A year has almost passed since a bright blue plus sign appeared. I sat on the floor staring at it in disbelief. It was a good 30 minutes before it sunk in that the plus sign was for me and that a baby was on board. I was given a second chance at motherhood and Jay would be a first time father.
In the six weeks that followed we started picking out names and nursery themes. Jay looked up baby gear on the Internet and spoke softly to my stomach. Jay was attached the instant I told him and for me I was slowly falling in love with a group of cells. My Dad started making the mobile just like he did for Luica, birds, I wanted birds for this baby. He obliged and went to work. My parents were excited to have a fifth grandchild to spoil and love on. Their excitement helped mine grow. With a little luck and a lot of faith everything would be all right.
If you are familiar with child loss then you know all pregnancies that follow are considered high risk and there is a viability scan around 6/7weeks. This scan terrified me and I dreaded the day of our appointment. Perinatal doctors had failed me before, the fear and anxiety that I had was raw and real. The ultrasound would be my enemy, it could either make or break this pregnancy. An empty sac appeared on the screen. At almost 7weeks a fetal pole should have been inside beating away.
I carried the little sac that couldn’t for 12 weeks. The Doctor and I called it, a plan was put in place and a D&C was scheduled for July 7, 2015. Jay couldn’t miss work so my Mama took his place. I had the sweetest nurses. My Nurse Ann made sure I knew what and where baby land was, she held my hand and gave me a hug as I headed off to surgery. A few days after surgery I got a call that my pregnancy contents had been cremated and sprinkled in Lake Wood Cemetery’s baby land, our baby is resting with a view of Lake Calhoun and I can walk over and visit if I chose to. Weeks later the pathology report would show that it was more than just a sac, it was a partial molar pregnancy, two sperm fertilized one egg and our baby had more chromosomes than it needed.
Unlike Lucia, Baby E gave me a why and that was all I needed, I was able to be a peace with the leaving. Baby E has given me hope that I to will have a baby one day, it’s just rainbows are elusive and they are hard to catch. I have faith that my turn is just around the corner and that one day I will get to carry a baby to term. For Motherhood is a job that I desperately want.
I walked past the shelves of neatly organized Mother’s Day cards and past banners reminding me that it was on May 8th. Commercials on the radio quickly tell me I need to hurry in and by my Mother a gift, it seems mothers like strands of pearls not fancy brunch dates. Or so that is what the owner of a jewelry store thinks. I change the radio every time the ads come on and I look to the ground as I bust past the cards, for Mother’s Day is not for me.
Mother’s Day brings on a slew of emotions and serves as a reminder that my babies are not will me. Last year on Mother’s Day a bright blue plus sign told me I was pregnant. Excitement was replaced with an unsettled fear and I tried to show joy, it was hard. I had been on this road before and my heart it did not want to get attached to the life that was inside. My heart she was right, the ultrasound revealed an empty sac, two sperm fertilized one egg they said. To many chromosomes and we said goodbye to Baby E on 7/7/15.
As a Mother I have faith that some how Baby E found his/her big brother in heaven. That Lucia and Baby E are together causing trouble and watching over me. Lucia would be six this year and Baby E would have been almost four months old. My heart aches for my children, I got cheated out of my son and who Baby E was meant to be.
Right now I would have a first grader on my hands, I wonder what he would look like, would he have my blue eyes and curly hair or would he have the Jewish features of his father? Mostly I wonder what his voice and laughter would sound like. If he would come running to me yelling “mommy mommy mommy” with a bug in his hands all covered in dirt. Or if he would be the unadventurous type who quietly watched the world around him. One day I will see my son, faith tells me that I will and when I do his voice will be the sweetest sound my soul has ever heard.
Baby E would have been almost 4 months. I wonder if Baby E would have been a girl or a boy. Jay and I were secretly hoping for a girl, we really wanted a daughter, we would have gladly taken a boy too. I wonder if Baby E would have slept through the night or kept us awake, what his/her gummy smile would look like, and if they would have had a lot of hair or been a baldy. If they would have been a good eater or a finicky one. I wonder if he/she would have felt heavy in my arms and the softness of their body against my chest. One day I will see Baby E and hold him or her in my arms.
My babies you will always be. There are no cards for Mothers like me. We as a society do not like to talk about Mothers who have lost children. It’s like we are a dirty little secret and we are looked upon as inadequate. We are STILL mothers. We did not chose to loose our children, God, he made that choice for us. Maybe God knows it takes one hell of a woman to be the mother of an angel. My children died, plain and simple they are gone, and that fact does not take away my Motherhood card. My heart aches and it wonders, it looks on at you and thinks “one day that will be me, one day that WILL be me.”
