion bon fires by the shore. I want a tomorrow. I want to get married again. I want to build a tiny home (I am obsessed with them), have a family, travel the world, and mostly I want to secure a healthy tomorrow for all of us. That is my wish that every single one of us will have a billion tomorrows. Life is so uncertain and your tomorrows can be ripped from you in a blink of an eye. I am going to focus on living in the moment and not waste a precious drop of sweet sweet time.

Life is why! 

Research will guarantee a healthy tomorrow for all of us. Please join us in the fight against heart disease and stroke, walk with us on April 25, 2015 at Target Field. 

Twin Cities Heart Walk 2015

{Affordable Care Act} D.C. Meet AJ

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There are moments where I have to pinch myself to make sure that I really am living this life. I went from survivor to advocate, to spokeswoman. Last Thursday I received an email from the American Heart Association’s National Advocacy office inviting me to Washington D.C. This just wasn’t any old regular invite, this this was an opportunity of a life time. I was invited to Washington D.C. by House Democratic Leader Nancy Pelosi. When Nancy Pelosi invites you to D.C., you go, YOU GO and I did just that.

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I went and I became a part of history. I was invited to DC to speak at a press conference celebrating the 5th anniversary of the Affordable Care Act. The conference was held on the Capital Steps and it was organized by Leader Pelosi and members of the Democratic Caucus. Together we celebrated the Act and the fact that is working for millions of Americans. I am just one of the millions of Americans who benefited from the Affordable Care Act.
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This was my moment to put a face to a cause. Words cannot describe the impact the Affordable Care Act has made on my life. As a Pulmonary Embolism / Stroke survivor I can no longer be denied coverage or be forced to pay more because of my medical history. In the eyes of the law I am equal to my healthy peers and because of this I am able to afford quality insurance and put my health first.

Speaking

Yes, I found myself struggling to choose between paying my bills or paying for the medical care that I needed. For 18 months I went without health insurance and for part of that time I was only making $12 an hour. My most expensive prescription was $287.00 a month and I tried skipping it for a while, that just turned into a very expensive disaster. No one should ever have to choose between life saving care and bills. I never for one thought I would ever be in that position, but at 28 I found myself there. I found myself struggling to stay a float and was ashamed that I could not afford the health care I desperately needed.

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Today I am no longer ashamed, I am empowered. I have an insurance card in my pocket and I owe it all to the Affordable Care Act. I no longer had to settle for a job, instead I got to hold out for the one I wanted. I no longer have to check the couch for spare change just to pick up my prescription. Instead I walk right into Target and pay only $20.00 for a brand name drug. I can afford to go to the doctor and I am now getting routine care. I can for the first time in a very long time, put my health first. Life is not worth living if you do not have your health.

{Nuva Ring} Claim Approval and Alligators 

Late last night I fired of an email asking for an update on the Nuva Ring Claims process. Morning came and I was wrapped up in prepping for a work party, that email was long forgotten. By 2pm I had a chance to look at my email and there is was the update that I had asked for.

I read that email a few times and it took a while for the following scentance to sink in “We have been notified that your case did qualify for settlement under the injury of pulmonary embolism.” Wow, Merk was going to be putting a dollar sign on my injury and calling their payment fair compensation. I called my parents and together we did a happy dance. 

For me, this case was never about the money. No amount of money can undo the harm that was done, it cannot restore me whole, and mostly it will never bring my fertility back. Complications from the Nuva ring have hindered my ability to carry a child. Alucious will be my only baby and that sweet boy rests with God. 

Alucious would be 5 this year. Five years ago I bought a tiny baby alligator for him and it sat in the nursery waiting for him to arrive. Alucious never met the alligator instead a crown was placed upon his head and he rests with the angles. I hung on to the alligator in hopes that one day I would be able to give it to a second child. I still hold out a shit ton of hope that I will have a baby of my own. For now the little alligator hangs out in my kitchen and watches the world go by while waiting for Alucious. 

