{Chasing Rainbows} You Were Always Meant to be an Auntie 

Children are something I have always wanted. Motherhood is an unattainable dream I have actively been chasing.

Sometimes I look up and wonder “why me?” In those moments a quiet voice whispers “why not you” and I realize that God chooses the strongest of the strong to be a mother to Angels. 

You see my children will never touch the earth, they were born to fly. My fridge does not have any artwork on display, instead my children finger paint in the sunset skies. A picture that I can only view one time before it dips into the edges of darkness. My children died before their lives even got started. My children were never meant to be mine, for an angel closed the book of life and said “to beautiful for earth.”

“During the chase for rainbows I became an Auntie” 


Auntie is a job title that I proudly hold, it’s a job that allows me to spoil and love on two very incredible little souls. Sophia came first, followed three years later by Jack. Sophia looks at me bright eyed and asks “auntie when will you have a baby in your tummy?” The answer to the question is more complicated than the question itself, so I simply say “one day Sophs, one day.” She says “ok,” and runs off to play. 

Watching her grow has been a blessing. I see a lot of myself in her, she is motherly, fearless, and kind just like her Auntie. Jack just adores her and wants to do whatever Sophia is doing. Jack is a gift, I can’t help but look at him and wonder “what would my son have looked like.” His big blue eyes meet mine, a smile breaks out followed by a shriek, I think that means he likes me. Jack has yet to mutter Auntie, right now he is just shrieks, we’ll get there one day, however today is not that day. 

Sophia is curious and often asks “Auntie why do you have paws on your foot!?” I lovingly tell her “Auntie will tell you when you are older,” for Sophia is to little to learn about her cousins in heaven. One day she will be old enough to know about Lucia and Baby E, today is not that day so we continue on our way.

My heart will always be broken, for a piece of my soul lies in heaven. Yet Sophia and Jack with there love, brought light into the darkness and gave this auntie purpose. I love on them a little bit more because I know how precious life is and that children are truly a gift that only God can grant. Rainbows have eluded me, yet I’ve found my pot of gold. For I was always meant to be an Auntie. 

{Divorced Life} Standing On The Other Side 


I watched the days tick closer and closer to June 27, to most it’s a regular day, but for me it signifies the beginning. Six years ago today I walked out of my lovely home nestled on a quiet street in Woodbury with my best friend at my side and I never looked back. 

The last words Scott spoke to me were “you’ll never make it on your own. No one will want you.” Those words sunk in deep like a knife cutting through my flesh, those words became a challenge. A challenge to become the woman he never deserved to call his wife. I was broken, yet I dug deep and put one foot in front of the other and walked out with my clothes and kitchen things. Cause ya know a girl has to be able to cook and needs clothes, nothing else in that house mattered to me. 

I will say this, the hardest part of leaving was walking away from Nylan. I helped raise that little boy for 5 years and he was my heart and soul. Nylan will always be apart of me, he will always be my step son. No matter where life takes me, Nylan will always be in my heart. Step parents have no rights, when you divorce you are expected to walk away from a child that you saw as your own flesh and blood. Nylan is a bright funny kid that I miss with all of my heart. I have to believe that one day he will stumble upon this here blog and he will see that I never stopped loving him. 

Not many 27 year old women find themselves sitting across form a divorce lawyer talking about property and bank accounts. Or talking about “um our baby died and he doesn’t want to be financially responsible for any of the bills…….” She asked me like all lawyers do “why are you getting a divorce? Have you tried counseling?” I looked at her and said ” I do not want to be married to a man who rather lie comfortably in the bed of a whore than with his wife. I do not want to be married to a man who chose to stay in Vegas after his wife uttered the words “our baby died.” He never put me first, I was always third best. So no counseling is not an option, divorce is my only way out.” An I did just that, I freed myself from someone who never wanted me. 

In ways I felt ashamed, it was hard for me to admit that I walked out of a mentally/emotionally abusive controlling relationship. I didn’t want people to think I was stupid, all women even the smarties can fall into controlling relationships. I had to work through a lot of shit, his voice on quiet nights seeped in reminding me that I wasn’t pretty and that I was to fat for someone to love. Little by little I was able to push his voice to the side. In the quiet moments I reminded myself that he no longer had power over me, I was free and I owed it to myself to do better. 