Rainbows are special, they elude us, but if you are lucky and you manage to catch one hold on to it tightly. For there are many women who would gladly chase that rainbow until it lays heavy in her arms.
What can I say, I am a Minnesota girl through and through. I have a deep deep love for all things tasty. Chocolate isn’t my cup of tea, it helps that I am allergic to it, but girl I can get down with a slice of lemon cake or an apple pie. Preferably pie, I’m not a big cake fan, but if cake is in the room chances are it will find its way into my belly.
Bacon it doesn’t stand a chance! I am in LOVE with bacon. It was a big deal when I said to Jay “I love you more than bacon!” When I am not with bacon, I am with cheese. Wisconsin’s greatest gift to the human race was CHEESE!!! Fresh cheese is the best cheese, it’s even better when battered and fried, cheese curds are literally a girls best friend. Who needs dimonds when you have cheese curds!
We need to get real! I mean like really real here folks, thou my love for bacon and cheese is strong, it is starting to show on my ass, my thighs, and every where else it can accumulate. I am starting to feel it in my knees and I have to squeeze myself into my pants. I like wearing pants that don’t squeeze my innards and allow me to eat food while they are buttoned and or snapped up. I also like shirts that leave a little wiggle room. My dresses are more forgiving thou they to are getting a little tight around the ass region.
Guys and Gals, shopping isn’t AJ’s thing! Yes I am female and yes I just admitted that shopping isn’t my thing. Sorry boys I know I am a catch for that very reason, but I am already happily taken. Anyhoo back to the wardrobe, something has to give I love my current clothes and I want them to love me back. So this only means one thing, “AJ needs to make a life change.” As in clean up her eating and get her ass moving like a boss.
I should know a thing or two about weight loss and healthy living. My first job out of college was with Jenny Craig as a Program Director, I sold the program and counseled clients along their journey. It was fun, but if you know me and you know me well I HATE prepackaged microwave meals! Like hate them, they never look like the picture on the box, they are loaded with salt, and not to mention the chemicals in the plastic tray that leak into your food during the heating processes. Yes, I know I’ve put way to much thought into that. Anyways I did not want a plan that requires me to live out of my microwave or drink shakes. I wanted something that would fit into my life and not fit my life into a diet.
Enter advice from the world’s greatest best friend Sherri, she said why not try “weight watchers!” Hmmm I instantly pictured little old ladies in swim caps doing water aerobics while counting points. Then there is Oprah, she’s always yelling “I LOVE BREAD” and urging us to give weight watchers a try. I did some research and took Sherri’s advice, I signed myself right on up for the program. $20.00 a month isn’t so bad plus there is a handy dandy ap that synchs with my Fitbit. Bonus Jay is also going to be working the WW plan too. It’s nice to have your BFF and life partner on board, otherwise this journey would be boring.
The Weight Watchers app is pretty simple to use and was easy to setup. My goal is to lose 34 pounds by my 34th birthday. Which is 10/27/2016, I figure slow and steady will win this race. Best part is I do not have to deprive myself of anything. I still get to have my beloved bacon and cheese. Everything has a point value, foods higher in sugar/saturated fat and sodium have higher point values. Which helps steer you towards healthier choices that will eventually result in drops on the scale.
The Weight Watchers Beyond the Scale program also focuses on activity and non-scale victories. I love that my Fitbit synchs with the weight watchers app. I earn extra points to use during the week based on my activity level. AJ don’t run unless she is being chased but these shoes were made for walking and that’s just what they’ll do. Non-scale victories can be as small as turning down Deseret or as big as finally fitting in an airplane seat. You choose your own victories and celebrate all of your success that happens off the scale.
I have been working the program since April 2 and I can honestly say I don’t feel deprived or hungry. I am less bloated and have more energy. Thou I still need naps, naps are my jam man. Cullen is tired, tired because his legs are short and we have been going for longer walks. He really likes naps too! Below is my before photo and hopefully my after will look drastically different. I don’t want to be a skinny mini, I want to be a size healthy and feel comfortable in my own skin. Because Beauty knows no number.
Before!!!!
You can follow along on my journey as I will be sharing the tips and the tricks that I learn along the way. Besides we both know I am going to also be sharing my success and the down right funny moments of this process too! It will be fun so put on your walking shoes and come along with me!