The Nuva Ring changed my life in more ways than I ever thought possible. There are days where I want to give Merck a high five because in their failure I found purpose. I am more confident in myself and I am determined to make this word a better place. The Nuva Ring  was my slingshot and I have never looked back. I turned a shitty situation into a life lesson for all of us and I use my story to create change. I cannot undo what happened to me, but I sure as hell can do everything in my power to prevent a woman from enduring my fate. If I can prevent one PE, then the hell I went throught was worth it. 

Yes, Merck I will take your check, but just know that your failure of a product launched my purpose in life and I will not give up or in until it is no longer prescribed in this country. 


{Go Red For Women} When A Doctor Fails

survival
We have talked about the statistics. We talked about the warning signs and about what to do when someone is having a stroke. What we have yet to talk about is that sometimes doctors fail.

On October 14, 2009 I went to the Alina clinic in Woodbury for my yearly exam and birth control prescription renewal. The doctor was more concerned about whether or not my insurance would pay for the pap because I was a few weeks early. She said “Ya know they only pay for one per year. Your last exams was in November 2008. So they might not pay and you will get a bill.” The doctor actually left the room for a few minutes so I could think about whether or not I wanted my exam. Still to this day I can’t believe she did that.

When she came back in the room she was rushing and barely listening to anything I was saying. I was getting annoyed so I changed my tone and said “look I am really tired, my right leg has been throbbing, I have redness and swelling in my calf and upper thigh. This isn’t normal for me.” The doctor looked me in the eye and said “well you said you haven’t been walking as much. Go home walk and drink more water. Here’s your script. Bye.”

With those words she left the room and I got dressed. If she wasn’t concerned then I shouldn’t be. So I didn’t give it a second though and I went on about my day. As the days went by I wasn’t getting any better. I had shooting pains and major swelling in my leg. Again I brushed it off, drank some water, and walked a little more. I had bigger things to tackle. I finished out my last few days at the pharmacy benefit management company and looked forward to staring my new job that Monday. I didn’t have the time to be sick, so my health it was shoved to the side. After all the doctor she wasn’t worried so I wasn’t going to worry either.

Monday came and I was super pumped for my new job. By the end of the day I did not feel well. The shooting pain was moving up my leg into my stomach and I had this massive head ache. When I got home I took some Tylenol and went to bed. I woke up fine on Tuesday and set out to conquer day 2 of my new job. I felt fine all day Tuesday. Wednesday afternoon would prove to be difficult. I had this pain it felt like someone was dragging a knife up and down my right side. My leg was so swollen it barely fit in my pants and I just felt sick. When I got home I took some Tylenol and went to sleep.

Thursday October 22, 2009 I woke up feeling fine. I had slight pains in my chest, I chalked it up to a cold and headed out to work. Fuck me, the freeway was bumper to bumper and I was worried about being late. I continued on I94, as I drove the pain in my chest kept on getting worse. It felt like thousands of knives poking me and when I tried to take a deep breath it felt like trying to inflate a tiny balloon. Again I said to myself “don’t worry you will be fine, all you need to do is make it to work, take some Tylenol and drink some water. My condition worsened, by the time I reached Saint Paul I could barely breath, my arms were going numb, my heart was racing, and I, I was fighting. Lexington Parkway, I made it there and took the exit. I drove all the way back to Woodbury. I remember thinking do I go home or do I go straight to the Hospital.

I chose the hospital and that is where my morning unraveled. The doctor ruled out a heart attack and he was leaning towards a respiratory infection. I apologized profusely for taking up their time. My blood oxygen level was below 50% and the doctor paused for a moment and asked if I was on a birth control I told him “yes, Yes I am. I am on the Nuva Ring.” The Doctor explained the risks of blood clots and the D-Dimer test to me. He told me, its most likely not that, but we want to be safe. The results came back and the results were not good. I was in trouble. I was sent off to CT and with in forty minutes the blood clot was found. I had a blood clot the size of a ten cent gumball in my left lung. It was wedged in the main valve leading from my left lung to my heart. My lung had signs of infarction, I had 20% tissue death in the lower portion of my left lung. My heart was barely getting any blood nor was my body getting the vital amount of oxygen it needed.