The best decision I have ever made is to trade my exhusband in for a muppet like dog. My IKEA filled apartment was lonely, I missed having someone to come home to and mostly a little four legged beast to cuddle. I called in sick to work (cough cough) and drove to Whipstaff Ranch to pick up what I hoped would be my trusty sidekick. Cullen, cullen rescued me that day. A mighty little muppet like dog rescued me, he was exactly what I needed. 

Slowly I began to move and grow in my new normal. Cullen was my constant, he was with me every step of the way and with one sniff he judged all of my dates. Dating was strange, my the game had changed since I last played. I adapted, signed up for dating sites and had fun going out for drinks and then coming home and watching lifetime movies with the dog. Don’t judge you know you get sucked into lifetime movies too! 

Life, it hasn’t been easy. I’ve hit more road blocks than smooth passages. Each one has taught me a lesson, a lesson that has made me stronger than I could ever imagine. Mostly it has taught me to be patient and to trust the journey.  That as long as I keep the wind at my back I will sail into safe harbor. I’ve stopped caring about other people’s opinions and stare down their judgy eyes, divorce means knowing when to get the fuck out and having the strength to leave. The decision to leave is the easy part, physically leaving is the hard part. 

“You will never make it on your own,” still cuts through me like a knife. Thou his opinion no longer matters I still feel like I need to prove him wrong. Six years, I have survived on my own for six fucking years! Like that is a feat in itself, knowing that my bills are paid and I get on the bus to a job that I love in my mind is wining. At the end of the month I have money left over to do things, fun things and I have become very thrifty.  In my eyes I’ve made it and that’s all that matters. 

“No one will want you.” He saw me as damaged goods. Sure a blood clot and stroke mess a girl up, but it doesn’t mean I am down and out for the count. Sure losing a child can scare men away, but it can bring me to someone who wants a family too. This girl isn’t damaged, he was wrong about that, I’m filled with awesome sauce! Whether I was ready or not, love crept in when I wasn’t looking, fate brought me two men that I adored. Charlie left  in the middle of our story. I can die knowing he loved me until his last breath. His leaving gave fate the chance to bring me Jay and his bitchy cat Dexter.  

An that is when the love came in. Jay just looks into my eyes and knows that my soul has seen to much and that I for some reason love him without question. He has my heart for his whole life and I have his. Together we have a baby in heaven. If you are counting, yes I have been pregnant twice and have two babies in heaven, I guess I am special. Anyways back to the mushy love story stuff. In Jay’s eyes I see the soul of a weary marine, he paid the price for my freedom and for that I am thankful, his eye tell a story of things I could never imagine, yet he is determined and never gives up, because he knows I will never give up on him. For now our children have four legs and fuzzy tails, he and I have faith that our rainbow will come and we will add another chapter to our love story. 

The exhusband was wrong, I made it and I found someone who loves me without question. Maybe he uttered those words because he knew deep deep down that without me, he would never make it. As far as I know he is still alive and has remarried, so I think that’s a sign that it’s time for me to stop living in the shadow of his words and to step into the sun where they will never again touch me. 

{Infertility} The Ugly Truth about Chasing Rainbows

When  a woman has a misscarriage or a still birth people often say “oh you can try again. You will have another one, don’t worry.” They do not realize that those words or even the thought of trying again cuts through her soul. She wanted THAT baby. She did not plan for a future baby, she had planned on brining THAT baby home. 

My journey to motherhood has had more potholes than smooth pavement. I watch friends fall pregnant on a whim. I for some reason do not have access to the baby water or whatever magical dust is flying around. Five years. Five years stood between Lucia and Baby E. Both my children were not planned, yet they were desperately wanted and now the desire to mother someone is strong.

Before Baby E I had made peace with the fact that I would never carry a child. Adoption, was going to be my best option. Doctors told me that my uterus was to broken to carry a child and mostly it was a risky endeavor. Girls with a history of blood clots and stroke, well it’s not recommended that you become pregnant. I felt cheated and robbed, one decision affected my whole fertile life. All my friends who went on the NuvaRing got babies, I got a blood clot. This was the hand I was delt and with time I learned to live with it. 

That is until a blue plus sign showed up. I was scared, no not scared, I was fucking terrified. I had been pregnant before and it didn’t turn out so well. I went home with empty arms. I was cautiously  getting attached to the group of cells I was carrying, the only thing that stood between me and my child was a viability scan. Every high risk pregnant woman dreads this scan. The scan is completed at 6/7weeks gestation, if there isn’t a heart beat, game over. Jay was excited for the ultrasound, as soon as an empty sac flashed on the screen, I knew in my heart it was over. God didn’t give me a second chance to be a mom. He brought me so close to motherhood, yet pushed me one step back. This rainbow was not meant to be ours. The chase was back on.