One email told me that my settlement check had been cut and mailed out. I knew that the post office closed at 5PM, so today wasn’t going to be my ending. I got home at 5:10, breezed past my Birchbox and opened the mail box to find the all important “we missed you card.” The back of the card said the post office was open til 5:30 PM, it was 5:10, I knew I could make it and I did with 8 minutes to spare. Damn it door is locked, I show the man looking out the window my card. He opens it a crack to tell me they are closed, I explained “sir the back of the card says 5:30.” He points to the hours on the door, the door says Close 5:00 PM and 3:30 PM on Saturdays, again I pointed to what the card said. He explained he was the supervisor and they were closed. I had come so close, yet so far from being done.
I could feel the tears fighting through, I looked at the man and said “Sir, I have been waiting six years for this letter, I know waiting one more day won’t hurt, but you see Sir that letter is my closure, its a settlement check, a check I’ve been waiting six years to see. He started to notice the tear rolling down my cheek, he said “here let me look at that, I don’t normally make exceptions, just wait here ok. He closed the door and disappeared inside, he emerged a few minutes later and told me to come in. In his hand was the letter with a logo I have seen dozens of times, but today it meant it was all over, I just needed to sign and closure would finally be mine. I tearfully thanked him for making the exception, explaining he has no idea what his kindness meant to me.
The tears began to fall, I sat in the drivers seat holding the envelope in my hands, quickly realizing that my tears were staining the envelope, I figured I should probably open it. I did, never in a million years did I think I would see this day. Never in a million years did I think I would see a check. It was just this distant far away untouchable thing, that was never meant to be mine. Yet, there it was in my hands, my name was spelled correctly, its mine and mine alone. I was never in this for the money, I am humbled by what I received. The check doesn’t take away what happened or undo the past six years or bring back my son, but in some way it validates that what happened to me was wrong. Merck never had to admit wrong doing, they will not be held accountable for the deaths or thousands of injuries that the Nuva Ring caused, they simply just had to payout and walk away to operate another day.
I never signed up to get rich, I wanted to stand up for myself and to prevent this from happening to anyone else. Having your life change in seconds scars you, it changes you in ways words cannot begin to describe. If I would have known that this little plastic ring would bring me to the brink of death, I would have left it on the prescription pad and asked my doctor for something else. We as humans cannot see into the future nor can we relive the past, we are in this haze called the here and now, it holds us and comforts us, in away it protects us from the journey ahead. Because if we knew our road was going to be lined with pot holes, tears, and fear, we would stop traveling and stay just as we are. October 22, 2009 taught me more lessons than I could ever begin to explain, it taught me to fight for myself and to always listen to my body, because she will never steer me wrong. It taught me to love my friends like sisters, to cherish my family, to dance on the good days and to fight on the bad. Faith is something I always have, as long as she is at my back, I will face the wind and sail the angry seas.
Survival is a funny thing, you go through phases and it is an ever changing sea, no wave nor current is the same. There are moments where I feel guilty because I lived and someone else’s daughter died. One out of five people will survive a pulmonary embolism with infarction, one out of five is a shitty equation if you ask me. I feel guilty that I have no long term physical or cognitive side affects from my Stroke. I see other stroke survivors struggling and my heart breaks, I know why my out come was different than there’s and it kills me inside to know that if they had received TPA there outcome most likely would have been like mine. I am forever in debt to my Woodwinds care team, One question saved me, if the doctor never paused to ask “are you on a birth control,” my mom would have picked out my urn instead of my 27th Halloween themed birthday cake. Woodwinds will always have a place in my heart, because its where my second story began.
Looking back my second story has been a beautiful disaster. A disaster that is mine and mine alone, I would not trade this journey for anything in the world. On October 22, 2009 I had no idea that one moment would lead me to give a speech on the capital steps in front of members of congress. I had no idea that I would be come a You’re the Cure Advocate and lobby in Washington D.C., I had no idea that I would be a voice that would help get the MN Stroke System of Care passed and funded. I had no Idea that I would be a Go Red Spokeswoman who shined on billboards and a public service announcement. Money doesn’t matter, using your story to make a difference is how you fight back, fighting back is what matters. Merck may never have to admit their wrong doing, but I can tell the world what happened to me, through my story I can save another woman’s life. I can get her to think about her heart health, her risks, and get her to ask her doctor questions, questions that will lead to answers that will improve her quality of care and ultimately her quality of life.