The Doctor ordered the highest dose of Heparin possible. He talked to me and tried to explain everything that was going on. A nurse he noticed that my blood pressure was climbing. I remember looking at the nurse and saying “I feel really light headed, like I am sinking, and and……..” In that moment I lost my words. In that moment I had a stroke. The staff gave me clot busters and started the Heparin drip. I was not going home for a while. At 26 years old, just five days shy of my 27th birthday I almost died. My life was forever changed and I was left to chart my course as a survivor.

In the coming days I would learn that my stroke was 100% preventable. On October 14, 2009 I described the tell tale signs of a possible blood clot in the leg. She knew I was on the Nuva Ring which was known to cause blood clots. All my doctor had to do that day was listen to me. She had the ability to order a D-Dimer, that test would have signified that I had a clot somewhere in my body, instead she dismissed my concerns and sent me home. Preventable was the hardest pill I had to swallow. I went through hell because a doctor didn’t give a fuck about me, she was more concerned about my insurance company paying than my health.

I had to endure three weeks of Lovenox injections, seven months of INR checks and take warfarin sodium in an attempt to keep my blood thin. Worst of all because of her oversight that day, I can no longer carry a child. OBGYN’s are suppose to bring babies into this world, not take away a woman’s fertility. They are suppose to advocates for women’s health and not be the reason a woman’s health fails. I was on a birth control, so as I told her “Hey my leg hurts, its swollen, red, and warm to the touch.” A red flag should of went up and she should have done her duty and ordered the D-Dimer. Her lack of concern made me dismiss a shit ton of red flags. I thought “the doctor wasn’t concerned, so why should I be concerned?”

The beautiful thing about a woman’s body is that, it never steers her wrong. I should have listened to my gut and pushed for a second opinion. That one doctor changed my perspective and now I fight for my own health. I am not afraid to ask for a second, third, or forth opinion. I will not give up or in until I find someone who is just as passionate about health as I am. I will be damned if I ever get dismissed by a doctor again. To be honest I don’t trust doctors anymore. They are only as smart as the paper their license is printed on.

The OBGYN I saw that day is fully aware of what happened to me. She actually called me and apologized. I said to her “Your apology cannot bring my lung function back, it will not restore my ability to have a baby, and it will not make your lack of concern OK. You can shove your apology up your ass. What’s done is done.” I cannot undo what she did to me, but I sure as hell can make sure no other woman endures my fate. If my story saves one woman or makes one woman pause and ask her doctor “what is my risk.” Then the hell I went through on that day was worth it, because I was able to make a difference in another woman’s life.
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{Hearts On 22} Five Borrowed Years

Top right photo was taken one month after my PE and Stroke

Top right photo was taken one month after my PE and Stroke

I honestly cannot believe that it’s been five years. It seems just like yesterday when I set out to work oblivious to what this day would hold. I still remember what I wore and that I was upset because I forgot to buy creamer the night before. It was a free jeans day and I wore a gray cardigan with a white eyelet button down peasant style top and jeans paired with cranberry colored flats. It was also day #4 at my brand new job. I was busy learning the ins and outs of replevin work and didn’t have the time for inconveniences.

On Tuesday night I felt this excruciating pain rush through my body. I barely made it through the evening rush hour drive. I came home put my purse down, took some Tylenol and crawled into bed. Wednesday morning I was right as rain and went on about my day. On October 22, 2009 I woke up with a mild nagging pain in my chest. I didn’t think anything of it, figured I was coming down with a cold and brushed it off.