The world of baby making is not pretty. It’s pretty much a second job. There are charts to be charted, temps to be checked, sex dates on calendars, ovulation test to pee on and then there is the two week wait. The wait to see if all of your hard work (literally) and charting paid off. Month after month went by without a blue plus sign. Something in my gut said “lady you are a little off.” 

A year went by with no luck. Down the fertility rabbit hole we went, I’ve had more blood test and scans (the ultrasound wand and I are on a first name basis) than I can count. My body and I are not on good terms right now. My egg reserve is good, yet something is a miss. Luteal phase failure, progesterone and I are not on speaking terms. She is suppose to be my girl and rise to the baby maintaining occasion. Bitch is sitting in her seat exchanging gossip and not paying attention to her job at hand. Getting her to step up is tricky, yet she is my only hope. I need her otherwise I’ll never catch our rainbow.

Talking about infertility makes me feel like I failed as a woman. I’ve got one job and that is to birth babies. I think in away women judge each other. Having fertility help is like the new c-section vs vaginal birth debate.  Yes it’s true only a small percentage of the population needs fertility assistance, yet it doesn’t make me any different than fertile myrtle from down the lane. Maybe in away it makes me more of a woman because I have to endure a shit ton of testing and scans and needles to get my prize? Probably not, but I just want to throw that out there. 

The getting pregnant process doesn’t scare me. The pregnant part is what scares me. Carrying a child scares me. Not knowing what the next scan will show is what scares me. My therapist assures me that my fears are healthy and normal. That as time goes on they will ease. But for now in this moment they are very real and it’s scary. I desperately want to be a mom, yet 9 months of pregnancy terrifies me. Jay does his best to ease my fears and calms me down. He knows what I’ve gone through, it’s a lot for one soul to carry. Jay tells me that  I am strong and that I am capable of carrying our child, we just need to catch our damn rainbow and never let go, well when they are 18 will let go. 

There is a five year gap between Lucia and Baby E. Which is not normal, it’s not normal to have a five year gap or to loose two babies in a row. Which the term loose is still strange to me, I know where they are and they are not lost. The fore mentioned is the ugly truth of fertility. Some ladies have what it takes and then there are those of us who desperately want to be fertile. 

When someone asks me “do you have children?” I should be able to say “yes, but they died,” without fear of being judged or the awkward look of pity. Just like infertile women, women of dead babies get swept under the rug. It’s like we are societies dirty little secret, like we live in a fairytale land where every woman is fertile and every baby lives. 

Truth: that land does not exist and life, it’s ugly and hard. I learned this the hard way. Yet I like many women still hold onto a glimmer of hope that my next pregnancy will be successful and that it will result in a live birth. While you are doing summer things, I will be getting poked, prodded and scanned to make sure my lady bits are in working order, because this, this is going to be the year we catch our rainbow! 

{Lucia} A Lifetime of Wonder 


Dearest Lucia,

Today Friday May 13th marks your 6th Angel Birthday. It’s hard for mommy to believe that I have spent 6 years without you. There isn’t a day that goes by where mommy doesn’t think of you. Long ago I stopped asking God “why Lucia? Why did God need you more than I did and what did I do to deserve this?”I realized Lucia that God knew that I was stronger than I realized. For it takes a strong woman to be the mother of an Angel. God knew I was up for the task, so he picked you love to join his heavenly skies. 

In the quiet moments I wonder what you would look like. If you would have mommy’s curly hair and blue eyes or the Jewish features of your father. Would you be a fearless little chatter box or a silent observer. I wonder if you would share my love of dinosaurs and gazing at the star filled skies. Maybe you’d be like your father, spending your moments playing video games and counting down the days till football starts. Who you were meant to be will always be a mystery to me. 

Your death remains a mystery. With all of the science in this world doctors were not able to put a why behind your leaving. One moment you were inside my protective womb in the next you were gracing God’s arms. Mama wasn’t ready to lose a child at 27, yet somehow I put one foot in front of the other and learned to live this life without you. It hasn’t been easy, there are good days and then there are not so good days. But for you Lucia Mommy continues on, I want you to be proud of the life I’ve made. Lucia you are in every step I take, every decision I make, and every beat of my heart, you are with me always. 

I have faith that mommy will see you again. Until that day comes a piece of me will always be in heaven. 