I am who I am because of Merck and the Nuva Ring, they will always be apart of me. In one moment of disaster I found my purpose and I am never leaving my soap box. But the thing is behind every thriving survivor is an amazing village of supporters. I am so grateful to have the worlds greatest best friends, Sherri, Jilliann, Lisa, and Tara never left my side, on the bad days they picked me up and pushed me to go a little bit further. My parents, they are the rock in which I build my house upon, they gave me strength when I had none. My Mama always looked over my INR numbers and medication lists to make sure the doctors were treating me correctly. My Dad and I are like two little old men sitting on a porch discussing chest pain and the days gone by where we could run and fight to live another day. Now we just sit in our rockers and watch the world go by, running is for the young folks and well neither of us would win a fight. My dad has rescued me from more tight spots than I can count, he’s never seen the ocean, he made damn sure that I traveled the globe not once but twice, so I am paying it forward, I am taking my Dad to the seashore, I want him to feel the mist and to stand on the edge of the world.
I got a chance to be the Auntie that I was always meant to be. Sophia and Jack could be learning about me from old photos and their mama’s memories. Because of early intervention and research their Auntie was saved, they get to hold her hand. The day I became an Auntie is the day my heart healed, Sophia and I have been bonded since day one, little Jack is learning all about super Auntie. Those two have my heart and there will always be a surprise for them in my purse. Sophia and Jack are why, there tomorrows are what I am fighting for. Both of them deserve to grow up in a world free of heart disease and stroke.
Second Chances are far from perfect. Lucia was to be the sun after my storm. Instead God had other plans and just as before the winds of change blew through and I had to sail the waves of grief. Losing Lucia allowed me to put myself first, I called it quits and walked out of my loveless marriage. Divorce was not an end, it was merely a beginning. I traded the ex-husband in for a little muppet like dog, which is one of the best decisions I’ve ever made. You can never go wrong with a dog. On a hot August day a small white dog with a big gray nose rescued a human and he never looked back. Cullen became the glue that kept me together, as long as I had him at my side, I was never alone. Together we took on uptown, strolled through the parks and picked up glass on the beach. Cullen has provided me with endless laughter, he makes the bad days brighter and life is more fun with a muppet like dog at my side. Cullen was the love that my heart needed.
Love found its way in, Charlie will always be apart of me, I think that in away Charlie knew that he was not my forever, only a mere moment. He allowed me to be, to heal, and to find myself. Charlie allowed me to believe in love again and when he died, my heart broke. Yet I knew Charlie wanted me to carry on with living and not be stuck in the land of what if. I had to break before I could shine. Jay fell into my in box at the perfect time, my heart it was ready to love again. Jay’s love was the glue that my heart needed. With each date I began to fall for him. In Jay I found home, he has my heart and I have his. Jay joined me on the tail end of the Nuva Ring law suit journey, I am glad that he is at the end, because together we can turn the page and walk away to start a new chapter. Because this is only the beginning the best is yet to come.
There were moments where I wanted to throw in the towel and give up this fight. But then I looked in the mirror, I faced a woman who lived through the worst day possible. She never thought the birth control she took would almost take her life. She was weary and weathered, yet she still faced the sun. Her womb carried children she never met, yet she still has faith that one day she will hold a baby in her arms. Her heart was broken and jaded, yet she still manages to love. Little did she know, she just had to break before I could shine. I am living on borrowed time, my life it is a beautiful disaster and each day I am standing above ground means that the best is yet to come.
Merck you may have won this battle, but the war, it rages on. I will not give up until there are none, because no woman deserves to fight alone.
I of all people know that with trial comes triumph. We cannot have the good moments without the bad. It’s how the world turns, no one’s life is meant to be perfect. A perfect life is a life not well lived. Mistakes are lessons and trials are our teachers, with each trial we gain strength.
32, was a gosh darn great year. I have finally found my stride and I’ve come to terms with the fact that “life goes on.” In February I graced billboards, bus stop posters, and the TV screen raising awareness for women’s heart health. Being part of the Go Red Campaign was a privilege and an honor, I got to meet some amazing ladies that I now call my friends.
From billboard to DC, never in my wildest dreams did I think I would be giving a speach on the Capital Steps next to Nancy Pelosi and other members of congress. The American Heart Asssociation, gave me the opportunity to share my health insurance journey with the nation. I got to thank members of congress for securing my healthy tomorrow.
Life, it goes on and love, it finds a way in. Never in a million years did I think year 32 would be the year I fell in love, again. I let myself fall, fall for a man who loves me for me and accepts that our life isn’t meant to be perfect.
On Mother’s Day Jay and I found out that we were expecting. I was terrified the impossible just became possible. Jay was excited, he spent time looking up baby items online, we started to plan out our nursery, picked out named, and I slowly let myself love our baby. Only to have my dream dashed.