My body was screaming for help and I, I just ignored the signs. I had reached the Sun Ray shopping center, the pain was getting a little worse, still I brushed it off. A few miles down the road that nagging pain turned into what felt like a thousand knives cutting me at once. Breathing was proving to be difficult and my arm was going numb. I’d try to breathe deep, my lungs they fought back and I had to make the decision call mom, no not an option she will panic. Pull over, no you are afraid to be stuck on the side of the road. Oh look Lexington parkway, take the exit.
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The exit, I took it. To this day I have no idea how I made it to Woodwinds Health Campus in Woodbury MN. The only thing I remember is throwing the Prius into park and collapsing into the security guards arms. Some how by the grace of God I made it to safety. When I came to the ER staff ruled out a heart attack and a panic attack, labs were ordered and I apologized for taking up their time. The doctor thought I had an infection in my lungs and ordered an x-ray and labs. As he left the room he turned on his heel and asked “by chance are you on a birth control?” I quickly said yes and he explained what the d-dimer test.
2nd chance
The d-dimer was ordered, my oxygen level was less than 50%, my heart was in sinus tachycardia and my blood pressure continued to climb. I, I was in rough shape. While on my way to x-ray the doctor shouted “where are you going with her? I canceled the x-ray.” I was feeling relieved and waited for him to tell me I had an infect and he was going to send me home. I didn’t get the news I wanted. With caring eyes he told me “the d-dimer came back glaringly positive we need to get you to CT ASAP. He quickly explained that the contrast die could prove deadly but the benefits out weighed the risk. I signed my name and into the scanner I went. They said it would take about 90 minutes for my results to come back.

I watched the clock and counted down the minutes. I could hear the phone ring, the doctor picked it up and said “shit! You have to be kidding, you are not!” Code blue was sounded and I heard a rush of feet come towards me. Within seconds every available hand was in he ER. He took my hand and said, “I am sorry AmandaJean you have a blood clot in your left lung that is blocking the main valve to your heart and your lung sacs have ruptured. Your body is not getting the oxygen it needs and you dear are going to be staying with us for a while.” My brain couldn’t comprehend how dire the situation was. My blood pressure went above 210, I told the nurse I felt woozy, one said it was just the pain meds, another looked at the monitors and said “the fuck it is, she is having a stroke,” he hit the panic button.

Clot busters were shot into my chest, thrombolytics and other medications were being pumped into both arms. I was alone, alone and fighting for my life. The ER doctor walked next to my bed as they were bringing me to the elevator bay. We stopped, he said AmandaJean do you know what’s down that hall? No I said. The morgue, I should be putting you on a slab instead of in a hospital bed. If you had been five minutes later your story would have been different, never ever forget that.
GoRed 2014
It took a few days for the gravity of what I had survived to sink in. Friends came and visited me, my parents and than husband stood by my side. My life became a series of injections, INR checks, scans, nerotherapy sessions and doctor visits. I was alive and that is what mattered. Almost dying 5 days before your birthday steals your innocence and changes your perspective on life.

I didn’t just survived, I thrived. The ultimate gift was given to me, not many people get a second go around. I treasure every moment of every day, because I know that if I were five minutes late my story would have ended with my ashes in an urn. Survivors rarely talk about the guilt that they feel. I walk this earth with a scarlet letter glued to my head and people tell me that I shouldn’t have a bad day, because I survived the worst day possible.