{Baby E} Empty Sac, Big Impact

A year has almost passed since a bright blue plus sign appeared. I sat on the floor staring at it in disbelief. It was a good 30 minutes before it sunk in that the plus sign was for me and that a baby was on board. I was given a second chance at motherhood and Jay would be a first time father. 

In the six weeks that followed we started picking out names and nursery themes. Jay looked up baby gear on the Internet and spoke softly to my stomach. Jay was attached the instant I told him and for me I was slowly falling in love with a group of cells. My Dad started making the mobile just like he did for Luica, birds, I wanted birds for this baby. He obliged and went to work. My parents were excited to have a fifth grandchild to spoil and love on. Their excitement helped mine grow. With a little luck and a lot of faith everything would be all right. 

If you are familiar with child loss then you know all pregnancies that follow are considered high risk and there is a viability scan around 6/7weeks. This scan terrified me and I dreaded the day of our appointment. Perinatal doctors had failed me before, the fear and anxiety that I had was raw and real. The ultrasound would be my enemy, it could either make or break this pregnancy. An empty sac appeared on the screen. At almost 7weeks a fetal pole should have been inside beating away. 

I carried the little sac that couldn’t for 12 weeks. The Doctor and I called it, a plan was put in place and a D&C was scheduled for July 7, 2015. Jay couldn’t miss work so my Mama took his place. I had the sweetest nurses. My Nurse Ann made sure I knew what and where baby land was, she held my hand and gave me a hug as I headed off to surgery. A few days after surgery I got a call that my pregnancy contents had been cremated and sprinkled in Lake Wood Cemetery’s baby land, our baby is resting with a view of Lake Calhoun and I can walk over and visit if I chose to. Weeks later the pathology report would show that it was more than just a sac, it was a partial molar pregnancy, two sperm fertilized one egg and our baby had more chromosomes than it needed. 

Unlike Lucia, Baby E gave me a why and that was all I needed, I was able to be a peace with the leaving. Baby E has given me hope that I to will have a baby one day, it’s just rainbows are elusive and they are hard to catch. I have faith that my turn is just around the corner and that one day I will get to carry a baby to term. For Motherhood is a job that I desperately want. 

{Mother’s Day} STILL A Mother, My Babies You Will Always Be 


I walked past the shelves of neatly organized Mother’s Day cards and past banners  reminding me that it was on May 8th. Commercials on the radio quickly tell me I need to hurry in and by my Mother a gift, it seems mothers like strands of pearls not fancy brunch dates. Or so that is what the owner of a jewelry store thinks. I change the radio every time the ads come on and I look to the ground as I bust past the cards, for Mother’s Day is not for me. 

Mother’s Day brings on a slew of emotions and serves as a reminder that my babies are not will me. Last year on Mother’s Day a bright blue plus sign told me I was pregnant. Excitement was replaced with an unsettled fear and I tried to show joy, it was hard. I had been on this road before and my heart it did not want to get attached to the life that was inside. My heart she was right, the ultrasound revealed an empty sac, two sperm fertilized one egg they said. To many chromosomes and we said goodbye to Baby E on 7/7/15. 

As a Mother I have faith that some how Baby E found his/her big brother in heaven. That Lucia and Baby E are together causing trouble and watching over me. Lucia would be six this year and Baby E would have been almost four months old. My heart aches for my children, I got cheated out of my son and who Baby E was meant to be. 

Right now I would have a first grader on my hands, I wonder what he would look like, would he have my blue eyes and curly hair or would he have the Jewish features of his father? Mostly I  wonder what his voice and laughter would sound like. If he would come running to me yelling “mommy mommy mommy” with a bug in his hands all covered in dirt. Or if he would be the unadventurous type who quietly watched the world around him. One day I will see my son, faith tells me that I will and when I do his voice will be the sweetest sound my soul has ever heard.

Baby E would have been almost 4 months. I wonder if Baby E would have been a girl or a boy. Jay and I were secretly hoping for a girl, we really wanted a daughter, we would have gladly taken a boy too. I wonder if Baby E would have slept through the night or kept us awake, what his/her gummy smile would look like, and if they would have had a lot of hair or been a baldy. If they would have been a good eater or a finicky one. I wonder if he/she would have felt heavy in my arms and the softness of their body against my chest. One day I will see Baby E and hold him or her in my arms.