Our baby, baby E was not meant to be. Right now I should be 6.5 month pregnant, I’m not, our little sac never formed a fetal pole. Two sperms, they said fertilized the egg and a pathology report said it was a partial molar pregnancy. It just wasn’t meant to be, someone needed a baby more than we did, motherhood was so close yet eluded me in year 32. I have faith that my 3rd and Jay’s second pregnancy will be the charm, mother is a job that I desperately want.
In July it became official I was no longer a single girl, I was engaged, I belonged to someone and that is what I’ve always dreamed of, I wanted to belong and not be alone.
My nephew Jack arrived in July and I fell in love all over again, he has his auntie wrapped around his little finger. Sophia is getting bigger by the day, she is turning into a sassy little lady. I love those two littles with all of my heart, the greatest title I have is Auntie, there is no better job than that.
32, was my teacher, it taught me to never lose faith and that if I believe in myself anything is possible. I will walk away from 32 knowing that my body is still capable of creating life, my heart she may be weak, but she beats on, and that I am more than a dollar sign. Merck will always be apart of me, year 32 is the end of the Nuvaring’s chapter, life it goes on.
With my muppet like dog by my side, my life quietly fell into place. I have a man that I adore, I got a new job that I love, and I’ve got hope for a very bright 33.
If I had known what was going to happen today I would never have gotten out of bed. But you being the optimist got up, you put your cranberry colored flats on, left a half eaten muffin on the counter, guzzled some coffee, and drove off to work. You just started a new job, a new challenge always gets us excited you were knee deep in learning the ins and outs of repossessions and collections. Because you were knee deep in lets face it we were trying to impress our new boss, so we brushed off our gut feeling that something was wrong.
Since Monday you brushed away the sick feeling, the raging pain, fever, shortness of breath, and everything else you did not have time for. You made it to the Sun Ray shopping center, you started to feel an annoying stab in your lugs, you being you ignored this. The situation did not improve and by the time you reached Saint Paul you could barely breath. Yet for some reason you thought you’d be all right, truth is you were not all right. Something in you made you take the Lexinton Parkway exit and head back to Woodbury.
Turning around was the best decision you made that day. You contemplated going home, the voice in your head said go to the ER, thank God you listen to it. Within an hour you were told that your situation looked bleak, your chance of walking out of there alive was slim. Your oxygen level was below 50%, a massive clot was blocking the main valve to your heart, and not to mention a few of your lung sacks exploded, and to top it off you had a stroke. You my dear almost died five days before our golden birthday.
Year 26 was to be the end of your story, but something in you decided “today is not the day” and you reached down to grab the last shred of hope you had and fought back. You AJ got the best birthday present. It did not come in a box with a fancy bow nor did it have a pretty gift tag, you got a second chance, you got life. There is no greater gift than the gift of life. Smile young lady, you are the 1 out of 5 who got to walk away and live another day.”
Life, it goes on.
There are not enough words in the English language to describe how amazing my survivor journey has been. I have gotten to do a lot of incredible things that would not have been possible without the fast action of the Woodwinds ER team, nurses and staff. I am alive today because they looked past the norm and dug deeper to find out why this healthy young woman could no longer breath.
The clot was found because the Doctor took the time to ask me five little words: “are you on birth control?” Those five words saved my life, because I said yes a d-dimer was order, that test lead to the CT scan that found the massive clot in my left lung. I have no long term cognitive or physical side affects from my stroke because I received the life saving clot busters, they made all the difference and allowed me to walk out of that hospital on my own.
Ever since that day I set out into this world to make sure no other woman had to endure my fate, I have succeeded in this. My story has educated and saved countless lives. “Oh the places a birth control related P.E. and Stroke will take you!” From billboard, to public service announcement, to the steps of the United States Capital building, my story has been heard loud and clear, and my struggles are paving the way so that others can know the sign of blood clots and stroke.
I do not consider myself a victim and I refuse to live in the Nuvaring’s shadow, I am a survivor and Merck can never take that away from me. It doesn’t matter that Merck does not have to accept responsibility for my injury, I know that there product did this me. In away that moment of disaster catapulted me into an amazing second chance that is filled with passion and purpose. Nuvaring almost took my life, it will not take my second chance away from me, that is mine and mine alone.
Life, it goes on. I became a mama to a baby in heaven not once but twice. I got divorced, rented my first apartment ever, adopted a dog, quit my job without a plan, only to find a job that I hands down love, and I managed to find MYSELF. I got to watch my niece take her first steps, hear her little voice yell “AUNTIE” excitedly, and mostly I get to bond with her as I paint her little toes pretty colors. I’ve gotten to reconnect with my parents through crazy little road trips and spent my summers collecting glass on the beach. I fell love only to fall out of it. I miss Charlie every day, but I have to believe that he somehow lead me to Jay, in Jay I found home and soon I will be his wife. I got to meet and hold my nephew Jack, his sweet little chubby cheeks will melt your heart.