Yet in the quiet moments I feel guilty that I survived. In the past five years I have said goodbye to more friends than one soul can handle. I survived only to watch my son slip away, I took a seat at Adam’s funeral, wrote a eulogy for Connor, only to follow-up a few years later with a eulogy for Charlie, said a tearful thank you to Dr. Delahaunty, and held my friend Jilliann’s hand as we said goodbye to Trinity. I have been surrounded by so much death and heart ache. I can’t make heads or tails out of who lives and who dies, God definitely has the upper hand on that one.
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Hands I’ve got two and my knees are worn from praying. My scars are healed, my body is somewhat back to normal, yet my emotional scars remain. Emotional wounds are he hardest wounds to heal. They slowly disappear with time. Anger was replaced with hope and that hope gave me the strength to make a difference. The guilt it is a reminder that four people had to die so I could be the one out of five who survived. I live each day of this crazy life for them, its the only thing I can do to honor those who went to soon. I vowed to spend my days advocating for those who no longer can and that they would be more than their deaths. Their stories deserve to be told. In one sheer moment of disaster I found my passion. I found that I had a voice and that I had the strength to stand up for myself. I signed my name on the dotted line and became a plaintiff in a product liability lawsuit against Merck.
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The Nuva Ring took a lot of things away from me and on the same coin it gave me a life that even I couldn’t have imagine for myself. It takes a lot of guts to put yourself out there and share the most vulnerable moments of your life. Sharing my journey allows me to educate the public about the dangerous side affects of hormonal contraceptive. Sharing my story has allowed me to shape the view points of politicians and to propel heart healthy policies forward. I owe a lot to the American Heart Association, they took me under their wings and gave me a platform. That platform has allowed me to grow and come into my own as a survivor. I am not ashamed to say I had a Pulmonary Embolism and Stroke, I am more than those events, I am more than a survivor, I am and will always be a small town girl who set out to change the world.
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The past five years have been a beautiful disaster and I am proud to claim it as my own. Because of quick action and research my life was saved. Every day the American Heart Association gives funds and encourages researches to tread unknown waters. Without the AHA we would not have CPR or advances in heart surgery, early stroke and heart attack detection. Research is why. Advocacy is why. Life is why. Second Chance is why. Without the AHA there would be no why in this world and we would have no hope for a heart healthy tomorrow.

I am incredibly thankful to my Woodwind’s care team, without them I never would have gotten to experience pregnancy followed by loss, then divorce, a little adventure followed by a whole lot of love and mostly without them I never would have gotten the chance to hold my niece. Without them my story would have ended at 26. Instead I got five beautiful borrowed years on this earth and I plan on borrowing a few more. Because life, its only just begun.common thread

{American Heart Association} _____________ is why.

The American Heart Association unveiled there new campaign earlier in the summer. The campaign is simple yet powerful. “Tell us your why.” Today I attended the American Heart Association’s “You’re The Cure Advocacy Summit” and one of the activities was to tell our “why.” We were given t-shirts and markers to write our why. I had so many reasons for my why yet only one would fit on the t-shirt.
2nd chance

2nd Chance is why.

On October 22, 2009 I got an early birthday present. It did not come in a box wrapped in pretty paper with a bow. It came on the heals of disaster, my future it looked bleak, but in one sheer moment I realized that I was still here. I was alive, thou in extreme pain and a little worse for wear, I was a live. I got LIFE for my 27th birthday. That is the greatest gift anyone could ever receive. A second chance to take on the world, to love, to laugh, to explore, but mostly a second chance to live life the way it is meant to be lived. I have been living on borrowed time, the good Lord above has given me five beautiful years and I plan on borrowing a few more. I am not done living. My life, it has only just begun.

tent5

Photo by Stephanie Ryan Photography

Sophia is why.

So many young women have died from pulmonary embolisms, strokes, and heart disease. Those women were robbed of becoming Aunts and Mothers. I got a second chance and in that chance I was able to hold my buddy in my arms. Nothing brings me more joy than being an aunt. I love this little girl with all of my surviving heart and I will continue to fight for her healthy tomorrow.

pete and me

My Father is why.

12 years ago my father was only 50 years old when he was rushed to Saint Mary’s Hospital in Rochester Minnesota. He was dying, his heart was in Ventricular Fibrillation and Congestive Heart Failure. It didn’t look good and he was fighting for what little life he had left. Death, it was the only possibility. Yet with the expertise of the Mayo doctor’s he walked out of that hospital two weeks later. Yes, he walked out under his own power two weeks later. My father got a second chance at life. In the past 12 years he got a chance to see me graduate from college, a chance to walk me down the isle, and a chance to be the rock I needed when I was recovering from my PE and stroke. But mostly he will get to stand by my side as our plane touches down in Cambodia and watch me meet my child for the very first time.