My babies you will always be. There are no cards for Mothers like me. We as a society do not like to talk about Mothers who have lost children. It’s like we are a dirty little secret and we are looked upon as inadequate. We are STILL mothers. We did not chose to loose our children, God, he made that choice for us. Maybe God knows it takes one hell of a woman to be the mother of an angel. My children died, plain and simple they are gone, and that fact does not take away my Motherhood card. My heart aches and it wonders, it looks on at you and thinks “one day that will be me, one day that WILL be me.” 

Rainbows are special, they elude us, but if you are lucky and you manage to catch one hold on to it tightly. For there are many women who would gladly chase that rainbow until it lays heavy in her arms. 

{Super Auntie} Dear Jack 

It dawned on me today that I never wrote a welcome letter for Jack. Life got busy and I was grieving the loss of Baby E and what could have been. Had Baby E survived he/she and Jack would have been 6 months and 1 day apart. It wasn’t meant to be so as I healed from the D&C I looked forward to feeling the weight of Jack in my arms. 

  
Dear Jack,

This is a little late, you’ve been hanging out with us for oh almost 7 months now. Unlike your sister you are the quiet observant type. She was always mumbling and trying to chew on the world around her. You on the other hand chose to be quiet and play possum in strange arms. It took you a bit to warm up to me, Auntie gets a big gummy smile now. Maybe it’s because Sophia is telling you “auntie is the best ever” or maybe it’s because you are realizing that I am the present giver.

Either way you have a lot to learn little one and there is a big world just waiting for you to find it. Life is a beautiful disaster. It’s not perfect, but in the gray you will find moments of perfection, it’s those moments that will carry you. Each day is an adventure and no two are ever the same. If they were, life would be boring and no one likes a boring story. 

Your family will always be here for you. No matter what you do. If you find yourself in a predicament that you can’t get out of, call auntie or nana they will bail you out.  It’s ok to veer from the path, take the one less traveled or better yet blaze your own trail. Do big things, discover big things and be big in a world full of small. Only you Jack can determine how your story will end. Live a life worth living, fill it with laugher and meaning. And remember tears are ok too. 

  

That Mama of yours will keep you in line. Just know that you are butter in her hands and with a quick smile you can probably get away with anything. She’s pretty easy and lucky for you she isn’t very observant, so yes you will be able to sneak that frog into your room. Just make sure you don’t lose him in the house, otherwise she’ll be mad. Well not mad, she’ll be more freaked out that she has to look for said frog in the house. She doesn’t do frogs or slimy things. 
  
You should also know that Nana is pretty easy to, but be careful she is called the “warden” for a reason. No one likes the warden. Jack just do what Nana tells you and you’ll be all right, you will spend little time on the chair in the hall. Sophia can tell you all about the time out chair. Don’t worry Auntie can tell you how to get out of said chair, we just need to find a doll that looks like you. 

 You are lucky Jack, you are the youngest child which means your sister Sophia is your built in friend. You will never go through this life alone, Sophia loves you and wants to see you grow big. In her mind she is plotting adventures for the day you are big enough to run along side of her. Your sister she will always be and you will always be her brother. When she’s older she’s not go going to like you much, you will want to tag along when she is too cool to have a little brother. But don’t worry love, Sophia will find her way back to you and bonded you will always be. 

  
Your Papa, he’s a special breed. He is weathered by time and struggles have aged him. Your Papa almost wasn’t, he’s stolen 14 years from the sand man and you Jack are his greatest joy. Papa can’t wait for the day you are old enough to go fishing and camping. Maybe he will get the old truck running so you and Sophia can ride along through the country side with slushies in hand. Your Papa is a fighter, the ultimate under dog who landed on top and no one is knocking him off his mountain. Listen to his stories, learn from them and you Jack will do all right in life. 

 

When you are much older Auntie will tell you about Lucia and Baby E. Lucia came long before you and I am certain the two of you would be thick as thieves. You Jack are the second grandson and third in line. Lucia was 1st, Sophia is 2nd, you Jack are 3rd and Baby E was the 4th. Your cousins are always with you, where ever you go they are there blowing in the breeze. Day in and day out Lucia and baby E watch over you from heaven. Your big cousins turtles dance in front of your window, a piece of him was with you from the moment you got home. One day Auntie hopes to bring Nana and Papa’s 5th grandchild into this world and you Jack will have an instant friend.

You love can break your uncle Jason in. Uncle Jason has no idea what to do with or how to care for a little human. You were the first baby he has ever held. He did a really good job and you two are going to be buddies one day. 
   