If it were not for the Woodwinds ER staff and medical research the fore mentioned would not have been possible. My niece and nephew would be learning about me through photos. Jay and Charlie would never of had the chance to fall in love with me. There would have been no participating in the Go Red campaign, there would have been no participating in lobby days or giving a speech on the capital steps, and this blog would have ceased on 10/22/2009. My Mama would have picked out my urn instead of my 27th Halloween themed birthday cake, and my story would have ended as silently as it started. I am alive today because of RESEARCH, research is what saved me, and I will support medical research for as long as I am standing. Because if you need proof, its right here, I am proof that it does and will continue to save lives.
Words cannot express how thankful I am for the doctors and nurses at WoodWinds Health Campus, that place is more than a hospital, it is where my second story begins and for that I am grateful, grateful that because of the care I received, I got to walk out of the front instead of being rolled out of the back door.
To learn more about Pulmonary Embolisms and Women’s Heart Health Please visit the following sites:
“What counts in life in not the mere fact that we have lived. It is what Difference we have made to the lives of others that will determine the significance of the life we have led.”
-Nelson Mandela
I am Erika Langhart, you are Erika, your daughter, your granddaughter, your niece, and your wife are all Erika. Erika was a vibrant young woman who endured my fate. The difference between her and I, is that I got to live another day. Erika wanted nothing more than to live and to prosper in this world. Yet her light was snuffed out, she died due to complications caused by the third generation progesterone in the Nuvaring. To this day the FDA still claims that the Nuvaring is safe for women to use.
Erika, if she could speak would tell you that it is not safe. I am not Erika, but I can tell you that it is not safe and that there is nothing good about the Nuvaring. It will blindly launch you into a disaster that will become your every day life. Erika is only the tip of the iceberg. Many more women followed her foot steps, some went before her and some went after her. There names deserve to be remembered, their lives deserve merit, and mostly their deaths deserve to be more than deaths.
Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey, they did not want to die and they should not have lost their lives. Their deaths could have been prevented, if only they had been thoroughly educated about the dangerous side affects of the Nuvaring. That is what gets the most, their deaths could have been prevented. If only they had known about the risks, they would all still be alive today. I have no doubt that all of them would join me in this fight. That they would use their voices to educate the women in their lives, in their communities, and states about the adverse affects of hormonal contraceptives.
Doctors will tell you that the occurrence of a blood clot is rare. I am living and breathing proof that rare happens. It happens every single day all over this world. The Nuvaring doesn’t give a shit if you are rich or poor, the color of your skin, or your age, its just a thing and it will strike when you least expect it. I woke up at 5:50 AM, I was a healthy vibrant young woman and by 7:30 AM I was fighting for every breath I took. Rare, rare happened on October 22, 2009 five days before my 27th birthday. The only reason I am alive is because the ER doctor paused and asked me if I was on a birth control. That one question lead to a D-Dimer test and that Test lead to the scan that revealed the massive clot in my lung. I was diagnosed with a Massive Pulmonary Embolism with Infarction, low oxygen, and sinus tachycardia. An if that wasn’t enough, to top it off I had a stroke too. In layman’s terms I was a hot mess and my future was uncertain.
1 out of 5 will survive a pulmonary embolism. You can do the math, that means four people had to die so I could be the one would lived to the tale. No one should have to go through that, it is terrifying, no one should have to wonder “is this my last breath.” I did the only thing I could, my daddy always told me “when all else fails, pray.” Pray, is exactly what I did and I needed to put the why behind the how. I needed to know why this happened to me. It was proven that my pulmonary embolism was caused by the third generation progesterone in the Nuvaring. My birth control, almost took my life. I was almost Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey. But for some unknown reason, I was spared, I lived to fight another day and because of that I will not give up. I will not rest until the Nuvaring is removed from the market.
I will be damned if another woman endures my fate. My years are borrowed and in my heart I know that Angela, Brittany, Dana, Erika, Jackie, Julia, LaMonica, and Lindsey would gladly trade places with me, they can’t so I chose to fight for the tomorrows they never got to see.