Emma is why.

Emma Beaulieu was the first infant in Minnesota to receive a heart transplant. She was three months old when she got her new heart and sadly she passed away three years later due to complications of the common cold. Emma is why my family has been involved with the American Heart Association. Because someone dared to make a difference, she was given three years to live. Some may say that was a waste. I beg to differ, because of what they learned from Emma, thousands of children have been saved. Congenital Heart defects are no longer death sentences, they are mere stumbling blocks, and survival rates continue to sky rock it. All because of one little girl who went first.

Bazile is why.

My extremely great grand father Bazile Hudon Beaulieu was a voyager who sailed across the Atlantic, through the great lakes, and landed on the shores of Minnesota. He founded this great state that I call home. Its only fitting to name my future child after him. In her own right she is like a little voyager, crossing the globe to find her home in my arms. Bazile is out there and I cannot wait until the day I get on that plane and bring her home. Bazile is my why, I want her to grow up in a healthy world free of heart disease and stroke. Mostly I want her to grow up in a world where women are no longer being harmed by their hormonal contraceptives. I will be damned if Bazile ever has to endure my fate. Bazile is getting one hell of a fighter to call Mom. I will fight for her until my last breath.

GoRed 2014

TOMORROW is why.

I want to have a billion more tomorrows. A billion chances at seeing the sunrise and set. I want a billion nights under star filled skies and a billion bon fires by the shore. I want a tomorrow. I want to get married again. I want to build a tiny home (I am obsessed with them), have a family, travel the world, and mostly I want to secure a healthy tomorrow for all of us. That is my wish that every single one of us will have a billion tomorrows. Life is so uncertain and your tomorrows can be ripped from you in a blink of an eye. I am going to focus on living in the moment and not waste a precious drop of sweet sweet time.

{Women’s Health} Birth Control: Heroine or Foe?

Birth controlAll we are hearing about is the positive stories. About how birth control has revolutionized and changed the lives of women. What about the other side of the coin? Is it really as great as they claim? Is it really a miracle pill? An article published in Women’s Health magazine states that there are 7 benefits besides the obvious. http://www.womenshealthmag.com/health/birth-control-benefits I was first put on the pill in the spring of 2005 to regulate my monthly cycle. I had suffered years of (sorry over share) heavy bleeding and extremely short periods. The hormones in the pill didn’t seem to help and the doctor suggested that I try the Ortho Evra patch, I was in love and it worked. It worked so well that I used the patch from August 2005 to December of 2008. The bad part about the patch was that it hurt like hell when you pulled it off and it left glue residue behind. Which I racked up as minor annoyances and focused on the benefits.

The benefit was that the patch made my pre-menopausal body into the body of a normal 20 something. In December 2008 I got brave and asked about the Nuva ring, since I was planning on having kids within the next 3 years the doctor thought it would be a great option. So I gave it a whirl and for the most part it did its job. Up until October 2009 I was a believer, I thought the Nuva Ring was a gift from the heavens, until the moment I found myself standing at death’s door.

On October 22, 2009 the Nuva Ring almost took my life. I was admitted to the ER with an oxygen level of 40% and my heart was in sinus tachycardia, I was fading fast and the ER dr paused and asked “are you on birth control?” I said yes and he ordered a d-dime test which lead to a CT scan that revealed the massive blood clot that was stuck in the main valve leading from my left long to my heart and the lower half of my left lung had collapsed. As soon as the clot was found the life saving efforts began, I ended up having a stroke right in the ER, it’s probably the best place to be if you are having a stroke. I was only 26 and this, this whole thing happened 5 days before my 27th birthday. I spent more days in the hospital than I care to count and it took me 1 year to recover fully. My life became a cycle of lovenox injections, INR checks, pulmonology visits, CT scan, blood tests, therapy, and a mountain of medical debt. On the bright side I got pregnant 6 months after my PE/Stroke, it wasn’t ideal and I was considered a very high risk, sadly that joy was short-lived and my son left this world before his feet even touched the ground. After his death I learned that he will be the one and only child I will carry.