You can do no wrong in this world for you have angels on your side and they will always keep you on course. I want you to travel, go to college, take the chances your mama never dared to dream off. Take time to smell the roses, keep your family close, and you will never lose yourself. Life isn’t going to be perfect. It’s  up to you to find beauty in the disaster and to determine your course. This life is yours to live and the world is for you to take. Take it and never look back Jack. 

Love Auntie AJ 

{Go Red For Women} “I Lived” is why I Go Red 

 
“I Lived” is why I Go Red. Survivorhood is a beautiful disaster. There is no guidebook or follow the dots for survivorhood, each woman has to lay the bricks for her second chance. There are moments where I wish someone would hand me a guidebook and to show me “this is how you do it.” But then I think to myself, “on October 22, 2009 you were given a blank book and only you know how to write your second story.” 

 Make a difference. Amongst all of the fear and unknown I stopped to ask “how many other women has this happened too?” In one moment of disaster my passion was born. I wanted to make sure that no other woman endured my fate, I wanted to make a difference and raise awareness about the side affects of hormonal contraceptives. 

1 out of 3 women will die from heart disease and stroke. 1 out of 5 people will survive a pulmonary embolism. Those odds are not in our favor. So many women have no idea that their birth control puts them at a higher risk for blood clots, stroke, and heart attack. When we look at these odds one most stop and ask “are they preventable?” The answer is simply, yes they are. 

Education starts with you and me, together we can help medical professionals learn the signs and symptoms of blood clots. They do not live in our bodies, we do and we know our hearts like no buddy else does. It still bothers me to this day, that it could have all been prevented. I could have skipped the pain and avoided the aftermath. That if my doctor had listened to my symptoms, she could have ordered the d-dimer test and the clot would have been stopped before it hit my lungs and eventually my brain. I have to live the rest of my life knowing that this didn’t have to happen. 

But it did. A beautiful disaster the ignited my passion and gave me purpose. I got a second chance to live this life. I am blessed, I am amazed, and sometimes I feel like I am living someone else’s dream. It’s mine, every pothole, pitstop, and curveball are mine. In the moments of disaster I found myself. I found the strength to continue dancing on the good days and laughing on the bad. I cherish each moment, for I know I am living on borrowed time. I’ve stolen almost seven years from the sandman and I pray that I will steal a few dozen more. 

From billboards, to bus stop posters, to PSAs and beyond. Six years ago I had no idea that my story would have so much value and impact on the people around me. State lobby days allow me to make a difference and national lobby days allow me to take a stand. With tears in my eyes I stood on the U.S. Capital Steps right next to Nancy Pelosi, giving a speech on the impact and importance of the Affordable Care Act. You’re the Cure has given me a platform to make a difference and for that I am forever grateful. 

  

Time. Be it given or borrowed I do not take it for granted. I survived the worst day possible. I lived. I’ve squished a lot of life into the past 6 years. I got a divorce, adopted a dog, found a job that I love, mostly amongst it all I found myself.  I became a mom, Lucia and baby E rest in God’s heavenly arms. I spent time with my father, wine tasting and thrift stores are our jam. My mama and I spent time in the dells, shopping and lunching. Those two, they are my rock. 

Our family grew, I watched my sister become a mom, Sophia and I are bonded for life. I got to paint Sophia’s toes and take her to her first movie, Charlie Brown of course. As I was letting go of Baby E, I again watched my sister welcome her second child. Jack doesn’t know it yet, but he is one lucky little dude, aunties like me are hard to come by. Sophia and Jack are spoiled, I treasure each moment and love them beyond measure. Their Auntie, I will always be. 

Love slowly seeped in. Fate brought me my best friend, my confidant, dinasour loving, dirty joke telling soulmate. In Jay I found home, in me he found the woman he will soon call his wife. We were so close to parenthood, but Baby E was never meant to be ours. Jay. and I have hope that our rainbow Is just around the corner. 

Who knows maybe if the stars align this time next year “motherhood” will be my why. I would love that “why” very much. 

But for now: “I Lived” is Why I Go Red

 

{Go Red for Women} Being an Auntie Is Why 

 One out of three women will die of heart disease. One out of five women will be impacted by heart disease in their lifetimes. If you ask me one, is one woman to many. Many believe that heart disease and stroke only affect the elderly, sadly this isn’t the case. The thing about Storkes is this: “they are a thing, they have no idea how old you are, or the color of your skin or your weight, they strike when you least expect it.” Stroke is not an elderly thing, it’s an every woman thing and they are 80% preventable. 