To learn more about the Women who lost their lives and about the continued fight to educate women on the adverse side affects of the Nuvaring, please visit:http://nuvaringtruth.com/
When Lucia died I was never given the option for genetic testing, instead I had to literally demand it. Many thousands of dollars later we learned that he was genetically and chromosomally perfect. There was no why or a how behind his death. He just simply stopped being and for some strange reason that news brought me comfort.
Fast forward five years, this time around it didn’t really cross my mind to ask for testing. I figured an empty gestational sac is simply just empty. To my surprise the doctor emailed to tell me that the pathology results were in. I thought to my self “Pathology” results? I don’t remember them mentioning anything about testing.”
The proof was in the testing. The little sac that couldn’t was more than just a little sac. It was a sac filled to the brim with answers. A human cannot have 69 chromosomes, we only need 43, no less and no more, only 43 will do. I wondered to myself “How the heck does one embryo get 63 chromosomes? I must be broken or Jay is broken, someone must be broken?” I read a little further and the answer to my question was in the text “two sperm fertilized one egg.” It happens in every 1 out of 3,000 pregnancies and the likelihood of it reoccurring again is very slim.
The true medical term for this is: partial hydatidiform mole or a partial molar pregnancy, which occurs when the egg receives two sets of chromosomes from the father, usually because the egg has been fertilized by two sperm instead of one. The egg now has 69 chromosomes, instead of the normal 46. 69 chromosomes means no baby and your body will recognize this and the miscarriage process will start. That is if your body is smart, mine is not that smart……..
The embryo had only partially developed and a cluster of grape-like cysts, which is known as a hydatidiform mole began to grow and take over. Now the waiting begins and the lab work starts. The doctor is going to follow me until my HCG level returns to zero. If it does not reach zero it means that there is abnormal tissue growing and I will have to under go chemotherapy to kill it off. That in itself does not sound fun and it is a road I would like to avoid. In the mean time I am keeping everything crossed that my HCG will return to zero. We want a big fat zero!! Come on zero, I want you and need you in my life!
Wait and see land is a terrible place to be and I want out! I have many trips to the lab in my future and will have my blood drawn every few days until my level reaches zero. I am praying that on Monday my first blood draw will be a big fat zero. Jay and I want to move on and put our little ball of 69 chromosomes behind us.
Nothing is every easy, all of the weird medical shit happens to me. Just once I would like a break from the office visits and medical bills. Leave it to me to be the 1 out of 3,000. In away it is cool that medical science has come so far that they can tell two sperm fertilized one egg. Like that is crazy cool when you think about it. Gosh darn I love science!
My bright side in this situation is this: “I CAN get pregnant! My uterus may be beat up and bruised, but she sure as hell ain’t broke! The best part is: I am not going through this alone, I have an amazing man who is holding my hand every step of the way. Jay is making me laugh, giving me back rubs, and taking much needed naps with me. I am so glad I have him in my life! With Jay at my side all things are possible, one day we will have a little one to call our own. Right now Jay and I are settling for the newest addition to our family a little gray kitten with a very pink nose named Griffin.
On Mother’s day I got the bright blue positive that we all hope and pray for. That little plastic test proved that my body still worked and that I was still worthy of motherhood. Little did I know, this to would be a test and I would once again have to face loss. Fate she can be kind, yet without warning she can churn the seas. At the end of May Jay and I found out that a gestational sac had developed yet it had nothing inside. There was no heart beat, no yolk, and simply no sign of life. It was not meant to be ours.
Someone else needed a baby more than Jay and I did. This, this just wasn’t our time and as Jay put it “Babes it just wasn’t CoraLeigh in there.” Yes, we secretly wanted a girl. June proved to be a test, losing a pregnancy isn’t easy and it put a strain on our relationship. Words were said, tears shed, yet we came out of it more in love than ever. My body didn’t want to let go of our little sac that couldn’t, so a D&C was scheduled and I began to pray. Pray because the last time I had one, it didn’t end so well and it left me with more scars than healthy tissue.
I picked out the expert, we talked through the procedure and he promised that he was going to do it right. On Monday I went under and he did it right. To my surprise as well as his, my uterus had hardly any scar tissue and the tare in the uterus healed perfectly. My chances of having a healthy pregnancy are as high as they can be for a pulmonary embolism/stroke survivor. I have a feeling that my third time and Jay’s second time will be the charm. I am not going to give up on motherhood just yet, this this is a dream I have always wanted.
Sometimes I look at pregnant women and think to myself “you are so darn lucky.” Most women have no idea the struggles a pulmonary embolism/stroke survivor faces in pregnancy. My world is complicated and most of us are told “no more babies.” I took that statement as a challenge and lord willing one day I will hold a baby of my own. Someone has to go first and tread the waters so others can follow. Right now medical science knows so little about hormone induced blood clots and heart issues, I think it’s time to change it. More research needs to be done and when that happens more women just like me will be able to carry babies of their own.