It took me even longer to come to terms with the fact I will never be able to have a child of my own. I spent thousands of dollars on 2nd, 3rd, 4th and 5th opinions, at the end of the day the facts were still the same. I made a choice, I put faith in our government and I believed that I was doing the best thing for my health, in the end my hormonal contraceptive took my health and left me infertile. My body no longer makes the hormones it so desperately needs and because of the blood clot I can never be on hormonal contraceptives of hormone therapy again. Nuva Ring took my ability to carry a child away from me and for that I will no longer be able to say that birth control revolutionized woman’s health.

Recent studies have shown that todays birth control pills may double a woman’s risk of blood clots, pulmonary embolism, and strokes. According to a WebMD article published in October 2011,

Being on the newest kinds of pills, which contain the progestin hormones drospirenone, desogestrel, or gestodene along with estrogen, doubled the risk again, making it six to seven times as high as women who weren’t using hormonal forms of birth control. Still, on average, about 10 out of 10,000 women taking newer kinds of birth control pills had venous thromboembolism in a year’s time. Although that’s a serious increase, it is still only half as high as the risk of blood clots seen in women who are pregnant or who have recently had a baby.

Per drugwatch.com, third and fourth-generation progestin have been linked to increased risk of deep vein thrombosis (DVT) (blood clots) and pulmonary embolism (PE) (blood clots in the lungs). In addition, the risk of heart attack and stroke is also increased. These complications can lead to death. Other popular contraceptives like Orthra Evra and Yaz/Yasmin also have been associated with blood clot risks. Yaz/Yasmin, which uses a fourth-generation progestin, has been associated with a 74 percent increase of developing blood clots.

Whoa that’s some really great information and is truly something women should know about. Over the past 5 years I have crisscrossed the country speaking to and meeting a lot of awesome ladies. Many have told me that they never knew their birth control carried a risk of blood clots and even in rare cases death. It hurts my soul that women do not know about the risk of blood clots, I too was blinded and had no clue that my birth control could cause blood clots, that was until I saw the fluorescent lights of the ER bay. In that sheer moment of disaster my passion was born, my mission became clear and I set out to take on the world. I lawyered up and found my voice.

My life will never be the same again. I no longer dream of looking at my own flesh and blood. Instead I dream of my “gotcha day” and know that somewhere in Asia there is a child waiting for me, somehow that makes this whole situation all right.

I ask you to do only one thing, the next time you insert the ring, pop the pill, or pony up for the shot, think of me and all of my survivor sisters. Just maybe in that moment you will remember to ask your doctor “so what are my risks, you know of possibly developing a blood clot?

To Learn More Please visit:

Drug Watch: http://www.drugwatch.com/nuvaring/

WebMD: http://www.webmd.com/sex/birth-control/news/20111026/newer-birth-control-pills-may-double-blood-clot-risk

http://www.npr.org/blogs/health/2014/02/09/273145327/nuvaring-contraceptive-settlement-leaves-women-weighing-risks

Cosmopolitan Magazine: http://www.cosmopolitan.com/celebrity/exclusive/blood-clots-young-women

Saint Louis Today: http://www.stltoday.com/business/local/fda-approved-nuvaring-despite-experts-safety-concerns/article_9994f863-f5cb-58d7-b33a-ce519e3dd486.html

Women’s Health Magazine: http://www.womenshealthmag.com/health/nuvaring

http://www.huffingtonpost.com/2013/12/18/nuvaring-blood-clots_n_4461429.html