My stroke was the direct result of a hormonal contraceptive. I had gone to my annual exam and displayed all the signs and symptoms of a blood clot and my doctor ignored me…….. Yes you read that right, she ignored the signs and told me to drink some water and walk more. Her medical advice seemed half hearted and rushed. Something in my gut told me to get a second opinion, I never sought that second opinion, instead one week to the day I drove myself to the ER. 

I drove myself through rush hour traffic to the ER and that is where my second story began. I was fighting for every breath I could muster and fading fast. The CT scan revealed a clot the size of a 10cent gumball blocking the main valve that connects the left lung to my heart. Blood was barely getting past the clot, my heart was in sinus tachycardia, and my blood pressure was rising, all ingredients for a perfect storm. A storm that lead me to have a stroke right in the ER, clot busters were given to me and blood thinners were started, and I walked out of the hospital four days later.

I survived the unthinkable, only 1 out of 5 survive a pulmonary embolism and walking away unscathed from a stroke is a miracle in itself. What hurts the most is that all of this could have been prevented, there was no need for me to die almost five days before my 27th birthday. My pulmonary embolism and stroke were 100% preventable. All the doctor had to do that day was listen to me, a simple test called d-dimer could have identified the clot before it reached my lungs and my stroke would never have happened. Yet, I wouldn’t trade this experience for the world, in a moment of disaster my purpose was born.

I fight for all of the women who were asked to leave the table. For those women who never got a chance to say I do. For those women who never got to watch their children grow up. For those women who never got to become mothers and for the survivors who will never hold a baby of their own. For those who never got to hold their nieces and nephews. 

Thousands of women’s lives are being cut to short. Thousands of children are being cheated out of there mothers, aunties and grandmas. Not to mention think of all the men who never got a chance to meet their soulmate. We can change this! You and I can change this, by simply going Red. When we go Red we raise awareness of heart disease and stroke in women. When we go red we raise funds for life saving research. Mostly when we go red we save lives. Life is why and no woman deserves to fight alone.

If you need proof that “Go Red” matters, look at Sophia and Jack, they will tell you “it matters.” My family will tell you “it matters!” My story could have ended diffrently, Sharon would have picked out an urn instead of a 27th themed Halloween birthday cake for her daughter. Jammie’s children would be learning about their auntie through photographs and stories. Because of the American Heart Association’s life saving mission I got that 27th themed birthday cake and I get to be Super Auntie! 

So yes Go Red does matter and it does make a difference! Please join us and go red for the women in your lives on Friday February 5, 2016. 

Being an Auntie is Why I Go Red 

{Go Red For Women} I can have bad days too!? 

  There is no perfect survival story and there is no guidebook called “how to live your second chance.” Life is messy, it’s a beautiful disaster. Some survivors chose to curl up in a ball and wish the world away. Others are filled with anger and they become bitter with age. Some simply give up before they give them selves a chance to rise. Then there are the ones like me, a special breed who doesn’t deal with the mental/ emotional aspect of what happened, yet they want to change the world. 

When you survive the doctors do a really good job at taking care of your body. Your mind and soul are left with you to repair, as they do not have time for that. They simply cannot mend what they cannot see. 

Trauma leaves scars behind. Pulmonary Embolisims and Strokes take pieces of your soul and if you survive they leave you with survivors guilt. I’ve spent more days than I can count wondering why me and why not her? Why am I allowed to take a seat at the table while so many women are asked to leave? Fate she amazes me, maybe she saw something in me that I didn’t see in myself. Maybe she knew that I would grow in a moment of darkness. 

I never looked at my PE and stroke as a tramatic event, for me it was a horrible event that I wanted to stuff in my pocket. I wanted to get back to normal as soon as possible, it never crossed my mind that I needed to deal with the mental and emotional side of survivorhood. In my eyes I was doing a really good job at running from my emotions and memories. My back pocket held my PE, the Stroke, Lucia, Divorce, and Charlie. As long as they stayed in my back pocket I was safe. I believed whole heartedly in the old adage “out of sight, out of mind.” 

A soul can only carry so much disaster before its seems break. My seems burst long ago, I was living on patches, throwing myself into my work and crying my tears into the muppet like dogs fur. When I turned 32, I knew something had to give, I thought “therapy is only for the crazies and for those who can’t get their fucking little ducks in a row.” My ducks were lined up in size order, my exterior was iron clad, and crazy, ha I probably am but hey that’s ok who isn’t a little off these days.