For now I will settle for the knowledge that my body still and does work. I am blessed to have two children in heaven, my son Lucia and a baby we never got to know. I’d like to believe that this was a test, a nudge from God to let me know I am still capable of carrying a child. The little empty sac will always be apart of me and I will always wonder who it would have been. I have no doubt that my turn is coming and that Jay and I will get to one day share a super cute baby announcement with all of you.
Five years ago when I lost my son I had a botched D&C that left my uterus with more scars than healthy tissue. They told me that because of my broken uterus I would never carry another baby. I’ve spent thousands of dollars and traveled the country looking for a specialist who would tell me otherwise. At then end of the day they all had the same answer and I had to learn how to live with it. When I turned 30 I accepted the fact that the only baby I would ever carry was in heaven and that there would be no more. This was the card I was dealt and I have to play that hand until the very end.
Surviving is only half the battle. One has to learn how to live with the unknowns and the would haves. Each night as I lay my head down I ask God to bring me a family, more than anything I want to be a mom. I want nothing more than to have a child. Every day as I walk to work I pass dozens of pregnant women, they look so happy and swollen. I want that glow and swollen body, I want to be pregnant more than anything. I wish and I pray, but at the end of the day they are just unheard wishes and prayers.
Fate she is funny. She and I have a very rocky relationship. Sometimes we get along and other times she is beating me into the ground. Lately she has been nice, I got the promotion I wanted at work, the Nuvaring lawsuit is wrapping up, and I have a man who adores my every quirk. Me more than anyone knows that with the good there comes bad. So I have been looking up at the sky waiting for it to fall, checking the ground for pot holes, and instinctively dodging curve balls that do not exist. Maybe for once fate is going to let me be and finally have a few moments in the sun.
I long for the sun and the sweet calm that arises after the storm. On Mother’s Day fate stepped in. I realized that my period was late. At first i didn’t give it a single thought and went on about my business. But then this feeling sunk in, a feeling of what if. So I gave myself a pep talk and bought a pregnancy test. I knew in my heart of hearts that it was going to be negative. I stared at it for a few moments and decided well they only way you are going to know for sure is if you pee on it, lord knows the test can’t read your mind. I took it, then set it on the sink. I continued washing my hands, I looked over and holy shit there was a bright blue plus sign. It appeared in less than 30 seconds. I immediately picked it up and dropped it on the floor. That couldn’t be right? It had to be wrong. There was no way.
There was simply no way. I sat on the floor and looked at the thing for a good 30 minutes before it sunk in that I was pregnant. Then it dawned on me that I had phone calls to make and close people to tell. I told Jay, he was excited yet terrified. My Mama was elated and I, I was fucking terrified. Terrified because being pregnant is like playing Russian roulette, it could go one way or the other. You just don’t know until that first ultra sound.
My first ultra sound did not give Jay and I answers. It left us in limbo. The gestational sac measures at 6 weeks 6 days which is spot on. However the sac was empty, we did not see a yolk or a fetal pole. The doctor she was optimistic that in a week we will most likely see a healthy little fetal pole beating away. At this moment I am preparing for the worst and hoping for the best. I want to believe the doctor, I truly do, maybe the baby is just hiding or is stubborn. I fear that this pregnancy is most likely a blighted ovum and that fate is once again playing a fucking joke on me. Maybe it is not a joke, maybe it is a test.
My HCG came back at 8434, the nurse said that was a high number. But it is also the first number they have so the Doctor doesn’t know whether it’s falling or rising. I go in for another blood draw tomorrow, we want the number to double. On Friday we have another ultrasound and I pray with every fiber in my being that we will see at a yolk if not a little fetal pole beating away. I have been down this road before and it scares the shit out of me. With Lucia I had a two-week wait and that wait was worth it, we saw his little heart beat. I just pray that Friday will hold the same out come, because I want nothing more than to meet this little one in January. I want nothing more than to hold this little one in my arms. I want to be a Mama to a baby on earth, not just a Mama to a baby in heaven.
So if you have an extra prayer to spare please send it up for this little one. If you have an extra penny in your pocket and a wish to share please wish for this little one to stay. Because I want nothing more than to see a little healthy heart beating away on Friday’s scan. I survived the unthinkable and this little one is a survivor’s dream come true. This little one proves that the impossible is possible and that miracles still exist in this world.
Have Bear Will Travel 