Research, I checked the health partners sight to see what my plan covered,Watercourse is where I landed. Turns out they were right around the corner from my apartment, I had driven by their office for years. I slowly dialed there number, a nice lady answered, she asked if I had a couple minutes, I said yes. I unfolded the items hidden in my back pocket, she repeatedly said “you poor thing,” and promised to match me with a therapist. I was sceptical and hesitant, a few days later they called, her name was Emily. My first appointment was scheduled. I was ashamed to tell my friends “hey I’m gonna go see a therapist so I can learn how to deal with my shit.” 

Walking into Watercourse I was in denial and skeptical about therapy. Mostly I was afraid she would tell me “you are insane, here is the name of a psychiatrist.” No one wants to be told they are crazy. Emily didn’t tell me I was crazy, instead she asked me question after question and with each answer the items in my back pocket unfolded into the room. She started to build a picture of my past and my survival mechanism “put it in a box and deal with it another day.” 

Bottling up emotions is not the answer. Eventually the top is going to fly off and you will end up in a puddle of tears on your appartment floor. Trust me I know about this kind of thing. Emily understood the road I was walking on and through guided conversation we traced each step. We discussed how I don’t always have to be perfect, she told me “it’s ok for you to have bad days too.” Emily was the first person in 6 years to tell me that it is ok to have bad days or off days or any kind of day I want. Everyone else acted like I shouldn’t complain or have a bad day, instead I should be grateful that I am alive. 

I am grateful to be alive, I know that a few minutes could have given me a different ending. I am a stubborn survivor, help is something I rarely ask for. In my mind asking for help is a weakness and shows your flaws. Emily made me realize that we all need a little help and that people want to be needed. I am so used to being the helper that I put my own needs aside. I do everything on my own, including driving myself to the ER, because I don’t want to inconvenience anyone or ruin their day. Which I wouldn’t recommend you do, ask for help, don’t be like me. Then again I have turned a new leaf and have learned its ok to ask for help. Jay can attest to this as he has taken me to the ER about 3 times now and carries heavy things for me. I am still not great at it, but I am learning that it’s ok to not always be the helper. 

I’ve been seeing Emily for over a year now and she has helped me immensely. Not only have we delt with survivorhood but we delt with Lucia too. Everyone says “oh you will have more children,” without knowing those words cut through me like a knife. A grieving mother doesn’t want those words, she wants her children. When a plus sign showed up in May I was terrified and did not want to get to attached to the contents of my uterus. She let me know that these feelings were perfectly ok and that with time they will fade. That I didn’t have to be afraid of an ultrasound machine and that I have a right to demand that we handle this pregnancy my way. 

That + sign slowly turned into an empty sac, I was crushed. I felt defeated that my rainbow eluded me. Emily helped me deal with my emotions and fears when it was determined that a D&C was the best course of action. Without her help I probably would never have gone through with it. We talked about the procedure and that it was ok for me to speak up if I didn’t like something or if something felt off, after all it is my uterus. I did my research and found a doctor who understood what I had gone through and he promised he would take every precaution he could to protect my uterus. He did just that and he said “I have no doubt that you will carry a baby.” Those are the only words I needed to hear, that I can have babies too.

A perfect storm, the past 6 almost 7 years has been waves of disaster. Between each wave I found calm and enjoyed the beauty in the silence before the next one came crashing down on me. I was sailing in a beautiful disaster. My boat on the outside her haul was perfect, but on the inside my engine was slowing burning out. Therapy helped me really examin each wave, to realize that there was nothing I could have done to avoid them and we cannot simply see in to the future. If I did manage to avoid each wave my life would be drastically different and I wouldn’t be me. 

The biggest lesson I learned is this: it’s ok to seek out a therapist. Sometimes one goes through so much that she needs another soul to help her deal with it. I had no idea where this therapy journey would take me, I just went in with a semi closed mind and came out stronger than ever. The doctors they fixed my heart and lungs, but Emily she mended the one thing they couldn’t fix, she mended my soul. 

We are all in this together. 

Mental health is often overlooked when it comes to heart and stroke patients. So many doctors only concentrate on the physical and leave their patients to struggle through the why mes, the what ifs, and other questions that plague survivorhood. The thing is we do not have to go it alone talk to your doctor, let then know about your struggles. Because one’s mental health plays a huge part in their  recovery. If your mind is not in the game, then your heart surely won’t follow. 

To learn more about  Watercourse please visit: Watercourse Counseling